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Finding a reason
I have a friend who is also a close neighbor, and we live in the country, so by close I mean about 4 miles down the road. She has just been diagnosed with breast cancer, she has an agressive kind and is HER positive. She is waiting for a surgery date and then will be having both chemo and radiation. Although she is…
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DM_K
How are you doing? I see you haven't posted since April. Did you ever get on a clinical trial?
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Update
I'm overdue to post an update but have been procrastinating because the news isn't so good, and because the field keeps shifting under me. Every time I think I know what to report, something new comes along. Seven weeks ago, I was hospitalized for 5 days with DVT in my left leg (not to be confused with lymphedema in my…
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Marijuana to help with sleep
A friend with situation anxiety told me she's been smoking a very small amount of marijuana to get to sleep. She says it's very helpful and has no side effects on the next day. She doesn't use it daily. I'm having trouble falling asleep so started taking an Ativan. I still lie awake for 2-3 hours but at least it's peaceful…
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abdominal discomfort and now vomiting, 6 weeks out from radiation
I finished pelvic IMRT external beam radiation for UPSC/clear cell about 6 weeks ago, finished chemo about 4 months ago. The diarrhea is intermittent, but for the past week or two, I've also had increasing GI discomfort whenever I eat (and I eat a very low fiber diet). Now, for the first time, I'm vomiting after having…
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Lymph node removal? Molecular profiling?
I am having my surgery in 2.5 weeks and, until them, I'm away from home. Consequently, my initial diagnosis came to me via phone and the only conversation I've had with my surgeon was also via phone. I was hoping you ladies might be able to help me with some questions I have. I have grade 1 endometrioid adenocarcinoma and…
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Unexpected
I was diagnosed with uterine/endometrial cancer and I had to have a hysterectomy...this was completely unexpected and I really don’t know how to deal with it...the emotional toll it’s taken on me is not something that I was prepared for...I feel so alone and no one in my family understands my bouts of sadness and…
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CBD oil
While I dropped my consumerlab.com subscription some time ago because I'm not adding new supplements to my regime at this time, I still get emails from them and this one about CBD oil caught my eye because I remember a prior discussion about black seed oil and cytochrome p450 enzymes. Below is from the email I recieved:…
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No hat, no wig, no problem??
My hair has come back to the point that I am almost brave enough to go out with no wig. This is great! However, there are people I see that don't realize I have been wearing a wig, don't know I had chemo and all that. One lady even said she liked my new haircut, I didn't tell her it was a wig LOL. So how do I go out with…
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Lymphedema
In the thread entitled "How many lymph nodes? (Includes Recap of Lost Posts)" ncg007 commented that she had developed lymphedema about 2.5 years. I've also developed lymphedema at about the same time post-surgery. After a deep vein thrombosis ultrasound to ensure that I didn't have any clots, I met with the occupational…
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Still thinking of you CQ
It's that time of day that I do a lot of meditating and praying and just wanted to let you know that I think about how you are doing all of the time. Hope all is going well with your recovery.
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Dilation after brachytherapy
Today I finished my third and last brachytherapy. I found out about dilators here and during the second visit, I talked to the nurse about it. She filled out some papers for the doctor, but didn't give anything to me. The radiologist will see me in a month. So, I have no dilators and I'm afraid a month is too long to start…
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Two articles of interest
Reulators cite care deficiencies at MD Anderson after patient's adverse event. https://www.houstonchronicle.com/news/houston-texas/houston/article/Regulators-cite-care-deficiencies-at-MD-Anderson-13969785.php This was a scary article to read as it seems like the deficiencies were major for Medicare to get involved.…
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Happy day
Have to share my joy that I got my port out today! Finished chemo on Feb 15, finished 3 rounds of brachytherapy on April 1. My oncology/gyn said I could loose the port and I am so relieved to have it gone! It was a constant reminder of chemo, it itched sometimes and I hated that metal lump in my chest. I know some choose…
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Dear neuropathy friends,
Dear neuropathy friends, What is everyone doing to help with their neuropathy. I have a slight dullness in my fingertips; but, my feet are wicked. I am taking gabapentin 300 mg 3 times a day, it may or may not be helping. My neuropathy is a bit better than it was in the beginning, I no longer get shooting pains up to my…
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Affiliate Hospitals
And that’s why I didn’t go to Cooper. https://www.cancertodaymag.org/Pages/cancer-talk/When-a-Top-Ranked-Cancer-Center-Comes-to-a-Hospital-Near-You.aspx
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Estrogen Vaginal Cream
I had Garden Variety Endometrial Cancer 9 years ago. Everything has been fine and dandy since and surgery was the only treatment need. I also had breast cancer and was treated with chemo and anti-estrogen (Tamoxifen and Arimidex) after. For the last couple of years I have been having frequent bladder "infections"…
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NRG Oncology trial sets new standard regimen for women with uterine carcinosarcomas (MMMT)
Results from the phase III NRG Oncology clinical trial GOG 0261 comparing paclitaxel plus carboplatin (PC) to paclitaxel plus ifosfamide (PI) in women with stage I-IV, recurrent carcinosarcoma of the uterus or ovary, indicate that the PC combination treatment should be considered a standard of care for this patient…
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First Post
I have read these posts a lot over the last 9 plus months, thank you so much for all of the information you lovely sister warriors have posted, you have been my lifeline. I was diagnosed with UPSC in September, had a hysterectomy in October, began 6 rounds of carbo/taxol in November, 38 rounds radiation in January (32…
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Recurrence of diarrhea after improvement following completion of radiation treatment - normal?
I thought I was out of the woods, but I guess not. I finished pelvic external beam IMRT about a month ago for UPSC/clear cell, isolated tumor cells found in one of the two sentinel nodes. I had horrible diarrhea during radiation treatment after the first two weeks. About two weeks after completion of treatment, the…
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Henry Lynch, celebrated as father of cancer genetics, dies at 91 (Lynch Syndrome)
Anyone diagnosed with Lynch Syndrome may find this obituary about the doctor who discovered the gene mutation interesting. And even those who don't have Lynch Syndrome may have benefited from his genetic cancer research. “Nobody believed me,” Dr. Lynch said. “But I knew we had something here. I knew we could potentially…
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Hair Loss
Hi Everyone, This is my first post. Have had 4 chemos. The last one was 2 wks ago & started the Taxol & Caboplatin. Have 3 more Chemos coming up every 3 wks.Today brushing my hair, twice, with lots of hair coming out on the brush. Guess this is the beginning of hair loss. Not worried about hair loss, it'll grow back.Have…
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How soon is soon?
3 months ago I experienced heavy uterine bleeding. It lasted for 2 weeks. There was a gap of 3 weeks, then I experienced it again for 2 more weeks. There was a gap of 3 weeks, during which I made an appt with an ob gyn. I wasn't able to see her for a few weeks, and by the time I did, I'd had a 3rd bout of 2 weeks of…
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Looking for Suggestions on dealing with Metal Taste in Mouth
Assuming many who have had treatments have suffered from the side effect of the metal taste in the mouth that will not go away. Any suggestions on how you are dealing with that or dealt with this in the past are appreciated!
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Minimally Invasive versus Abdominal Radical Hysterectomy for Cervical Cancer
I posted this on the Gyn Cancer board for cervical cancer, but I thought you woud all find it interesting as well. The below study was known as the LACC Trial, Laparoscopic Approach to Cervical Cancer. As scary as it is finding that you have cancer, be sure to ask your gynecologic oncologist (and that is the specialist you…
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Hard-to-Treat Uterine Corpus Cancers Increasing
Hard-to-Treat Uterine Corpus Cancers Increasing Uneven impact on racial-ethnic groups * by Diana Swift, Contributing Writer * Among all U.S. women, rates of more aggressive non-endometrioid cancer subtypes have been rising rapidly. And trends show marked racial differences and disparities, with higher rates of uterine…