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Heavy bleeding after pelvic ultrasound,
I had a pelvic ultrasound yesterday and had heavy bleeding afterwards. The ultrasound was performed late (6:00pm) on the 4th day of my period, so I was having some bleeding, but definitely tapering off and almost finished with the period, as they typically end on day 5. But within 20-30 minutes after the scan, I flooded…
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Da Vinci Hysterectomy
Hi Ladies, I am having a Da Vinci hysterectomy in about a week and a half. I thought I took good notes at my appointment, but I can’t remember how long my oncologist said the surgery would take. For some reason I remember 4 hours. Based on experience is this about right? Also, does the 4 hours include time in recovery…
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How sick might I be the day after Carbo/Taxol?
I was told that the day after, people feel okay. I certainly feel okay now in the evening, having had chemo today. I would like to go visit my kid at college tomorrow. It's a little over an hour away, an easy drive. I could go by myself in the AM, or wait for husband to drive me later in the day - but he's not sure when…
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Circulating tumor cells
Has anyone had their circulating tumor cells measured? If you had circulating tumor cells, what was prescribed to reduce them.
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Advice on wig and other head coverings - when to shop for one?
I'm starting chemo in 3 days. My oncologist gave me a scrip for a wig. I was thinking I wouldn't go shop for one until the hair fell out, but now, reading about how people say that the hair loss is very physically uncomfortable, I'm thinking maybe it's best to do it now. Any advice on when to shop for a wig? Advice on…
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Any advice on keeping my nails?
I met with a chemo nurse today, and she recommended that I put tea tree oil on my cuticles twice a day throughout treatment. She implied that this could save me from losing nails. I'm already planning on icing my hands and feet for the chemo, so I'm hoping that with less penetrance of the carboplatin/taxol to the nailbeds,…
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Conflicting pathology
A couple of weeks ago I was diagnosed with endometrial carcinoma, at least Grade 1 via D&C at a local hospital. I went to Johns Hopkins for a second opinion. They requested my slides from the local hospital to perform their own biopsy. I received the results. They are somewhat conflicting. The Hopkins Pathology report said…
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1st Brachy session today and having light bleeding
I'm 11 weeks out from my hysterectomy. I did not have any bleeding after 7 weeks until today when I had my first brachy session. My first session included the fitting along with the radiation. Did anyone experience bleeding when they had Brachy? If yes, how long did it last? Thanks so much .
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Terrified They Seem Reluctant To Do Surgery
I'm terrified that my doctor seems reluctant to do surgery unless my large tumor shrinks enough for lapriscopic surgery, will get imaging after chemo 4. I'm 42 and 242 in weight and in decent health as I've fully recovered from the Septis as far as I can tell. Granted my ca-125 has really responded to the chemo and I'm at…
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cryotherapy gloves and slippers to prevent neuropathy?
Anyone have any experience or advice with this? There was a recent study that came out that had people wearing them on their dominant side, and then compared the incidence of neuropathy from the side kept cold vs the side that wasn't kept cold. Results showed that the cryotherapy DID help. I would like to try this, but the…
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Portacath placement was very easy
I just had a portacath placed today, and I cannot believe how easy it was to have it done! I was a little bit worried about it, had been considering toughing it out with IV chemo, but my oncologist really encouraged the portacath to prevent extravasation (leakage into surrounding tissue) of the chemo, so I went ahead and…
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More tests ... Breast issues this time
Freakin' crap. Freakin', freakin' crap. I went for a mammo last week, and they want me to come in for additional testing. They want me to come in on NOVEMBER 7TH! Seriously? What madness is this? You make me wait more than a week, never tell my oncologist at the other facility, who really should have been the one to tell…
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D&C tomorrow-what to expect?—Update
So, I have my d&c hysteroscopy tomorrow. Starting to feel nervous. They are doing general anesthesia. Just wondering how I will feel afterward--will I be really tired? Will there be a lot of bleed ing or cramping? Just wondering what to expect. Any idea how long I'll have to wait for the pathology report? How quickly I'll…
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Tumor Testing
While this was mentioned in an earlier thread, I wanted to make this it's own topic. In case anyone reading this don't know I am on the chemo/surgery/chemo route and I am on my third chemo this Thursday for a diagnosed Stage 4B Endometrial cancer and at last check had a 5x5x4inch tumor near my ovary in my pelvis, I am…
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Reoccurance Rates
While I am still going to chemo to even make it to surgery to even get past my first discovery of the cancer, I am wondering what kind of chances of reoccurance people were given by thier doctor for various stages of Endrometral cancer? I wonder how much this study vs what doctors told people. I also wonder if Uterine vs…
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Up at night to urinate
I had my hysterectomy 10 weeks ago. I was put in surgical menopause. My symptoms such as night sweets came on gradually. For the past 4 weeks I'm getting them every night . This week, I'm now waking up in the middle of the night to urinate. Did anyone have this issue when newly in menopause? Being awaken at night to…
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Normal to feel so weak after lap robotic hysterectomy?
I had a robotic laparascopic hysterectomy with laparascopic inspection for visible metastases about ten days ago. No mets found (and CT of chest, abdomen, and pelvis before surgery also showed no mets). The tumor is mixed serous/clear cell, and was graded 1a. One sentinal node had isolated tumor cells only, the other was…
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Mixed Response Taxol & Avastin
I have been on Taxol and Avastin for the last three months. To refresh people's memories I am Stage IVB garden variety endometrial cancer. I have had three different chemo treatments, a hysterectomy, and two clinical trials, the last one was an immunotherapy trial. I won't be able to particpate in another immunotherapy…
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Scanxiety article from Cure Magazine
Just noted this new article in Cure magazine. As we all know it is so common that we experience this due to fear of reoccurrence or new type of cancer. https://www.curetoday.com/community/doris-cardwell/2018/10/scanxiety-fear-of-recurrence-whatever-you-call-it-its-real I hope the link works! Lori
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dilator and Eliqus
Any of you on Eliquis and also using dilator - also had Bracky radiation? Doctor has just told me to use - and I am getting bleeding. Not sure I want to do this if always worrying about excess bleeding. Have messages in for my hematologist and rads doc as well as Gyn. But really would like to hear from any of you in same…
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Should I be concerned?
I had an ultrasound a year ago, and a more recent one due to ongoing 'constant' mild period type pains, and intermittent sharp pains both lower left/right pelvic, abdominal bloating and nausea. After researching I am a little worried that my doctor doesn't think there is anything that requires additional tests, am I right…
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Nausea from radiation
My Mom started radiation yesterday. A couple of hours after radiation, she suddenly felt very weak and feeling a bit of nausea even 24 hrs after. She had the second radiation today but could'nt meet the doctor as the doctor was busy elsewhere and Mom did want want to wait around too long. Anyone experience nausea due to…
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Waiting on biopsy results
Hi, everyone. I'm 53 and hadn't had a period in 2.5 years. Started bleeding last Monday--thought I had a UTI; bleeding got much heavier on Wednesday, so I went to the ER thinking it was a kidney stone. They did a no contrast CT which showed no masses anywhere, then determined I was bleeding vaginalky. Saw my gun on Friday.…
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Afraid to hope
I am early in this process. I have my second opinion appointment at Hopkins on Monday. After that, the hysterectomy will be scheduled. The first Gyn oncologist I met with earlier this week seemed confident that I would only need surgery (praying this is the case). The logical side of my brain says I should just focus on…
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Anyone going to the race this year?
Hey ladies! Is anyone going to the National Race to End Women's Cancer this year? It is in DC on Sunday, November 4 (which is daylight savings time BTW) I couldn't go last year but have already bought my airline ticket and hotel room. Here is the link: https://endwomenscancer.org/
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Treatment Update - Radiation
After 4 cycles of carbo/taxol, now my mother has been prescribed 25 doses of external radiation (5 each week, for 5 weeks) and 3 doses of internal radiation (one each week). So total 8 weeks. She has been asked - 1) Eat Bland Food 2) No milk/dairy products except curd/yogurt 3) 3 litres of water/fluid daily I have read…
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Is it possible to see an individual's profile, I thought i read that you press their photo! Unfortun
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Brachytherapy (radiation)
Helloe everyone. I am noe wto the group and was diagnosed with uterine cancer about 8 weeks ago. I had surgery, with a total hysterectomy, about a month ago. I was stage 1c, Grade 2. The cancer went 60% into the lining, but fortunately all lymph node biopsies came back negative. I need to have 3 treatments of brachytherapy…
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Hormone Replacement Therapy
I have to have a full hysterectomy in the next week or two. I’m 37 and not close to menopause. My doctor has told me that I’ll to begin hormone replacement therapy, both to ease symptoms and to replace what I will no longer produce. Does anyone have any experience with this? thank you!
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New TV Show, Old Memories
Anybody watching the new hospital drama called New Amsterdam? Tonight an oncologist who likes to fundraise and travel for the hospital was forced to come home and see patients. In her office was a woman who had a random few strands of hair left, who had to be told her chemo wasn't working and they were going to start…