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My mom just diagnosed with Stage 4 UPSC I'm so distraught.
My mom was just diagnosed with Stage 4 serous endometrial cancer. She is a otherwise very healthy and lively 67 year old. So we are all in shock because she never gets sick . She had some post menopausal spotting a few months ago after an ultrasound done they found ascites. They thought it was ovarian cancer but her…
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UPSC long-term survivors
Hello everyone, I discovered this forum while helping a close friend to research her recent UPSC diagnosis. A couple of days ago she had her surgical staging and was diagnosed Stage IV. There is a lot of helpful information on these boards, but I am curious to know whether anyone can point me to any examples of long-term…
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Keytruda, So Far
I had my third Keytruda infusion last week and the doctor (main oncologist) confirmed what we already knew: the tumor has indeed shrunk. He didn't even do an exam, just said "Last time you were in here you kept shifting in your seat because you couldn't get comfortable. Today, your eyes are clear and you're sitting…
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MD Anderson vs. Mayo Clinic
I live 5 hours from Mayo and I would have to fly to MD Anderson but I do not care so much about the commute as I do about getting the right doctor and best gyn/onc Dept. for UPSC . I am stage 3 and just had surgery for a recurrance, the doc was not sure if it was an isolated port site metastasis or systemic. My gyn/onc…
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Financial Toxicity of Cancer on patients
“(Reuters Health) - U.S. doctors must realize that many cancer patients battle “financial toxicity” along with their disease, researchers say. The costs associated with treatment, even for those with insurance, often create hardship and distress, according to a new study in the journal Cancer. “ This article talks about…
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For the love of mustard!
I have had cancer for exactly 2 minutes. Seriously, I graduated nursing school on Apr 25th, May 9th diagnosed with uterine cancer, June 7th hysterectomy and stage 3 carcinosarcoma, then July 6th Mets to stage 4. I haven't even had a chance to deal with the first bit of news before I get slammed with new info. I started…
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Negative biopsy but still not reassured
Hi everyone, I am post menopausal x over 4 years now but have been bleeding pretty steadily since the end of May. I had a TVUS June 5 and a ”fibroid” was seen in a precarious place in my uterus. My lining was not thick enough to alert my doctor who agreed with me to just watch and monitor, however, I kept bleeding, even…
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What Type of Ongoing Treatment
It has been 2.5 years since I was diagnosed with Metastasized Uterine Cancer. Surgery, Radiation, Chemo, Letrozole, and now Avastin. My question is this, what are some medications each ofyou have been on (such as Letrozole) that you have been given, side effects, how long taken, and what you are currently on. After Chemo…
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Kvdyson?
Hi! Anyone heard from Kvdyson - Kim? I have not been on board for a while and when reviewing the roll call of old & new members, Kvdyson came to mind. She has not been online since February. I’ll update my status in roll call thread soon, thanks for srarting Eldri and I agree with DeMarus on updating your About Me profile.…
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Book: "I'm Dead, Now What?"
I'm also an child, divorced, no kids, live alone, and closest family is 2+ hrs away, so I do worry about slippage in the gears if I were to...ahem...fall into a ditch sometime soon. Or become incapacitated. Eldri's post reminded me of that, and of a book I got for $10 on Amazon. The title, "I'm Dead, Now What" appealed to…
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Stage 1a endometrioid
I was grade 2 on D&C but the final pathology report mentions grade 1 Can anybody explain the downgrade? Believe me, I am not complaining. Which kind of tests will I have for a follow-up? Could I request a Cat Scan for my peace of mind? If yes, is it a CT from the whole body? Thank you for your help
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Christmas in July
My dear sisters, I got my NED ,for now, on July 3 and while trying to think of a way to pay it forward, remembered the young lad, 2 years old ,who was undergoing radiation every day at the same time I was there. His tiny cries of,"I want to go home." brought me to tears every day. His parents were staying at the Ronald…
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Has anybody heard from Kaleena (Kathy)
I see she hasn't been on the board since May. I know she was going through a lot of things but hoping all is ok!! Love, Eldri
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Waiting for biopsy, have a questions...
Hi, first I would like to thank all of you! I joined this group after days of reading discussion threads, everyone is so supportive, brave and honest- it made me feel safe to join. As I am waiting for my biopsy and I do not have any answers, I have no intention of saying anything to my family and friends. So again,…
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bowel issues and colostomy
Good day to everyone. Anyone experienced bowel issues or a recurrent perhaps in the bowels requiring a colostomy? My niece is a 4b and she is having some bowel problems. Her gyn-onc ahs already suggested another round of chemo but putting a colostomy to get her nutrition better is being floated. I wonder whether anyone has…
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Dear ladies
I have some great news; the pathology of my cancer is Endometrioid Adenocarcinoma, stage 1A. I am very happy! Follow up every 4 months in the beginning, but the 1st visit is in 3 weeks. Thank you to everyone of you who prayed for me and shared your sentiments. It was a lifesaver during such a trial period. I will be…
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Update from IV-ville: Radiation WORKS
I'm super tired but wanted to check in and thank you again for your many kind messages. Unless I'm in the hospital or my computer's busted, I do check in every day - usually several times a day - but haven't had the energy to post just yet. Like Donna Faye and, I imagine, many others, I always check our regulars for the…
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Treatment Plan Updates
So finally met the doctor who ordered a chemo and radiation for my mom. 4 cycles of Paclitaxel (Taxol is one of the brands I think) and Carboplatin. Post that 6 weeks of daily 10-15 min of radiation. From reading these forums, the chemo looked standard, except most times I read about 6 cycles instead of the 4 cycles…
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WBC Count as marker
My mother had a RadicalHysterectomy recently. For some years before this, her WBC count was shooting up and the doctors could never really figure out what that pointed to. In the last 3-4 years it went from around 6000-7000 to about 14000 a couple of months back. After the surgery, within a month I got her to do the tests…
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Clinical vs Immunohistochemistry Report
After my mom's surgery, the surgical pathology/clinical report showed that all the 16 lymph nodes taken out of left and right pelvic side were free of tumor. However when a later review was done with a detailed immunohitochemistry report, the report states that one of the lymph nodes was found with the carcinoma - "Left…
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Going to surgery
in a few hours and feeling so anxious and scared. I had what I think is a panic attack while taking a shower a couple hours back. I have never had an attack before, though I do suffer from generalized anxiety disorder. It felt like a desperate feeling of impending terror and I could not breathe completely. I have been…
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Herceptin and serous endometrial cancer
My wife had some spotting (Nov. 2017), D&C showed UPSC, after hysterectomy, determined to be stage 3A with overies involved, 6 cycles of taxol and carboplatin(very painful bone pain), just finished 27 pelvic radiation treatments last week. So she just had her first treatment of Herceptin.....so my only thought is....have…
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Good report
Just returned from my appointment that was scheduled as a biopsy for a lesion seen 6 weeks ago. The doc had decided to wait 6 weeks and see what the rads might do. Evidently the rads did their job,so NED today and now will begin the 3 mos. checks as normal for post cancer. Always a relief when one gets the NED gift. Hope…
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Stage 1 Grade 3 Serous Endometrial Carcinoma
I had a hysterectomy 3 weeks ago and on my post surgery follow up was told by my surgeon I need chemo and radiation since mine is serous , I’m not sure what to do my sister in law is a nurse and says I should get another opinion . I have a appt tomorrow to see the oncologist about chemo.
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Maybe a bit of comfort
My pastor asked me to share last week at our service what has helped me through the past couple years. Here‘s What I shared: Becoming a Cancer Survivor “It is the name of Jesus which, through faith in him, has brought back the strength of this one whom you see here…that has restored this one to health” Acts 3:16 Two years…
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Pain and Poor Outlook But I will fight for her! - Serous Carcinoma
Hello Everyone. I have been quietly reading for a few months now while my mom undergoes treatment for UPSC. My 59 year old mother was diagnosed June 2017 and has been undergoing treatments since she got the news. * May postmenopausal bleeding lead her OB to do some testing. No other symptoms * Biopsy and Diagnosed with…