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Uterine/Endometrial Cancer

Archives for April 2018

Terrible Hip Pain Associated with Endometrial Cancer
I was Dxed with Endometrial Cancer last month. Extremely heavy bleeding for over 2 yrs. I didn't have health insurance and went to a free clinic. I'd had Pap Tests, blood work, my heavy bleeding was written off as being 47 yrs old and going thru Menopause. My hip and back pain, as well as other health issues, got to a…
New, Stage 3, lymph nodes positive, treatment in process
Hi - new to this forum. I was diagnosed with Stage 1 uterine cancer. Had the hysterectomy and results showed lymph node invovlement and cancer was stage 3 (90% through uterine wall). Have started radiation and chemo. It is kicking my butt. Scared, focused on keeping a positive attitude and struggling. Looking for info on…
New Here and Biopsy Tomorrow
hello everyone, I’m new here, and have endometrial biopsy tomorrow I had an ultrasound and the results are my endometrial stripe is too thick I don’t have the exact measurement as I haven’t seen the doctor since the ultrasound and was called to schedule biopsy Im 51 yrs old. Over 22 yrs ago I had mild endometriosis,…
Stage IV Mastasized to Lungs-Newly Diaganosed - Help
Stage IV Mastasized to Lungs-Newly Diaganosed
Hi Everyone, I am brand new to this board. I was diagnosed in 2015 with Endometrial Carcinoma FIGO II,G2, treated with TAH-BSO. On April 26 I was given my results and am now FIGO Stage IV since it has mastasized to my right upper lung lobe. I have been told by my Radiation Oncologist I will be receiving 5 consecutive…
Stump cancer
Has anyone been diagnosed with Stump cancer? They are biopsy in my uterus for that
derMaus Update from the Stage IV Club
I got my PET scan results today and, while not catastrophic, they certainly weren't what I was hoping for. Last year I developed mets to the retroperitoneal lymph nodes which were diminished, but not eliminated, by external radiation. In January I had had 5 rounds CyberKnife stereotactic radiation which seemed to have…
Endometrial Cancer stage 4
Hello everyone, I am fairly new to this forum, and I just want to tell you all how extremely brave and amazing each and everyone of you is! Thank you all for showing so much support to one another and sharing your stories and experiences! Today, I would like to share mine... Last month, my older sister was diagnosed with…
I’m a little terrified.
Hello there - New here! I’m a 28 y/o, no kids. However, I was diagnosed (via transvaginal ultrasound) with two medium sized fibroids. Alongside an abnormal friend (mass) in which they wish to do a hysteroscopy, D&C, and a biopsy on the little guy. My surgery date is set for May 16th. And I am a little terrified. Not…
Very good news
I went to my MMMT Uterine Cancer Dr. on Monday and they said I didn't have to see them for 6 months. I stopped chemo in Oct. of 2014 so I feel very positive. I am still taking shots and chemo pills for my breast cancer but I feel OK most of the time.
Cheese Update
Hi Ladies: Got some good news today. Apparently the Megace is continuing to hold my metastatic tumors at bay according to my CT scan today. And the incredibly painful renal stent has solved my kidney problem. My surgeon really thinks the kidney problem is a result of the radiation so I’m going to expedite my appointment…
Cancer and work
Well since i couldnt get both of my cancer spots talen care of at the same time I decided to tell my boss and take a few days off for my second spot. I let her know that this skin cancer is not a big deal like my last situation ( uterine cancer). Any ways i ended up telling one other coworker about the cancer. Told her…
Received message from It Happened To Me (Jeanette)
I had messaged It Happened to Me (Jeanette) and she said she's really doing good. She's four years NED and is patiently waiting for that five-year mark. I was looking at an old thread and she, along with a lot of ladies who are no longer with us, had responded. It always makes me wonder, especially when the woman was very…
Serous Carcinoma
I was just diagnosed with Endometrial cancer 10 days ago. It hit me like a ton of bricks. Just did a CT scan and results are not in yet. Getting ready for hysterectomy on May 2. I do not know the stage yet. So I am in that scary beginning stage dealing with this emotionally. Just joined to benefit from those who may have…
Stage 2, oops, no, Stage 4
I was diagnosed with Grade 1, Stage 2 endometrioid adenocarcinoma following a total hysterectomy and lymphadenectomy two months ago today. My tubes, ovaries, and lymph nodes were negative for cancer. LVSI was suspected but not confirmed. After asking repeatedly for a CT scan, I finally had one a couple of weeks ago and it…
First Chemo Treatment Experience
Hi Ladies, I wished I had better news about my first chemo treatment I experienced today. My plan is Carbo and Taxol x6. I was to get Taxol before Carbo, and I got lots of benadryl which gave me some muscle pain in my IV arm, I don't have a port. The nurse gave me a warm compress and it felt better but also the benadryl…
MMMT Stage IV
Hello all - My Mom was very recently diagnosed with MMMT - malignant mixed Müllerian tumor. At first they thought it was localized to her uterus, and were confident it was Stage I or II, but her CT scan shows a mass in her lung as well, making it Stage IV. She's having a total hysterectomy next week, and chmo following. We…
Foundation One-Innsurance Denial
So I just found out that Aetna denied the cost ($5,000) of my Foundation One testing. I intend to appeal just to jerk them around and actually may take it to the state department of insurance. Has anyone filed an appeal and can share any documentation you have found to substantiate that this has pretty much become standard…
Post Menopausal Bleeding, 2 month wait for GYN referral
Hi all, I have been >10 years without a period due to Mirena IUD. After it was removed more than a year ago, she ran hormone levels that showed I was firmly post menopausal. In early March, I had a heavy "period". I told my primary care doctor this on Monday. She said that postmenopausal bleeding can be a symptom of…
Metformin Info.
I had a follow-up at my GYN/onc.'s office on Monday. I didn't get to see the doctor but was seen by his nurse practitioner. I had decided to ask what the minimum dose of Metformin should be to help prevent a recurrence of my uterine cancer, as I'm only on 500 mg. a day and have read that some people on here are taking a…
Enlarged Lymph Nodes 9 years post treatment
Hello all.... I haven't been here for a long time. After Linda passed it was hard to come here. I find myself here after learning last week that I have enlarged external iliac and inguinal lymph nodes. I finished treatment in June 2009 for UPSC. I having been having hip pain for about a year. Did some PT that gave me…
Was diagnosed on Friday the 13th
I had a CT scan Yesterday. I was told it was high grade but not too sure what it means. I am seeing my oncologist for the first time next Monday. I am lucky to be in Australia where the treatment will be free. I can see there is a new vocabulary that I will learn as I go along. I was told that they will operate very soon,…
Medical Oncologist visit
So after waiting for two weeks I get to meet the medical onc...very nice woman. My gyn/onc sent me there for chemo and to another for vaginal cuff radiation. Grade 3 stage 1a UPSC. Mentally I am ready and anxious to get this going and to get on with my life....she tells me that she is bringing this to the tumor review…
Do you believe in signs?
Back on March 7th, Lou Ann posted a picture of a little sock monkey on my Facebook page - no message; just this picture. I messaged her and asked her what it meant, but she never answered me. As a matter-of-fact, I never heard directly from her again, just her son. Well, yesterday, on my Facebook feed a thing came up…
CT scan versus PET scan-which is best?
My insurance company just refused my medical oncologist's request for my PET scan but approved a contrasting CT. I was diag w/ MMMT as well as colon cancer Oct 2017. Had pre surg contrasting CT done which ended up providing inaccurate info by indicating the uterine cancer was confined to uterus which turned out to not be…
Had my biopsy
I had my biopsy on Tuesday, it was not a pleasant experience, but it is done. The anesthesiologist would not do a conscious sedation, he said it was too risky for me so I had to choose either general anesthesia or spinal block. I chose general, mostly to get over my fear of it. Turns out I would have had to have it in the…
Another question
I saw on my follow up report that the radiation is of the vaginal cuff...HDR Anyone can give a guess on how many treatments that may take....do they do that everyday? I know I am jumping ahead but I am the type that does not like Surprise! lol Thank you for all your help! Gail
New drug combo for uterine serous carcinoma
I came across this today, thought some of you might be interested: New drug combo improves survival of women with rare uterine cancer
Hysterectomy done...next chemo
Had my post op visit and all looks great. So Friday I am seeing the Chemo oncologist. Any advise as to what I should expect will happen or what I should ask? UPSC stage 1a but need chemo and rad Hope everyone is doing well Everyday is such a learning experience. Thank you Gail
GIVEN ONE STAGE BUT SURGICAL STAGE IS DIFFERENT?>
HELLO ALL, I AM NEW HERE. I WAS RECENTLY DIAGNOSED WITH STAGE 1A ENDOMETRIAL ADENOCARCINOMA AND MY HYSTERECTOMY IS SCHEDULED FOR NEXT MONTH. I WAS WONDERING IF ANYONE WAS GIVING A STAGE INITALLY AND THEN GIVEN A DIFFERENT STAGE AFTER THE SURGICAL PATHOLOGY CAME BACK. MY ONCOLOGIST DID MENTION I COULD BE STAGE 2 DUE TO…

Uterine/Endometrial Cancer

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