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Update on hormone therapy
I am just checking in to report that the therapy is still holding the cancer at bay, This time around, I am only taking Tamoxifen, and we have seen no channge in 4 months. I am surprised and ecstatic! I have had troubles with my leg, which turns out to be lymphedema caused by surgery, and another cyst and henia in the…
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Good news from "Across the Pond"
Hi Ladies! I am literallly in Germany as I am posting this. I have had a great week this time. First I was advised by my oncologist that my lab tests came back good, and my cancer marker was down 50%. Yay!!! They warned me that there may be no visible shrinkage on the MRI (they do a new one before every embolization)…
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Finished Treatment
Well I'm all done with UPSC treatment, CA125 normal, but it's always been normal. Waiting for PET CT in the next week or two. Last November, during treatment, when I went to the ER for intestinal issues, a couple of nodules where found in my lung, along with a PE. Hopefully the PE is gone and the nodules are just nodules.…
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Just another update
i finished 18 radiation treatments to the tumor between my spine and Vena Cava. It seems like everything went well it is causing a lot of nausea and fatigue but otherwise not bad. Good news is that the radiologist reaaly felt that the pain I had in my SI joint of my right hip was tumor relate. He feels that the tumor is…
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Questions I should be asking
I've been reading a lot of threads and there is so much information and knowledge. Currently NED, diagnosed with adenocarcinoma 111C2. I went for my first oncology appt in March, I did my labs oncologist said everything looked great, well before that I did see my doctor that did the brachytherapy and a few days later I…
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how long did you keep your port in.
Just wondering how long every one kept their port in after treatment. Thanks love, Janae
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7 Years NED UPSC
Annual visit went well. Another year cancer free. God is good
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New here
Hello. My name is Kathy. I was dx. With Uterine cancer in Sept. 2014. Had no symptoms- or so I thought. Went to a walk in medical for what I thought was a UTI. The doctor thought I might have appendicitis and sent me for CT and the road to finding the cancer began. Thank Hod she took the time. I had complete hysterectomy…
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I don't know if I'm allowed to post, waiting for biopsy and scared
a little info: my name is Julie and I'm almost 40 years old. 3 beautiful daughters, all cesarean, happily newlywed in October 2016. in May of 2015, I went to my gyn for standard pap/pelvic. Came back abnormal so I underwent a colposcopy and biopsy of the cervix after finding atypical glandular cells. Got phone call a few…
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Decision
As you know I recently found out I have a recurrence (I was originally diagnosed with carcinosarcoma and serous cancer in Nov. 2015). I had my appointment with a gyn onc at Dana Farber (the same one who did my hysterectomy). I brought with me the results of the PET scan I had. The PET scan bore out what the previous CT…
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Results from Surgery
I had my surgery on 4/6. I was in the hospital 6 days and am just finally now feeling like returning to the land of the living and writing about what happened. My GYN/onc. got in there and immediately checked the type of cancer I had with a biopsy, and sure enough, it was a return of my UPSC which I had 7 years ago. It was…
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new...how do you deal with worry
Hi.I was diagnosed with endometrial cancer March 23 and have my first appointment with my gynocological oncologist this Wed .April 19.It seems like an awfully long wait.My regular gyn told me it was well differentiated Grade 1 which she said was good but I am scared and don't want anymore test.What happens the first time…
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And yet another pathology report
So... some of you may remember than when I was trying to make a decision regarding radiation, I got a third opinion from a panel who also did a second opinion on my pathology. That pathologist was not totally onboard with the original carcinosarcoma diagnosis and categorized it as serous carcinoma. Well, after my…
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Pelvic Floor Physical Therapy
So, dear sisters, I want to open a new topic for discussion. After religiously using the vaginal dilator (I was using the cool water cones) since October after my last radiation therapy, I felt I wasn't making any progress and actually was feeling some pain. So I decided to consult with a nurse practioner I found in a web…
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Started radiation
My insurance reversed their denial so I started pelvic radiation! I have had seven treatments and now I turn to you gals to ask..... did anyone have a terrible metallic taste in your mouth that will not go away? What about a feeling of pulling below the navel, especially upon standing? Doctor said it could be muscle…
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Inspirational song
On this sunny but cool spring morning I want to share this video. Marian had Stage 3 breast cancer and was treated about the same time as me. The banjo player in the band is my friend and my PCP Mindy. Marian wrote this song "Red Devil" about her experience with chemotherapy. She hopes this video is shared with friends…
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My CT showed thickening, vaginal cuff. Has anyone had this?
I'm new here and scared. I had endometrial cancer, stage 1b, grade 3 in the fall of 2013. I had brachytherapy. My CA-125 went up 14 points so my oncologist ordered a CT scan. It showed "increased asymmetric soft tissue density at the left vaginal cuff concerning for possible local recurrence" Have any of you had a…
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Germany changes course...
Hi Ladies! Well, I am just home from my third trip to Germany (yes, Chris and I are at the same clinic, have the same doctors...). Only this time, for me, everything changed almost as soon as I got off the plane. Dr. Herzog decided that my treatment plan needed to switch to transarterial chemoembolization to be done by Dr.…
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Surgery completed - node removed
First - thank you ladies for all your words of encouragement and support the laSt few days. This means more than I can adequately express with mere words. Surgery wwas done and this afternoon about 1:30 and the para aortic retroperitoneal lymph node was successfully removed!! It will now be sent off for pathology and to…
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Can you help me?
Currently I have carboplatin and taxol to reduce tumors. My oncologist said it's the last chance to have surgery. I wanted to know who had carboplatin and taxol with good result to reduce endometrial adenocarcinoma? In case the surgery is impossible can you tell me what treatment is possible to prevent cancer from growing…
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Bowel problems
Well after talking to my oncologist about my continuing constipation, I finally convinced him that I should see a gastroenterologist to be on the safe side and also for help to resolve some of my problem. So I saw one and he said we should do a colonoscopy. I had one last Friday, but it was incomplete. The doctor could…
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GYN/onc. appointment today
I had my GYN/onc. appointment today and got scheduled for surgery this Thursday. The PET scan showed a 5 x 6 cm. mass on one side of the ascending colon and a 2 x 3 cm. mass on the other side of it. My GYN/onc. really isn't sure what it is, but he's fairly certain it's cancer because of the rate at which it grew and…
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Speaking of hope
i have been saying lately that there is always hope. I proved that to myself today. Ok, I have stage IV metistatic Serous Papillary Endometrial Andocarcinoma cancer and have been on this roller coaster for over four and a half years now. Two weeks ago at my doctor's appointment, my oncologist tells me that the…
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So many questions
Boy, my thoughts are all over the place at this point! As many of you know I've recently been diagnosed with a recurrence. Trying to sort things through in my mind. Wondering about my initial diagnosis and treatment. Based on findings from surgery I was diagnosed with Stage 1A carcinosarcoma and papillary serous (5.5 cm…
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2nd Whole Body Hyperthermia
Hallo! Well, I had my second WBH treatment on Friday. All went well. One possible side effect they tell you about is a mild sunburn-like rash. Some other patients had told me about this, saying that it usually didn't occur the first time, but often did the second. Sure enough, when I woke up this time, I was still lying on…
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Mass Found Needing Immediate Surgery (6.5 yr. survivor)
I did a hemoccult test a few weeks ago, and my doctor's office called me to tell me that 1 of the 3 smears I'd done showed bleeding. They set me up for a colonoscopy and an endoscopy a week ago Wed. No cancer was found inside the areas the gastroenterologist checked. However, he told me he'd found something he'd never seen…
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Reflection on the year.
One year ago this week, I was in the doctors office getting a biopsy. I cant remember the day but it wasnt long after my biopsy, maybe even a few days, that I got a phone call telling me I had cancer and that I needed to get into see the doctor as soon as possible. I didnt want to have to tell my boss yet, so i even tried…