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Uterine/Endometrial Cancer

Archives for September 2015

Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
Grade 3 not 2 as originally thought and LVI noted on report
Hello ladies, my sister just sent me her path reports becuase I keep asking her quetions that she really didnt have the asnwers to. Her Dr originally had said it was grade 2 when we were at her appointment pre surgery. But since her CT scan came back with mets 4 months after surgery, Im trying to know more about her cancer…
A candid answer about prognosis
Hello, so I've posted my sister's diagnosis on several posts here. In summary, she was diagnosed with Uterine Cancer. Was staged 1A grade 2 after surgery. Had radiation just as a precaution becuase of the grade 2 cancer. Her CT scan prior to surgery was negative for pelvis, abdomen and lungs. 4 months after surgery, she…
Postponing Chemo #6?
Is it bad if you postpone the "last" chemo? My headache got worse and I believe my blood counts are already very low. I won't get neulasta,I rather have another transfusion. What do you think sisters? I'm going to call my doctor to see, my chemo #6 should be on October 8.
Let's talk about radiation
I see a lot of great questions, concerns, information on it buried in other threads and thought it would be good to start a conversation on it. I was diagnosed originally with Stage IIIC UPSC in April 2013. My cancer continues to be active and progressive with mets found shortly after I finished frontline chemo and…
curcumin suppliments
Is anyone taking curcumin suppliments? I am wondering which brand to buy and how much dosage daily? There are a lot of different strengths ones in the market. If you have any info or advice please share. Thankyou.
Pain Meds While going through Chemo
Hello, I just want to say that all of you have been such great help in answering my questions thus far and I've been passing along all information to my sister who has just started chemo for Metastic Uternine Cancer. So yes, Im here to ask more questions!! Sorry! Prior to being diagnosed with Stage 1B grade 2 endometrial…
Starting Chemo on Thursday -- Any Advice?
Round 1 of 6 begins on Thursday I read everything I could on what to expect but what am I not ready for? Experienced advice welcome. Chemo protocol is taxol/carbo and I have stage IIIC I also have a notoriously delicate stomach, dry skin and mouth (from removed saliva glands) and am addicted to Diet Coke, though I've tried…
A question about Curcumin use before treatment other therapies
hi, thanks in advance of your answers. Curcumin is said to be a great supplement. Is it better to take it before or after chemo and other therapies? Does Curcumin help to reduce the blood supply to the tumor or cancer? If so would u not want to take it until after therapy is complete so the treatments can reach the areas…
CA 125 Progression
I have a question regarding CA125 test and everyone's experiences with it. In October 2014, my CA125 prior to surgery was 28.2. I was diagnosed with endometrial adenocarcinoma Stage 1a Grade 2. I had surgery but no other treatment. In February 2015, my CA125 was 7.4. In June 2015, my CA125 was 7.6. In June, when I saw my…
Post Hysterectomy Spotting
I had my radical hysterectomy about 2 months ago. I'm currently on carbo/taxil. Lately, I have some pink vaginal spotting on the toilet paper. No discharge. No pain. This seems to occur about 2 days after my weekly chemo treatments. Anyone else have this?
Staging after Metastasis
Hello, My sister is about to start chemo for reoccurance of endometrial cancer. It has metastisized to other areas, there are about 6 small tumors found 4 months after surgery and radiation. They never re-staged her, which is something I thought that they'd do. Ive been looking on line at treatment and statistics for her…
A little bump in the road
My rollor coaster ride took a deep dip three weeks ago, but I am finally headed uo again.. Three weeks ago I started with severe nausia and vomiting. Not able to eat or dink anything. New meds from the Dr. nothing helped. Hydration Friday th Dr. sent me to the emergency room. Ct Scan. bowel blockage!. GI tube and more…
Update on my sister, had some questions
Hi, I had originally posted about my sister's endo cancer coming back. In summary, she was diagonosed with uterine cancer, had the robotic surgery, staged 1A or 1B (not quite sure) but what they said was that it was contained to the uterus with less than 50 percent into the wall of uterus. All nodes tested were negatvie…
It's Back
CT scan Sunday, results Wednesday. Says it all really. A pelvic mass on the left side. Arranging MRI scan, originally booked for 29/09 but I will be on holiday. Consultant 06/10. They trying to arrnage one for this weekend. If it's one tumour they plan to remove it, if it's multi then my options are limited. I have been…
Clear cell vs serous cell
Can I ask how many of you lovely ladies are clear cell, serous cell or a mix of both, and which grade? I had a CT scan today and when I got home started reading several research papers about the odds of recurrence. It seems clear cell is most likely to be found at an early stage where serous is 3/4. It may make it a bit…
update after the transfusion
On Friday instead of chemo 5 I got transfusion...... Most of my levels were half of the minimum. Chemo is postponed for next week. I was so upset and I cried. What is your experience? Can you comfort me a bit, I need it... Thanks
Seatown
In case you ladies have not heard, Carole"Seatown"Seaton passed away shortly after noon today. Services are pending. Best, Debra(Jo) P.S. Thank you Alexandria(from the Ovarian board) for posting the information!
September is Gynecologic Cancer Awareness Month
Get your colors for the different gynecological cancers going. Purple is for all cancer but it also states on the FWC.org that it is for all gynecological cancers. Peach is for Uterine Cancer. Teal is Ovarian. Cervical is Teal/White. There is a lot of new information out there for women to make sure they know what the…
Just an update...
Hi Ladies! I hav been missing in action a bit lately, but Molli asked me to check in so here I am! (Thanks Molli, you're a doll!) It has been a busy, busy summer with short trips and visits to grandchildren (we have 7) and dealing with my husband's Dad, who we placed in Hospice this last weekend. He is 92 and his aortic…
Update on my clinical trial - good news!
After two cycle which consist of three treatments each; a platelet transfusion and two blood transfusions and lots of sleep we met with the team to review scans from last week and see if I could continue with the trial. The scans revealed the met resting on my heart now has "dead" tissue in it and two of my other mets have…
Drop Carole "Seatown" Seaton a note
Everyone, Carole "Seatown" on our sister site , the Ovarian Board has entered inhome(?) Hospice yesterday. This our chance to visit and let her know we are thinking about her as her journey continues. She is at Caringbridges.org under Carole Towne Seaton. She said in her blog that she may not be able to post here or after…
CA125 and Uric Acid
Hi ladies Has anyone heard if a connection between raised CA125 levels and Uric acid? LA
New
I have been diagnosis with endometrial cancer stage3b grade3 after complete hysterectmy. I am suppose to start radition for 5 wks then chemo. I have been on internet reading but got to depressing. Found this discussion group and decided to learn what others know and been thru. I am 75 yrs old and thought I was in good…
Checking in
I just want to come by and say hello to you all. I have not been writing on here for awhile and feel guilty about not sharing what is going on with me. I want to help others that might be going through my issues. I am fighting the vaginal cuff beast. Is anyone else going through this too? I see a lot of familiar names and…
Shocking news
Hello. My sister was diagnosed at the begining of this year with Uterine cancer. Prior to surgery, her CT scans were negative for masses anywhere else. She had the surgery robotically, she was staged 1A I believe, or maybe it was 1B. The cancer was contained to uterus, into the wall, but less than 50 percent. Nodes were…
Annabella Rose
Annabella, how are you? We've all been intrigued by you question, but we haven't heard anything from you. I hope you are in a happier state of mind. We all can become overwhelmed by our personal experiences and you have more than most on your plate. Whatever you decide about treatment, your life will go on. What are you…
All The Single Ladies
This is kind of a weird question/topic but... as a single woman, divorced for many years, I have always been very independent and self-sufficient. As I continue my cancer journey, it has become apparent that I cannot do everything on my own anymore and I do need to ask for help. I have a great network of friends and family…
Ladies going through chemo - how are you doing? Or those just starting or curious
Hi ladies! I know Teddi Bear, Editgirl and I are in active treatment. I thought it would be good to check in, see how you all are doing, share ideas, information etc. i am in a clinical trial consisting of Aldoxorubicin and Gemzar infusion on day 1, gemzar on day 8, neulasta shot on day 9 and start all over again on Day 22…
So (Not) Nice to Meet You
Hello to you all Seems like this club is the obvious example of Groucho Marx's saying about not wanting to belong to a club that will accept me as a member. I wish the universe would accept my resignation, but as that is not going to happen, I will introduce myself. I'm Maddy, 53, diagnosed with uterine cancer in July.…

Uterine/Endometrial Cancer

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