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Ca 125 raised, again
Went to the doctor today. My ca 125went from 344 to 1140 !!!!!!!! Because I am feeling good and have no symptoms, and the CAT scan 6 weeks was okay I will remain in observation. Hooray. I will have a repeat lab and CAT scan the middle of January. Because it will more than 6 months since my last chemo I can go back on…
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Anyone battled with Medicare to pay for CA 125 testing ?
Since it has been a reliable early warning indicator, my doc has tested me regularly the last few years. I went on medicare 6-1 and have now noticed medicare is declining to pay for CA 125 tests. Since lab was not billing me, I just noticed as I started to gather year end receipts,etc.My old insurer only paid thenm $11 of…
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questions about discharge
After my dx of stage 2 breast cancer in 2005 and treatment with chemo and rads, I took tamoxifen for 3 years. I then took evista for the remaining 2 years. I am now 58 yrs old and experiencing post menopausal bleeding. I have had this for almost a year. My gyn suggested it was vaginal atrophy, but on doing an internal last…
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SUSAFINA---THANK YOU
Oh My Great God Susafina you hit me right on the head. Yes I am devastated and overwhelm with fear, but I am beginning to accept and calm down. You post has made a tremendous difference. Thank you and may our Great God protect you and grant you good health. june
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TIGERSDOBOUNCE, DOUBLE WHAMMY, RO10, GRACIEGOLD AOUT MYMOM-Its not lymphoma-Its acute leukemia HELP
Its two years since my surgery for endo cancer and I still do not feel very well still haveing roving pains and in stomach. Anyway, my daughter is diagnosed with acute Leukemia. Please give me some feed back and let me know your thoughts on this dreaded disease. she is waiting for a bone marrow results and then we will set…
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Smoking and Chermotherapy
I start chemo treatments on Tue. 11/29 and heard smoking during treatments is bad. I usually smoke about a pack a day but have cut way back to 2-3 cigarettes a day. Did anyone smoke during their treatments? From what I read, smoking interferes with the effectivenss of chemo. Hope that 2 or 3 cigarettes a day won't do too…
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Do ovaries really have to go?
I'm having robotic davinci Tuesday at Sloan-Kettering. My diagnosis is complex atypia with hyperplasia bordering on well-differentiated adenocarcinoma. I'm a figurative sculptor and it's been difficult for me to accept my cervix which I'm rather fond of will be gone but I finally can face it. Now I'm working on losing my…
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MY SWEET DAUGHTER JUST HAD PRELIMINARY DIAG OF LYMPHOMA (can the preliminary be wrong, please help)
Hi Guys: Can you believe this my 45 year old daughter was having pains in her legs and back since September. She was haveing regular physio and did not help. Last Friday she was running a fever and went to ER. Cat Scan showed nothing but the MRI showed lesions on the liver, biopsy showed preliminary lymphoma. I am totally…
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Surgery is over - what now?
Hi All I had my laproscopic total hysterectomy on 11/21. I stood at the hospital overnight and am home recuperating. The doctor said the cancer was contained and it was very early stages of uterine cancer. I won't know if I need any treatment until the pathologist report comes back but the doctor said all looked as good as…
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I am freaking out
Okay, I am totally freaking out because I just found out I have a one inch "blastoma" lining my uterine wall. Geez, no one in the ER used the word "cancer" and after the finding (from vaginal and pelvic unltrasound), everyone's behavior changed from professional to plain "odd". Hmmmm....I am going to see whether my OBGyn…
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Neuropathy
I am about to start chemo on 11/29 and worry about getting neuropathy. Does anyone know anything to take to prevent or alleviate the effects? I've heard about Vitamin B6, B12, and a supplement called Alpha Lipoic Acid.
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Bleeding for no reason?
I had uterine cancer in October 2010. Full hysterectomy and no followup treatments as the cancer had not spread. Wasn't really given a "stage" but after looking on the internet I would say it was 1B and Grade 2. In May of this year I wiped and found blood. It stopped and I dug my head in the sand and decided to tell no…
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Mammogram - I've got dense breasts~
Completed my yearly mammogram a week ago and today spoke with RN at docs office. She informed me of my results --- have dense breasts and need diagnostic testing to look at the left side image closer. Didn't mention anything about mass or lumps, but after reading about dense breasts this opens up more reading on my part.…
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I get my port at 2pm today now my question is.....................
I have had a PICC and it went bad so the doctor (resident)said she wanted to either put in a port or a hohn and I asked her to PLEASE put in a port and she said no I think a double lumen hohn is the best for you so on Oct 26,2011 that is what I had done. Well, well, last week it quit working. I was just being used for…
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first uterine now having biopsy for thyroid cancer
Hello, I have not been on the boards for a while, long story, but my college daughter was in a serious accident and I have been living out of state so I could be close to her, I have been gone for over a month and a half. She was riding her bike in Cambridge, Mass in the bike lane, and was "doored." This means that someone…
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Newbie with a question,scared and unable to function
Hello ladies,I'm Angie. I am 34,will be 35 in December. I have been glued to my computer screen for days on end now,and can't seem to get the information I need. Bear with me and let me give you the summary of my situation,and please offer help if you can. I went for a PAP smear,on September 29 of this year. Came back…
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a week of great sadness and great relief........
This week has been so mixed for me. Firstly, the sad news of Linda's passing, which hit so many of us so badly. But, today, the news that my latest PET/CT scan is clear - no uptake anywhere. We had ordered it to try and determine whether the "mass" on the left side of my pelvis was recurrence or fibrosis - it turns out to…
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34 years old Newly Diagnosed
Never thought I would have to make a post like this but I am lost and scared right now Long story short, I've had pretty much no periods for years during my 20's due to what I was first told was because of a weight gain, doctor back then told me if I wasn't looking to get pregnant not to worry As years passed hubby and I…
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Speaking of Tamoxifen, what about Pelvic Radiation?
Have been following the posts about that double-edged sword, Tamoxifen. Sure, it may delay recurrence of certain breast cancers, perhaps even prevent recurrences, but it's also associated with higher than usual risk not merely of uterine cancer, but of the most aggressive of them, including carcinosarcoma (MMMT) and…
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RF Uterine Ablation can cause uterine cancer
I just joined this board today, and I was moved by the tamoxifen stories. I don't think the medical community to this day takes women's health as seriously as men's health. I never took tamoxifen, but have recently been diagnosed with uterine cancer, stage 3C already. It has spread around to the lymphs in the torso, but…
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Dangers of Tamoxifen: Tell your story with the drug
Hi everyone, This year my mom developed breast cancer and the doctor prescribed Tamoxifen. Thankfully her network of friends warned her away from this drug. And as I learned more about it, it made me wonder how many women were taking the drug without fully understanding the extreme risks involved? My mother's doctor…
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Linda Procopio Obituary & Guest Book
I have checked on both the Uterine Cancer board and the Ovarian Cancer Board and did not see this posted. I thought I would post the link. http://www.legacy.com/obituaries/newsitem/obituary.aspx?page=lifestory&pid=154644107
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Tamoxifen
I know Linda P has posted several articles about tamoxifen being used to hold back growth for uterine papillary serous even if it is PR negative since recent clinical trials had shown some promise. I just had third reccurrence since diagnosis 12/08 and my onc has put me on tamoxifen. The tumors that remained in my lungs…
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anyone have Ca 125 stop being reliable indicator?
At original diagnosis and 2 subsequent recurrences, my CA 125 seemed to be reliable indicator and early warning system - doubled or tripled before anything even showed up on scans. For last three tests had hovered around 30-34 after grueling six months of Cisplatin and Adriamycin had shrunk exisiting tumors 30% .So when I…
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Iron is not always your friend, and why you should be very careful in regards to cancer growth.
More info to help you figure things out. You might want to go to the Nutrition Science News site to view this article. This is a url for a slew of articles on cancer and nutrition. http://www.chiro.org/nutrition/Cancer.shtml#Cancer_Prevention_Diet I haven't read any of them yet. Best, Claudia From The June 2000 Issue of…
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Tomorrow
I have a doctor appointment tomorrow and I find out if the genetic tests have come back and if I tested positive for Lynch Syndrome. This is genetic cancer syndrome in which you are predisposed to other cancers. See my moms mother was diagnosed with colon cancer before age 50 and died at 53. My mom was diagnosed with colon…
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Rewriter (Jill)
Dear Jill: I hope you had a wonderful birthday celebration with your friends this past weekend. Happy Happy Birthday to you! Kathy P.S. I hope you are feeling better from the dog bite!
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CHANGING LIFESTYLE IMPROVES CANCER OUTCOME & CHANGES GENE EXPRESSION
Found the following interesting and timely. Gives one some things to consider. I really felt the sign off--Keep the Hope !! CHANGING LIFESTYLE IMPROVES CANCER OUTCOME & CHANGES GENE EXPRESSION By Rick Shapiro of www.latestagecancer.com Following, are excerpts from an interview conducted a few years ago with Dr. Dean…
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Linda P
There's a new post from Linda's daughter on the UPSC thread that she passed away this morning. I'm in tears. Suzanne
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What Should I Expect?
Hello everyone hope everyone is feeling well! I have my first appointment with Radiation Therapy on November 29th Is it me or was everyone? They said at my appt, they are going to insert 'seeds' vaginally and then do a CT to see markers but these seeds will stay in as they told me told . Is this something that everythone…