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Survivor are up in USA NY Times today
New York Times Cancer Survivors increase in US. http://www.nytimes.com/2011/03/11/health/11cancer.html?_r=1&hp Sara
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Where do recurrences come from in early stage CA?
I never really thought about this until recently when my little mind wandered into that dark place. There have been several women here who have had recurrences when their initial dx was early stage, low grade cancer. Helen's was "only" hyperplasia! My gyn onc explained that the reason I have the smears is to check for…
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I'm dancing with NED
Ladies I had to share some good news with you all. Yesterday I had a meeting with my onc. and got the results of my post surgery/chemo CT Scan. The result - NED - is the best we could have hoped for. Who knows how long this will last - onc. says chances of tumour returning are "moderate" but hard to give stats as my case…
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iv vitamin c 40-60grams
sisters, i've been perusing the ovarian cancer site and came across some very interesting information re: high dose iv vitamin c. of course, no studies on it, but there does seem to be renewed interest. apparently, they say taking oral vitamin c doesn't do it, has to be iv. a couple of the women have had good success with…
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radical hysterectomy voiding problems
hi everyone i was diagnose cervical cancer feb 9 . i had radical hysterectomy feb 28.. after 1week my catheter pull out coz im recovery stage.. but my problem is after pull out the catheter i cant feel the sensation of my bladder i cant voiding urination.. the dr said im waiting after 1 month 0r 2 month to recovery to my…
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Ro This is for You
Dear Ro, I could tell from your words that this chemo session is harder on you. If the ativan did not help you sleep there are other sleep aids. I took ambien and it worked well for me; I never had side effects. I took an antidepressant for a while and my daughters thought I did so much better on this. Now I take cymbalta…
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Society of Gynecologic Oncologists Conference this week: any abstracts on UPSC?
Society of Gynecologic Oncologists are having their annual conference in FL. I got a link to OVCA (ovarian) related research abstracts. I have yet to see a link to the uterine cancers. and specifically UPSC. Since UPSC behaves just like Ovarian cancer, a lot from the OVCA can shed lifht on UPSC. But, I am still looking for…
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FIGO rating system
Thanks to all who posted about the FIGO system. I go to the oncologist on the eleventh. I go from feeling I'm gonna die sooner than I would think I would to I'm gonna kick cancers A--. Hopefully before it kicks mine. Hang in there Sisters! Debbie
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Multiple types of cancer and radical hysterectomy side effects
I was diagnosed with endometrial, cervical and uterine cancer. I was told post op that the endometrial spread to my cervix but that the uterine cancer was not connected to that cancer. I was told I had 2 different types of cancer and the uterine cancer was completely separate from the endometrial, is this normal? Also…
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Can we join our joint demographics?
There are posted commonalities for ladies like us for likely hood of risk factors... Are there others not yet known or seemingly not important to us at this time? Perhaps we have other factors that will pop up by us comparing? Don't know if this is an interest to anyone. My status currently: UPSC Stage 1 Grade 3 comfined…
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Linda how was your trip to Dominican Republic with your son?
Hi, I just arrived in NY (from Israel) now that I am 'dancing with NED', also my Hemoglob made 10, I am on Megace so Hemotologist said I should give myself premeasured shot of Clexane to mitigate possible thrombosis from long flight-9-10 hours. All fine and weather not so cold and snow all melted. Have tickets to two…
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Just diagnosed with recurrent endometrial adenocarcinoma
Maybe I should wait to write, but I feel a need to connect. Two years ago I had a complete hysterectomy due to endometrial cancer. Was told it was found in early stage, no invasion of cervix, clean lymph nodes. Now, doctoring because of leg pain from a fall last spring, a spinal MRI shows enlarged lymph nodes in my abdomen…
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FIGO 1/111
Hi Kathy, thanks for posting. I had a biopsy in the Doctors office because of bleeding and some pain in the right side. He sent me for a transvaginal ultrasound. I see the oncologist on 3-11. The FIGO 1/111 was a term on the biopsy report. Thanks, Debbie
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GCF has new name, website, etc
Picked this up on Twitter this morning.... Gynecologic Cancer Foundation Effective on Tuesday, March 1, 2011, the Gynecologic Cancer Foundation (GCF) has changed its name to the Foundation for Women's Cancer. A new Facebook page has been created (https://www.facebook.com/pages/Foundation-for-Womens-Cancer/190565747650540)…
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Got diagnosed 1 weekago with endometrial adenocarcinoma, endometriod type, FIGO rating 1/111. What
Got diagnosed one week ago with endometrial adenocarcinoma, endometrioid type FIGO rating 1/111. Will see oncologist in one week. Can anybody please tell me what does FIGO 1/111 mean?
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causes of CA 125 going up, a little frightened
I'm new here and a little scared but was diagnosed in 11/09, had the hysterectomy and radiation. I have been out of chemo since April 2010, had a rise of the CA 125 from my level of 13 to 22, I also now have some lymphedema in my right leg. which was first thought to be left over neuropathy after chemo. I was due for a cat…
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High dose chemo with bone marrow (stem cell) transplant
Hello, Has anyone had experience or read anything about treating UPSC with high dose chemo and bone marrow (stem cell) transplant? A friend was telling me that somebody she knows had this for recurrent, metatastic, resistant Ovarian and it worked. I think it's a harsh and horrible treatment but she got through it. I can'…
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Gyno-Onco realeased me to Gyn & Primary
Saw my gyno-onco yesterday for my 6 wk f/u after 1/12/11 surgery & was released into the care of my gyn & primary. Said vaginal cuff healing fine. I lost 42 lbs. already (yippee), 10 of those were lost the week leading up to surgery. I really feel great, you can hardly see the 5 laproscopic holes. My sugar levels are…
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anyone with upsc stage 3/4 NOT had a recurrence
sisters, since i think stage is the definitive aspect of whether we have a recurrence or not, i'd be extremely interested to know if anyone has been diagnosed with either stage 3 or 4 upsc who has not had a recurrence. hopefully, there are some of you out there. unfortunately, on this site it seems that many if not most of…
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post menopausal endometrial lining 7mm
I just had a edometrial biopsy yesterday for a thicken endometrial lining of 7.2. I was having pelvic cramping but no bleeding. I have always had back problems so I didn't think much of telling the OBGYn of my recent leg pain radiating from my right buttock to my knee and sometimes to my calf as I went to the chiropractor…
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has anyone had carbo/gemzar for their first recurrence, and if so, how hav you fared?
sisters, i expect to be having chemo either on the 11th march or 18th, and will be on one cycle of carbo/gemzar together for first infusion, then gemzar alone for second the following week, then third week off. and so on for 6 cycles. my doctor said it was fine to take vitamins during chemo, plus this great, organic…
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CA125 and fresh raw juices during chemo
Hi, I was just wondering whether people could tell me what their CA125 was after each chemo round (particularly those with UPSC)? Mums has gone from 10 (pre surgery), 100 (post surgery), 70 (after first chemo), and now 53 (after second chemo). The doctor said it wasn't dropping as fast as he would have liked so I would…
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Skincare and Beauty Products
I've been so adamant researching on the foods I put in my mouth and the exercising I put my body thru that I forgot one important area -- SKIN CARE & BEAUTY PRODUCTS. There's so much to know and I've only begun. As we know our skin is our largest organ and absorbs anything applied to it, which then enters the bloodstream.…
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I Don't Know What To Think Of My Oncology Appointment-Need Opinions
I was recently diagnosed with UPSC. I had a total hysterectomy and surgical staging done on Feb. 18 and received the results a week ago. I was staged at Stage 1B(by the old staging chart) and Stage 1A (by the newer staging chart)I was not told what grade tumor but think it is probably grade 3. Before surgery I had a meet…
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Dr. Weil & Dr. Oz
I don't know if anyone watched Dr. Oz last night but he had Dr. Weil on his show. Dr. Weil talked about Astragalus and that it could be used during chemo to limit damage to bone marrow and increase immunity. Just thought I would share this. It would be something you would want to check with your doctor before trying. Check…
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Norma, how are you!!
I haven't heard from you. Hope you and the fam are all right. Love June
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Anyone heard from Bea-Mil?
It's as if she dropped off the earth. Know some of us have contact with others off our message board, and wondering if anyone has news? Just wanted to post as thought of her today.... Jan
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who has worked outside home while on chemo--your experience??
hi sisters, i'm wondering how many of us have been able to work outside the home during chemo, and what that experience was like? were you able to work through the entire chemo, one week a cycle? two weeks? etc. please let me know how you fared/are faring? sisterhood, maggie