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Uterine/Endometrial Cancer

Archives for January 2011

Radiation reply
Thank you all for the advice.
NOPR- National oncologic pet registry
I think the site may give guidelines for Pet/ CT fusion scans which are used for surveillance in other cancers and are less radiation that straight ct scan. Maybe this google site can help with payment of scans?
ACS Chatroom for uterine cancer Wednesday evenings at 8pm CST in the room called "Breast"
Everyone, This is an invite for all all to chat live in the American Cancer Society chatroom on Wednesday evenings at 8:00 p.m. The "Lobby" seems to be for all general cancer chat, and various topics. There are other rooms for other cancers but none for uterine cancer. Let's all click into the room called "Breast" and…
To EvertheOptimist
For some reason I cannot respond to your wonderful note on line. There may be a computer glitch. I agree more research is done for ovarian cancer and it is creating a block for those of us with serous uterine cancer. Not as much research is done on serous uterine cancer and when we need medications the oncologists use the…
UPSC: applicable findings from ovarian cancer research
I am new on this board, but I spend a lot of time on the ovarian cancer board on inspire.com since originally I thought I had ovarian cancer, and later because I learned that UPSC behaves very much like ovarian cancer and has similar prognosis and outlook. In fact, other than the fact the primary site of UPSC is uterine,…
Serous Papillary carcinoma - Stage 4
My mom, age 76, underwent a hysterectomy on 1-6-11. She was diagnosed with stage 4 Serous papillary carinoma. She had 3 tumors, all cancerous, removed. One was not contained...2 spots removed from stomach fatty tissue. Surgeon who did surgery is an gyno-oncologist....Hope Center in Asheville, NC. Long story short, in…
Leaking urine 17 days post hysterectomy
This may sound insignificant compared to everyone's situation & cancer but tonight I leaked enough urine into a sanitary pad that when I peeled it off my undies it was like I was wringing out a soaked sponge. I wear a pad every day & have since I was in my 30's. I started @ first because my periods were so erratic & I…
How about starting a weekly Wednesday evening uterine chatroom at 8 pm CST
Friends, What does everyone think about staring a uterine chat room live chat, on the chatrooms on this website. We could use the room called "Extra Room for Extra Chats" on the website, rather than the lobby which is for general chatting. It might be fun. What do you guys think? Cindy
Officially introducing myself: upbeat UPSC stage 4B here.
I went in for surgery with every expecting stage 3C ovarian cancer. Turns out, the origin was deemed "uterine", and the presence of cancer around bowels and some lymph nodes put my stage at 4B. I will post my progress here. I know UPSC stage 4B really scares the hell out of people. If I am doing well, all of you with UPSC…
UPSC (uterine pappilary serous carcinoma): once in remission, how does you doctor monitor your statu
I have a question to UPSC patients who are currently in remission. I just finished my first round of chemo (3 weekly sessions - dose dense regimen), and I am realistically optimistic that I will go into remission after the 6 rounds of chemo is over, because the test results (CA125) already show that the chemo is working…
KKSTEF----Karen, question for you
Karen, Hi there. Can you please tell me about your diet and habits that you maintain to avoid recurrence. I would really appreciate it. Thanks for the tip about organic unsweetened almond milk at Whole Foods. I will look for it there. Cindy
Chatrooms on American Cancer Society Website -Roomed Called: Extra Room For Other Chats
Friends, I was thinking it would be really nice if we all got online for a live chat in the chatrooms sometimes. There is a new category room listed now called "Extra Room for Other Chats"-we could use that one (since I don't see uterine cancer listed). I never seem names listed in other rooms-seems everyone uses the main…
LindaProcopio on Ovarian Board
I don't think I saw it here on the Uterine Board but Linda is going through a really tough week and I saw her post on the Ovarian board and thought I would mention. I go there regularly too as my doctor always refers to my UPSC as Ovarian as he feels it has far more in common with that than with typical endometrial…
Thyroid Nodule Biopsy Results--Negative. YEAH!!!!!!!!!!!!
Friends, I received the results late afternoon from my thyroid nodule biopsy. It was benign-yeah!!!!!!!!!! I asked about the other nodule, which the radiologist did not test, and the surgeon's office was fine with that override-the radiologist determined the other nodule was too small and dangerous to biopsy due to…
Food Study at M D Anderson Cancer Center
I just got a questionnare from U T MD Anderson in Houston where I am being treated. It looks like they are studying my entire food history. My experience there is they take alternative medicine seriously. This study is being done by their Department of Epidemiology. I am so glad they are focusing on this important aspect…
CINDY ARE YOU OK?
Hi Cindy, I know that you are waiting for the results of your thyroid biopsy. How are thins going? I am a little worried. I hope you are not buried in a snow bank and trying to dig your way out.All this snow in NYC is crazy!! Just know that you remain in my thoughts and prayers. SUE
Other support groups
I wanted to let everyone know that I find eyesontheprize.org to be a great international support group with active members and lots of answers. It has been around over a decade so you may want to join it. When you get to the primary page you can join the yahoo group. Thanks! Zarka
has any one, especially with upsc, been treated with cisplatin and gemcitabine (gemser) for recurren
sisters, had an assay done of fresh tissue and there were at least 3 good combinations of chemo for me, should i need it in the future (probably.) the one most highly recommended which worked best for me, was the above. am interested in hearing from any of you that have tried this combination, how it was, and how it…
ANYONE WITH UPSC NOT HAVE A RECURRENCE????
sisters, just began wondering if anyone here who has upsc--whatever stage-- has not had a recurrence. would be great to hear from those of you who have not. i know other uterine cancers recur as well, unfortunately, but specifically asking about those with upsc. thanx, maggie
ANYONE WITH UPSC NOT HAVE A RECURRENCE????
sisters, just began wondering if anyone here who has upsc--whatever stage-- has not had a recurrence. would be great to hear from those of you who have not. i know other uterine cancers recur as well, unfortunately, but specifically asking about those with upsc. thanx, maggie
Lunch
A good friend (high school classmate) had endo cancer the same time as me. We supported each other as she went through chemo for endo ca and me for breast cancer. Now that we're both back to our relatively normal selves, we thought it would be fun to have lunch with some of our other classmates (women only, of course).…
I may need radiation after my chemo ends and I wanted to know how bad the side affects are.
I've been going for chemo and need radition as well afterwards, I work in a hosp as therapy tech, has anyone worked while on radition?
Chemo Port Questions
Are there any chemo ports that do not have any acivity restrictions after being put in or that I can recover from in a weekend? If I miss any more work or end up on limited duty, I'll lose my job and medical insurance... Thanx!
Anyone get bad side effects that last too long?
Just feeling bad and want to know I am not alone in these ongoing negative symptoms....I had 1st chemo (carbo/taxol) Jan. 13th....and I am still not feeling well or "normal". I had every text book side effect...nausea that my pills didn't help, bone aches that were killer, bad headaches, fatigue that will not leave,…
Proctalgia Fugex or Levator Syndrome
Ladies, a number of months ago I posted a question about any of us who might have experienced what I described as severe rectal spasms, infrequent but extremely painful lasting 30 minutes to an hour. When I say extremely painful think calling 911 type pain, take your breath away pain. I thought this might be a side effect…
Question about endometrial carcinoma grade 1
I'm new here...I joined this network because my mom was recently diagnosed with endometrial carcinoma (grade 1); she had a full hysterectomy almost 2 weeks ago. When she came out of surgery the oncologist said the cancer was contained in the uterus (he said stage 1A), but after getting the results from pathology he said…
Has anyone had successful Meagace/Megestrol treatment and gone on to conceive?
My husband and I were married in April 2010, and at the end of the summer we started TTC. I had alot of heavy bleeding around Thanksgiving that wouldn't stop so my gynecologist performed a D&C. In the D&C they found a microscopic amount of what he beleived was cancer. I am seeing an gynecological oncologist at Rush…
To Minniejan Regarding Flu Shot
The Centers for Disease control have an "Ask the Expert" center and they will answer any questions on line for you or you can call. Email: NIPINF0@cdc.GOV You can also go to Needletips, and sign up for their monthly bulletin, they have everything you need on vaccinations. It is very important to get the flu shot when your…
Probable recurrance and questions
Dear friends, As a longtime lurker on this board, I have admired you all for the support you give to each other, for your great spirit, courage, and good humor, and for your smarts and incredible knowledge. I was diagnosed with endometrial adenocarcinoma stage 3c grade 2 in May 2008 (I was 48 years old). I had…
Had my thyroid biopsy today
Friends, Finally had my thyroid nodule biopsy today. The surgeon ordered for two nodules to be biopsied but the radiologist doing the procedure said that she was only going to do one. She said the other was too small to do, and the third was a clear cyst (doc didn't want that want biopsied either). I mentioned surgeon…

Uterine/Endometrial Cancer

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