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Likely UPSC recurrence - lymph nodes light up on PET
Hi ladies, I'm bummed. It has been a stressful month. Got the word from the doc today regarding PET done last week. He is recommending surgical removal of left subclavian lymph node. Rest of PET scan was negative!!! I cried when he told me the CA 125 was up at my last checkup begining of April- thinking the worst of…
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Back from cruise
The transatlantic cruise was wonderful. We had calm seas and only one morning of drizzle out of the 19 days. The temperatures were in the 40 -50's, so we dressed in layers. I had plenty of energy for all the travel, but am having a hard time with the jet lag since we returned back to Florida. We had five nights where we…
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Radiation & fatigue
I am 59 years old. I started spotting in June of 2008 and the doctors did an ultrasound and said I has a fibroid and they never checked any further. I was diagnosed February 22 after a biopsy with Uterine Cancer. I had a total Hysterectomy on March 10. They diagnosed me with 2 kinds of Cancer the most important one being…
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FDA approves NEW drug for prostate cancer
I know we don't have this cancer but anything that is found helpful in one cancer can be beneficial to others. Did any of you hear this on news this morning? If not, I've attached a link as yes they do open doors for this type of process for other cancers. We need to see more highlights in news on uterine as we see on…
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awareness
I have been thinking about the lack of awareness in uterine cancer. Women think hey my pap smear is good, all is good. There is a lot of sufferring with this surprise diagnosis even though it is the most common female cancer. Women need to be mobilized for earlier detection. Anybody have the same feelings. Need to be…
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Vaginal biopsy post treatment
Ladies, I am going to have my 3 month check up tomorrow with my first pelvic exam since chemo and radiation and will have a routine vaginal wall biopsy. Since I have had radiation I am apprehensive about the amount of pain involved in biopsy procedure. Can any of you care to share what I might experience? I am wondering if…
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immune system
I am new to this board and have a question. I know our immune system is very low around days 10-14. i was just wondering if anyone has been sick because the immune system is low. I just finished round 3 taxol/carbo. i have 3 more. my diagnosis is uterine cancer stage 3 grade 3c. thanks! Laura
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New staging guidelines and 6 month check NED!
At 46 I was diagnosed with UPSC stage 1B grade 3 in May 2009. I completed 6 rounds of brachy therapy in Oct 2009 which followed 4 chemo sessions of carbo/taxol. I really feel great!!! Very little side effects to complain about, usual hair loss (regrowth is about 2 inches now),and some foot pain/numbness (which has almost…
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anyone else with roving pains a year after hysterectomy and 6 months post chemo?
i'm not clear re: how to start a new thread, but i may have already done so with a previous post. if so, i apologize for being redundant. i did get one response to my query, and am wondering if anyone else has or had pains that come and go in the pelvic/abdominal regions and elsewhere, and feel like they've been bruised…
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pain post radical hysterectomy and 6 months post chemo
hi sisters, i'm about to schedule my first post surgery, post chemo (6 months) ct scan, and have noticed a number of different kinds of abdominal pains, groin pains, breast pains, pain on ribs, on hips, along the side towards the back. i note a twinge of some kind, and press it, and sometimes it's nothing and sometimes…
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Bleeding as a symptom of a recurrence
I started this thread, not because I have a real opinion yet, but because I will soon, and want to get the discussion going. As many of you know, I am currently on a tenuous break from chemo, following a SURPRISE clear CT/PET I had in mid-February that was supposed to let us know what was going on mid-way through what was…
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Hysterectomy Question about after care
Ok so i have a few Questions about after care while at home im wondering if any ones cut from there Hysterectomy ever scabed over mine is and it is hurting also has any ones ever broken open and bleed mine is doing this and some not alot green stuff is coming out also where my JPS bag ( blood bag ) was there is a whole and…
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New Book
I listened to a radio program in Minneapolis 107.1 FM on Sunday, April 25th around 2:30 pm and they were interviewing an author of a new book called "FLOW" by Allison Stein (sp?). It is about the feminine care hygiene and pharmceutical industry (tampons, hormones, etc.) One of the things discussed was how there was so…
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Herceptin
I am curious to know if anyone with Uterine Serous Carcinoma has ever tried Herceptin? It was brought up in one of our appointments with our onc and in doing further research, I found several articles that talk about using it with much success for UPSC. One article was even titled "HER2/neu overexpression: has the…
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update on blood clots
Well, thank you all for thinking of me and my newest issues. So I had the ct scan again on Friday, waited for a call to tell me what to do, didn't hear anything all night, went to bed, got up on Saturday morning and put a call in to find out what was going on. I received a call and was told I had to go into the hospital…
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First NED report
Got the results on Friday of my first post treatment scans. Bone scan was clean. CT scan showed cysts on some abdominal lymph nodes, but the mass was not dense; otherwise, a clean report. PAP smear came back negative. Next ONC/GYN visit in July. Now I'm educating family and friends of the meaning of NED! Got the sewing…
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Update on my Hysterctomy and a Question
on April 16th i had the full Hysterctomy to remove the cancner they said that my tumor was very very BIG. they also ended up having to remove my Appendix as well. this was very painful sugery to have for me. i hated when they pushed me to walk next day i was so out of it the day of im still in alot of pain my scar broke up…
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Blood clots
Well it's always something, I got the results from my recent Ct Scan which was on Tues. the 20th of April. I was told o.k. I have good news and bad news. Good news is that lung nodules are not growing and some seem to look like they are shrinking. The bad news is we seem to think there is a blood clot in the chest area. I…
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Finally some good news
My wife had her CT scan yesterday and went in to day to see the Dr for her report. Great news, he said the cancer has stopped, lymp nodes have shrunk,it appears to be in complete remission. Obviously we are excited, But she has not had a single treatment. Dr says now might be the time to start chemo casue her body is doing…
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REDDIE!!! So great to see you posting again! I MISSED you!
It was so funny to see your post on the long long UPSC thread! Just yesterday I was thinking about you and was going to post to see if any of the others had heard from you or anything about you. & then you post,...must've read my mind! So glad to hear that you are still doing good. We missed you here, honey, but are always…
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Post Treatment Scans
Having my first post hysterectomy/chemo/radiation treatment CT scan today. Just finished the second barium sulfate solution this morning. Yum Yum!! The anxiety is tremendous. Does it ever get easier? First bone scan is tomorrow. Never had this one before. Although I don' post often here, please keep me in your thoughts.…
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Manicures & Pedicures
Okay Ladies, I know on the scale of things small to large, this is trivial...but I am curious. I used to love getting my nails and feet done, (pedicures and acrylics) but thought I heard we who are going through treatment should steer clear. Have you all heard that? Now assume I go to someone who uses my own kit (like I…
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New research on the rare BONE METS as a site of endometrial cancer recurrence:
(I post this stuff because it is brand-new research; and I think it's important that we capture all the data we can find, and archive it here so that it is available if any of us ever need it): Clinicopathologic Features of Bone Metastases and Outcomes in Patients With Primary Endometrial Cancer Gynecol Oncol. 2010 May…
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new research: supports having para-aortic lymph nodes removed for biopsies in high-grade endometrial
Survival Effect of Para-aortic Lymphadenectomy in Endometrial Cancer (SEPAL study): A Retrospective Cohort Analysis Lancet. 2010 Apr 3;375(9721):1165-1172, Y Todo, H Kato, M Kaneuchi, H Watari, M Takeda, N Sakuragi ABSTRACT The results of this large retrospective analysis conducted in 2 Japanese centers suggest…
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2nd round taxol/carboplatin
This Thursday I am having my second round of taxol/carboplatin. The first round wasn't too bad, the anti-emetics held off the nausea/vomiting, but the fatigue and body aches & pains were pretty bad. I am told that each successive chemo round will "be worse." Can anybody share their experience with me? Did you get new side…
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Diagnosed on March 12
I was recently diagnosed with "adenocarcinoma, endometroid type, well-differentiated with papillary features". The path report also said "almost all biopsy fragments available for examination show involvement by well differentiated adenocarcinoma. Much of this neoplasm has papillary features." I'm 43 years old. My mother…
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Good new, but so confused by information.
Evening Ladies!! I finally got my MRI results (MRI was done on 4/5). The doctor did not call me back but his main nurse called and told me that the cancer did not spread. That is good!! But I am confused by some things I have read. So they can tell that it did not spread but I won't know the stage or anything till after…
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NED with grace of god
Hello Everyone, My mother went for her 2 months check up. she had ultrasound and pap smear and blood check. Her ultrasound came negative and her pap smear came perfect normal. They did cbc test.her Blood is 13.7 hemoglobin. she gain weight also. dcotor told her to come back after 3 months. she is in NED.. just for new…
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nutritionist
Has anyone here hired a personal nutritionist to help themselves or a loved one fight cancer? WE have hired one for my sister and while she has only been on this diet specific regimen for about a month her energy and overall look has really perked up. IF anyone is interested on some of the specific ideas / meal plans /…
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Uterine Cancer
Hi Ladies; My name is Rocio. I live in a rural town and honestly I do not have too much faith in doctors in this town. I was told by my "Family Physician" I just was in "menopause". I went to an GY specialist who diagnosed me with endometrial cancer. I had surgery 3 months ago. Results: Stage 1, Class B, Grade1...It was…