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Thyroid Cancer

Archives for October 2011

Endo recommendation descrepancy-what is right? Is there any answer?
I just met with a local survivor group....and am more confused than ever. Four patients have had the TT and are awaiting RAI (all with spread to lymph nodes). I am trusting my endo to make the right decisions but how can I do that when they all seem to have different ideas on how to treat! Endo #1: recommends "low" dose of…
thyrogen required?
Is it required that you take Thyrogen before you start your RAI treatments? I looked it up on my insurance website and it is not covered and they estimate that it is $2045.00 per shot. Can you "get ready" for RAI without it?
I can't pass the "iodine free" blood test to start treatment
I've been on the iodine free diet for 3 weeks now and I'm starting to lose my mind. Not because of the food exactly, but because I did the diet to the best of my ability and I failed my first blood test...the results showing that I'm not even 1/2 way to being iodine free. I think I figured out what I did wrong...I recently…
meeting with my oncologist
I have my first meeting scheduled for the radiology oncologist to get ready for the RAI. Are there any particular questions that I need to ask?
What is classed as an early thyroid cancer find?
I received quite a few head x rays at the age of 12 and at the age of 15-17 I had lumps in my neck, after a biopsy at 25 years old I found out it was papillary with mixed follicular. People say as long as its caught early prognosis is very good, I had mine for at least 10 years unknowingly and still show uptake now. What…
Thyrogen shots before RAI
Does anyone know about these shots? I am waiting for the drug to arrive. There is a shortage of it. I was told that I will get 2 shots one day after another. My insurance does not cover this and the cost is about $1000.00 a shot. Can anyone give me any info about this. Thank you Barbara
Thyrogen shots before RAI
Does anyone know about these shots? I am waiting for the drug to arrive. There is a shortage of it. I was told that I will get 2 shots one day after another. My insurance does not cover this and the cost is about $1000.00 a shot. Can anyone give me any info about this. Thank you Barbara
Armour Thyroid
Is anyone out there taking Armour Thyroid? I was on 250 mcg's of Levothyroxine and while my TSH on paper was fine at 0.7 I still was having some issues with body aches and tiredness so my doctor thought my body wasn't converting the medicine to T3 so he changed me to 180 mcg's of Armour Thyroid. I've been on it almost 3…
Surgery number 3 coming up...sigh...
Well, met with my surgeon today to review my PET scan results. He has to go back in again to try to remove two more nodes. That makes 3 surgeries in a year...4 if you count the biopsy. Then likely I need to do a 5 week session of radiation. Anyone else gone through multiple surgeries and radiation? I want this to just go…
Is it normal to get cranky and short temepered all the time.
I was diagnosed with papiallry nov 2010 and had thyroidctomy and RAI on december. i m ok now. my last test came out clean. but i m still struggling to fix the dose of medicine to keep my TSH down. what i have noticed lately that i loose my temper very easily. and has become very short tempered and i am cranky all the time.…
Need advice from long term survivors!!
Just had my follow up PET scan - doctors sent me because the neck ultrasound showed 2 suspicious nodes in my neck. There are definately 2 more to worry about - one kind of under my jaw near the end of the jaw bone, the other just above my collarbone - both right side. The rest of my neck and body remain clear. I've been…
MRI shows white spots
Hi everybody. I had an MRI done on my arm and neck a couple of weeks ago. My arm has been hurting since July. I finally saw an orthopedic dr. that ordered the MRI. The nurse told me to call back the day after to get the results. I did. But they said, the dr. hadn't finished his notes yet and they would call me back. They…
Kidney Tumor
Hi -- I am four years with Pap Thyroid Cancer (also, 2 of 6 lymph nodes in the neck were positive for cancer). I now have a 1.5 cm tumor on my left kidney. Options were to wait three months and do another CT scan to see if it has grown in size or have a biospy with my history of thyroid cancer. Have decided to do the…
Recurrent thyroid cancer
I was diagnosed with differentiated pappilary thyroid cancer in June 2010, had a total thyroidectomy and subsequent I131 treatments. After a PET scan in Feb 2011 my oncologist gave me the "all clear". At a routine visit to my endocrinologist in September 2011 we discovered a new growth of 22mmx11mm in the thyroid bed and…
Mets to the thyroid question
Hi I've been a regular on the Kidney Cancer board, and am running a bit scared at this time. On my most recent CT a month ago, there was enough change that I've already had the ultrasound and the next test will be a nuclear scan of the thyroid. Has anyone had another type of cancer metastacize to the thyroid? And has…
Medullary Thyroid Cancer Questions
First, sorry for so many questions but I am curious as to symptoms others have had with this. I am new to this site and at this point there is only a suspicion of this Medullary Thyroid cancer and Pheochromocytoma...I have some questions and would very much appreciate any sharing of knowledge. At time of diagnosis for…
How many hours or days after I131 does one go off the low iodine diet for maximum 131 effect ?
I've heard one day, two days, and five days. Which did your doc recommended ? Do you stay on it longer than recommended ?
WBS random question
Very random question - does the WBS just show where there was RAI uptake, or would it show anything else (like other tumors in the body)? Just curious - my report just noted uptake areas.
Just when you think you're in the home stretch.......
Just thought I'd share..... I'm scheduled for RAI tomorrow (3pm) and WBS on 10/20. My ENDO was good with providing instructions on stopping Cytomel, LID, RAI appt but I never asked about resuming normal diet, starting on levothyroxine and returning to see her. So I emailed the ENDO and although I wasn't pleased with her…
List of fresh fruits and grains that provide iodine
hmmm, thought oatmeal was OK. what the heck can I have for breakfast now? Fresh Fruits, Vegetables, Grains, Herbs and Nuts that Stimulate the Thyroid According to The Merck Index 14th Edition 4, the key fresh foods that provide iodine in gently stimulating amounts are those listed below: fruits – pineapple, coconut,…
Gastric pain while on LID?
Going through prep for annual scan. Had complete thyroidectomy two years ago and have been through LID twice. First two times, went hypo but this time doctor will use thyrogen. Now going through LID again. This year, having lower gastric pain much earlier in the diet. I still have 19 days to go. Anyone else had this?
pernicious anemia
Has anyone else been diagnosed with Pernicious Anemia after Pap. cancer?
Blood work (tumor marker) shows 4.7 should be 2
Had my year out scan 2 weeks ago. Immediately after the scan, I went and had a blood draw that was sent to CA as a "back up"/baseline. The scan was clean, but the bloodwork came back as 4.7. The doctor said it should be less than 2 (I am assuming this was a test for thyroglobulin). I am going for a mapping ultrasound on my…
Anyone had their blood or urine iodide measured ?
My friend's doc in New York suggested he collect 24 hour urine to check his iodide level at the end of his low iodine diet. Has anyone here done that ?
LID/No thyroid medication
I took my last Cytomel pill on Tuesday (6th of OCT) and will be off any/all thyroid medicine until my I-131 scan on the 18th pending bloodwork on the 14th. I have been on the LID for 16 days and must stay on the LID until the scan is completed on the 18th. I have actually lost 12 pounds on the LID because I can't eat…
Has anyone here had I131 and had NO side effects ?
Replies in another thread were few and inconclusive.
Can thyroid regenerate?
I got test results today for recent ultrasound of thyroid area and it shows I have a fairly normal sized thyroid. How can this be? I had my thyroid removed in July 2010 and RAI treatment in August followed by scan after it was determined I had papillary and follicular cancer (different kind on each side). An ultrasound in…
Salivary Gland pain months after RAI
Hi everyone. It's been awhile since I posted anything but now I'm having more issues! I had RAI about 5 1/2 months ago and my salivary glands hurt SO bad! This just started a week ago. My Endo looked surprised and said it couldn't be because of the radiation and to just take some Advil. Of course whenever something is…
Dizzy after TT
It has been a week after my surgery and I am officially released to go back to work....the problem is I am sooo dizzy. I am going to take a few extra days without pay hoping it will help. How long does it take for that to go away? Is it normal? Haven't seen too many posts on dizziness as a side effect.
What is considered "slow growing"
I had a CAT scan for a separate issue May 31st and was told I have a lump on my thyroid. Went to my regular doctor 2 days later, had an ultrasound 4 days later and was set up with an endo and had my first biopsy by the end of 2 weeks. That all happened so fast. The biopsy came back inconclusive. They scheduled another with…

Thyroid Cancer

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