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Too long and stressful.
Im 17 years old, I was diagnosed with papillary thyroid cancer 2 years ago. Since then I've had 2 surgeries, 1 RAI treatment, 1 bioposy and that horrible low iodine diet. The doctors just informed me a couple weeks ago that I have to have surgery again in october, do another treatment and go from there. I feel like this is…
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After thyroidectomy I can't stand certain food I loved before
I'm curious... I had a complete thyroidectomy on August 6th and now I find that certain foods that I used to love I can't stand the sight, smell and taste. Has this happened to anyone? I haven't had my RAI as yet though. I loved french fries, I almost threw up when I had only a piece of one (I tried it yesterday). I don't…
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Hurthle Cell Carcinoma Returns
Hi About a year ago I had a 3.2cm Hurthle Cell Carcinoma taken from my right lobe (thyroid), they then went and took out my left lobe which also had changes. I underwent radioactive iodine treatment. My blood results now show that my TSH is elevated at 2.1 and the doctor says it should be .01. I am about to go for a PET…
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Does anyone have Hurthle Cell Carcinoma diagnosis?
Hi there: I'm trying to talk with anyone who might have Hurthle Cell Carcinoma. It's a rare thyroid cancer and I would like to find someone to share info and experience. Thanks
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Synthroid side effects
So I'm 24 years old and had a total thyroidectomy almost 2 years ago due to papillary cancer. I go see my endo every three months for blood work and my levels are never right two years later. Right now I'm currently taking 175mcg of synthroid. I've been having really bad headaches, still feel tired all the time, and…
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Does the thyroglobulin detect hurthle cell as it does the papillary ?
I have read conflicting articles. The scan has very small percentage of picking up hurthle cells. Has anyone else been told that?
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Going crazy
Hi, new here. Just found out on 8/6 that I have Papillary thyroid cancer. Several nodules were found 3 1/2 years ago, but the biopsies were inconclusive. I was given I referral to endocronology, but gave up after 3 attempts to get an appointment (2 where the person who schedules was at lunch, and once on vacation. I left a…
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tightness in neck
Has anyone else experienced an extreme tightness in the neck after a thyroidectomy? It's been nearly 8 months since my surgery and I feel worse now than when I was first diagnosed. The doctor basically blows off my concerns by saying there is nothing he can do. Please if anyone has any suggestions I would love to hear them.
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One Year Body Scan
Does anyone have any advice on how long I should isolate myself? I am having my one year body scan. I am taking thyrogen shots, a capsule and then having the scan two days later and another one two days later.
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Palpitations-Thyroid med or something else?
Hello all- It seems that since my thyroidectomy, I've had palpitations and sometimes irregular heartbeats. Does anyone else have this problem? Sometimes it just takes my breath away and comes when I least expect it, I don't even have to be doing anything strenuous. It's gotten a bit worse in the past year or so. The…
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Scared and confused.....
Back in 07 I was diagnosed with Papillary thyroid cancer. After doing an ultrasound on my thyroid, they found that my thyroid had microcalcifications on it. After the biopsys on my thyroid and lymph nodes they found out the cancer had spread there. Nov of 07 I under went a total thyroidectomy and had all the lymph nodes in…
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choking feeling
Has anyone else experienced severe choking feeling on a regular basis since having a thyroidectomy? It's been seven months since my surgery and the discomfort is awful.
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Questions from children...?
I recently had some kids at my son's daycare ask me "What's that? What happened?" ...Pointing of course to my scar.... I said I had surgery.... but the kids are usually no older than 5 years old... Has anyone had to explain to kids before... When adults ask... I just say "I had surgery" Thinking... that an adult... they're…
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Tired all the time
I was just wondering if anyone else was having the problem of always being tired? I was diagnosed in Oct 08 with pappilary thyroid cancer. Since then I've had a total thyroidectomy, RAI, 2 body scans and told the cancer is gone and no signs of any thyroid cells. 11 months out and I'm still tired. I have gotten back to work…
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Problems after I131 treatment
I had a total thyroidectomy in Dec. 2006 which showed follicular variant papillary carcinoma. I underwent the I131 treatement in March of 2007 and had massive problems with my parotid gland while I was still in the hospital and it has kept getting worse for the past 2 1/2 years. I was finally cancer free in Jan of this…
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Total Thyroidectomy, Trying to decide on Treatments?
I have been fighting an "issue" of some kind for two years that I can identify with. I had two surgeons and two different endocrinologist tell me that according to my 3 biopsy's I didn't have much to worry about in terms of cancer. I elected in July to have a total thyroidectomy and low and behold, pathology revieled…
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Im a professional singer its all ive ever loved and done post thyroidectomy and i cant sing
I Cant sing I am devastated beyond words, there was no vocal nerve damage I can only figure its due to muscle damage from my muscles being cut to get my thyroid out? I have alot of people depending on me producers,songwriters,musicians and charities I am scheduled to do a huge event in sept for our troops and I dont know…
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treatments
my love developed herhtle cell carcinoma with focus on anaplastic.we started treament at moffitt in fl. but found the treatment severly lacking and found our radiologist and support staff lying about the cancer.we changed to md anderson in fl. the cancer started in the throid with total thyroidectomy and 6 weeks radiation.…