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Rare and Other Cancers

Archives for June 2010

GIST IN VIET NAM VETERANS
My husband is a Vietnam veteran. He was diagnosed with GIST (gastrointestinal stromal tumor)in August 2009, had surgery on September 11, 2009. Surgeon removed thirty percent of his stomach and fifteen percent of his liver. He was put on a drug called GLEEVEC. Five and a half months later, and this GIST has returned. One…
ampullary cancer
I was diagnosed with Ampullary cancer in Jun 2009. Was suppose to have the whipple procedure but was unable to complete the surgery due to the fact that the cancer had spread into the lymph nodes. I have been on chemo treatment since Aug 2009 it is called the GTX protocol and I have been doing very well. Has anyone else…
Adenocarcinoma of unknown primary
My mom had been having trouble breathing for quite some time before it was finally determined that she had a pericardial effusion. She has COPD and always seems to end up with bronchitis or pneumonia. She had multiple chest x-rays done and she was always given medicine for various problems. She was referred to a…
my 6yr old son just diagnosed with Embryonal Rhabdomyosarcoma..
My 6 yr old son was just diagnosed with Embryonal Rhabdomyosarcoma a week ago. A large tumor was found in the testicle area. Since then, they've done many tests and scans and yesterday found cancer in one of his lungs as well. We are still to do the bone marrow as well as have a port placed for chemo. The team is…
Cancer cells killed by chemotherapy may cause cancer to spread..
Chemotherapy is known to come with a long list of side effects -- from debilitating nausea and hair loss to extreme fatigue -- and in many cases, it does not cure or even stop cancer from progressing. But what if chemotherapy does something no one has realized before during all the decades it has been in use? What if chemo…
whipple procedure
I would like to have e-mail or phone contact with someone that had cancer of the pancreas and has had whipple surgery. It would be so helpful to compare notes, problems and successes. barb616 love.doxies@yahoo.com
Pancreas and other Cancer Treatments
Hi everyone, I was wondering if anyone heard of Issels Treatment in California? Has anyone been there? How do they treat cancer? What are the results? I would really appreciate it if I got any feed back from someone who has been there. Thank you very much. Julia
GIST cancer
My mother was diagnosed in 2005 with GIST cancer. Surgery was performed right away and most of the tumors were removed. It was all over her abdomen, small intestine, liver and other areas. She was given 400mg of Gleevec to help stop the growth of the other tumors that were unable to be removed. The tumor remained the same…
Squmous cell cancer of cervical node with primary occult tumor
Does anyone have an experience with this type? I am confused and in shock
Pancreatic Cancer, Need help with terrible pain
Hi, My friend is suffering with this pancreatic cancer that has spread to lungs and liver. Her life is ending. She is in the worst pain and nothing they give her helps. We are from the chicago area and heard about pain blockers. Does anyone know of where in chicago they do this and does it really help. We need to find…
neck cancer of unknown origian
My husband was just diagnosed with squamous cell carcinoma of the neck origin unknown. we have not been able to find anyone who has gone through this and would like to hear from a survivor.
Gallbladder cancer
Has anyone had Radiation therapy for resected gallbladder cancer and resected liver.I have had chemo. I am hesitating to do radiation therapy. any suggestions.
Surviving Duodenal Cancer
Hi. I'm a 54 yr old woman who was diagnosed with Stage IV (spread to liver and lungs) Duodenal Adenocarcinoma 1 year ago. I had a "partial" whipple in June 2009 and have been in chemotherapy since last July. My first six weeks of chemo were "alternative" treatments in a holistic hospital (I was too ill to have traditional…
Ampullary Cancer (Ampulla of Vater)
Hello everyone. My mother (56) was diagnosed with Ampullary Cancer, and she has undergone Whipple procedure (pancreatoduodenectomy) 2 months ago, and is getting ready to start with chemo and radio treatment. From the beginning, none of this made any sense: - she's non-smoker (though our father was a smoker, but they…
Spindle Cell Tumor
Hello all, I am advocating for my Mother-In-Law, who was just diagnosed with a Spindle Cell Tumor in her left breast. I have tried to Google this, and have found one little article about this type of tumor in the breast, and no instances of this type of tumor in someone her age. If you would like to read my MIL's whole…
Vulvar Stage IV B
I really need some help and support. My Grandmother was diagnosed with advanced stage 4B Vulvar cancer in Feb.2010. The tumor was removed and she contracted an infection at the wound site. She has already gone through 3 surgeries to try to get rid of the infection and nothing is working. The doctors have tried so may…
leomyosarcoma
I was diagnosed 2 and a half yrs ago with leiomyosarcoma. I had it removed ,also had radiation treatment. and so fare so good .I read a lot of articles regarding this cancer. but the other day I come across one that stated the survival rate was between 5- 10 yrs. I am quite concerned .. are they saying this is only if it…

Rare and Other Cancers

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