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stable psa with t-level drop
I am pretty much symptom free. No pain, fully continent and physically active. Follow up PSA's are good (see below). My last t-level has dropped from 311 to 202. I have no low t symptoms at this time. Pretty normal sex drive for a 71 year old (I think) but a 33% drop seems a little strange. I would appreciate any feedback…
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Update from Graycloud - almost 5 months post surgery
Hey everyone: It's been awhile since I've posted on my husband' progress. In a nutshell, he's doing fantastic! We just got back from a 3 week trip to Europe - walking miles everyday through 7 countries! You would never know he had surgery less than 5 months before we started this vacation. He packed his suitcase prepared…
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lymphocell
Any of you ever got a lymphocell that had to be drained? Getting one drained now and hope to get drain out July 6. It was pressing on bladder and my incontinence is already better.
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Biopsy – Concerns with lack of information from doctor
During my regularly scheduled physical exam as a fire fighter, the doctor found a nodule on my prostate during a DRE and referred me to an urologist. My PSA is 0.3 for three consecutive years, but he felt a follow up with an urologist was warranted. The first urologist did a DRE and based on my age (56) and lack of family…
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PSA result came back with 0.2 ng/ml - 3.5 year after RP
I went through RP (DaVinci robotic surgery) in October 2014. I was diagnosed with PC after biopsy results. at the time (Sept 2014): PSA= 5.2, positive biospsy cores: 3, T grade: T1c, Gleason score: 3+4 /3+3. PSA has remained <0.1 since the surgery. Update added the following PSA history. * 4/28/16 * <0.1 * 4/28/17 * 0.1 *…
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hair lose
I had radition treatment and lost the hairs in my private area will it grow back
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New Member Intro & Question
i was diagnosed with PC in 2016. Initially found during my annual physical where my PSA had risen to 5.7 from 4.2 in one year. (I should note my PSAs were always high because I’m a former competitive bicycle racer, however my year on year increases had never exceeded 0.1 - 0.2. No nodules on the prostate could be felt…
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Is Treatment Delay Harmful?
An MRI last month showed I have prostate cancer. A fusion biopsy requiring general anesthesia was scheduled, but I had a TIA (blood clot in vessel leading to eye) a week before. Due to anesthesia concerns--general anesthesia shortly after a stroke increases the risk of a recurrent stroke--the biopsy has been delayed 3…
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Anyone on Myrbetriq?
Since I have chosen to go with AS for the time being to treat my PCa, I still have the problems associated with BPH to deal with. I have been taking Flomax for about 8 months now and it seems to help, but because my urge is so sudden and strong, my urologist thinks I may have an overactive bladder as well. She said there…
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Conflicting Pathology Reports
I have a call into John Hopkins to discuss an interesting situation. John Hopkins did a second opinion of my biopsy slides confirming a 3+4=7 and increasing the percentage from 15% to 20% from my Santa Fe Pathology Report. However the MD Anderson Proton Center Oncologist is adamant that it is a 4+3=7 based on their…
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Vaxil Immunotherapy
Hi al Has anyone heard about Vaxil, the Isreali company? They have been doing trials in immunotherapy for cancer the reports say look promising. It seemed they got scepticism a few yeas ago for showing positive results too early in the trials, then fairly recently the trials showed very odd results then they say 6 years to…
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radium 223 and zytiga
I have been checking the use of aberatoron (zytiga) and radium 223 together, looks like it might be a fit for me and I might hang around a little longer.. Of course the cost would probably be to high.. oh well, so it goes ! ;~}
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After radiation
Having hard time understanding. After proton and brachytherapy, 3 month follow psa is 74ng/ml. The prostate was nearly 100% covered in cancer, so even with micrometasis you'd think a lot of cancer was killed, therefore psa would drop quite a bit, just like surgery would debulk most of it. Guess I need help understanding…
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52 Year Old - 5.9 PSA
Hi, 52 year old. Recently told by my urologist that my PSA is 5.9. Said I should wait 2 to 3 weeks and get retested. Do no ejaculate for 48 hours. Of course I am royalling freaking out and just know it’s cancer. Blood was drawn on Tuesday, June 12th at 8:30AM. I had had sex on Friday evening and again late Saturday night,…
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Casodex monotherapy
I have been successfully treating my cancer with Casodex (bicalutemide) monotherapy 50 mg daily for four years. I'm on intermittent treatment two months on, three months off. however, I have now reached the stage where the cancer mutates and apparently feeds off the drug. So I have stopped taking it and instead of PSA…
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Casodex: Taken at Morning or Night?
Greetings, I just started Casodex for the first time yesterday (at 4:00 pm) and I'm curious about the preferred timeframe chosen by others for taking this particular medication? Unlike many other meds, the side effects of a single 50mg daily Casodex tablet seem to persist for me well into the next day, such that they…
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Your thoughts about Total HIFU treatment as a viable option
I am finally at the place in my journey from being diagnosed in 2011 with prostate cancer to where I will be making a decision about treatment. I would like to know where to go to find out the best treatment centers (Stanford?) and where I might find the best research on long term survival. I understand that it is…
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Signet Ring Cell Cancer~~ HELP!
My father was diagnosed Friday with prostate cancer. Needless to say I am devastated and desperately seeking information. I will tell you what I know and excuse me if I am not speaking same language, but this is new to me. Learning as quickly as I can!!! Some background... he has been going regularly to same urologist for…
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Prostrate cancer and Multiple Sclerosis
I have been recently diagnosed with Prostrate Cancer and I am 67 years old. I also have MS. I was diagnosed with MS 4 years ago. In doing my research on what is the best way to treat my Cancer, I ask how does MS effect the choice of treatment. I have not been able to get a satisfactory responce to my question. So here I am…
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Friend Passed Away
A friend of mine with prostate cancer(Stage 4) passed away yesterday. He had pretty much taken a full course of various treatments (hormone, radiation, chemo). He never lost hope. He was always positive. He taught, sung, wrote, and directed, music. Also, he tuned musical instruments. He was a gentle giant, who did not say…
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Psa 74
Biopsy, all Gleason 9, 12 out of 12 cores positive 8 at 100% and 4 at 90%. Psa 67. Treatment, casodex for 6 weeks, 25 rounds of proton followed by brachytherapy. Results, 3 month follow up psa 74. Wishes, hoping it needs more time to work, next psa in September. 2 bone scans 3 CT and 1 MRI all clear. Thinking treatment…
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Confused by lab results
I decided to get a PSA test as my uncle passed away from PC at the age of 68 this year. I am only 44 but for the last 10 years I have noticed that in the mornings my urine stream is not as robust as it used to be. My total PSA came back at 2.3 but my total free PSA percentage is 17% My family doctor did not seem concerned.…
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jpeg images
In case anyone wants to post jpeg or png images in their comments... zThere are two ways... upload using an image hosting site, or upload using CSN's file uploader. Images stored on your device would gave to be uploaded to an image hosting site. Photobucket and Flickr were the most widely recognized, but they have become…
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Dry Night
Well, my RP was on 3/20/2018; catheter out 3/29/2018, when I got up this morning the pad was dry. I even let my wife check to make sure I was not dreaming. This is a first for my journey. Completely dry after a night. I have been wearing the pad and jockey/boxer underwear during the day (except when I am outside cutting…
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AUS800 and scar tissue
Hello, posted this to wrong site I think, anyway here I go again. So sorry for repeating myself. I have had surgery for scar tissue removal in the urthra / bladder area. Hopefully this procedure will allow me to go ahead with the aus800 fitting in the coming months. I am in Canada so who knows how long that will be. I am…
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Newly diagnosed with prostate cancer
I am 62, physically fit, and found out I had a rising psa when I went in to get blood testing for hip replacement. My psa rose to 4.4 from 3.0 the year before. A urologist saw me on a Friday before my hip replacement the following Monday. His digital exam found an "abnormality" on the right side of my prostate. He…
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How long to get a new PSA test after a biopsy
I was recenlty diagnosed with prostate cancer. I had a PSA done in September 2017 with a score of 4.5 Again tested in February and score rose to 8.5 Got the MRI and then a biopsy on 5/7/2018. Geason is a 3+4 Went to a nationally recognized cancer hospital. They drew blood for a new PSA test. It was 15 CAT and Bone scans…
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Here is my Pathology report after removal
I copied my Pathology report from my prostate removal. Its on my website. I don't know what It all means but I'm told its a pretty good outcome. 3 month psa this week was at .09 and appointment with Surgeon at KU Med is next week. Rick http://www.mercedescodereader.com/Prostate.html
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PSA ‘<‘ value meaning
i had RP if feb 2017 (Gleason 4+4 with intraductal features - decipher very high - .93). Very fortunate to have been <.008, but layest test which was done at a different lab reported a PSA of <.064. Does this mean the assay is incapable of detecting less than .064, so I am likely still undetectable?
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PSA results 3 months after surgery
First PSA after surgery 3 months ago - .09 and my meeting with surgeon is next Wednesday. Don't know if that number is acceptable or not.....but one thing for sure is I'm not going to spend hours and hours pounding the internet. Comments appreciated. Rick from Kansas - 59 years old