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Prostate Cancer

Archives for May 2018

Proton scatter beams, pencil beam (G3)or Photon Treatment
My final consult today was with a radiation oncologist at UNM Cancer. I also had a follow up question to MD Anderson. My question to MD Anderson was can I have a varied schedule so that I can travel home for a 3 day weekend. The answer is that would depend on what machine I was recommended for the Proton scatter beams,…
Interesting Clinical Trial Immune Cell Stimulation
I did a final consult with a Radiation Oncologist at UNM Cancer today. He thought I would be a good candidate for this. It looks interesting but would be with traditional Photon versus Proton. I am leaning towards Proton, but as a promising 3rd phase trial I thought I would share with everyone. See my Proton post for my…
Diagnosed x2 weeks ago...request opinions
Hello: I've bren reading this forum for a couple of weeks and am very impressed with the information that I'm seeing. My GP was concerned about my 1 year rise in PSA (from 1.98 06/2017 to 3.37 03/2018) and arranged an appointment with a urologist. The urologist did a DRE and located a nodule on my prostate. One week later…
First MO Appointment After Treatment Start
Hello to all. After the flurry of activity and anxiety following my husband’s PCa dx in December 2017, it now seems like “not much” is happening. Of course there’s a lot happening but as the wife, my initial role of research and dealing with insurance issues has been fulfilled. It feels like a lot of waiting now. Paul has…
catheters
Anybody here using intermittent catheters?
Newly Diagnosed as "High Risk" and Confused Beyond Words
Greetings to All, I am a 66-year old, newly diagnosed "high-risk" prostate cancer patient, that has only just begun the overwhelming research and learning processes associated with this wildly complex disease, and its many forms of potential treatment, based upon ones own unique biopsy/PSA particulars. Hence, I'm posting…
Going with Proton Treatment after 3 months of research, consults and tests
After a very short AS (3 months) I started hormone treatment last week at MD Anderson Proton Center in Houston (3 month shot of Lupron and 50 mg Bicalutamide). During that time I was able to read most research and could write a short book on PC. I will have to do 48 Proton treatments with a low dose proton to protect the…
3 yrs 2 failed tx.What should I expect
My husband was diagnosed 2016 with gleasonn 7 prostate ca (psa 11)and tx with external beam radiation and inplaqnt seeds.22 2017 bpsa up 22 and pelvic lymph nodes involved.tx increased strength radiatiom and lupron. after tc psa 1.7 2018 psa back up 3.4. we have a bone scan and CT scan ordered for next week and then see…
Daily Cialis
My doc finally was able to get approval from my insurance Aetna for daily use of Cialis 5 mg after about 5 months of battle with insurance company. Few days ago, I was called by mail in pharmacy and asked how I want to pay for my mail in order? I gave her credit card number then I was told I have to pay $937.50 for 90 days…
Actually Felt Normal
I was laying down on the couch and I actually felt nothing as far as the urinary tract was concerned. Totally normal. I thought for a second that I had broke something. So I took in 16 ounzes of water just to make sure everything was still working and it was. Today, while I was cleaning up some things, I felt a normal urge…
First PSA Test
My pathology report reflected confined disease. Had surgery February 15, 2018. Lymp nodes clear, seminal vesicles clear, no extraprostatic extension, bladder neck clear, negative margins. Gleason 6/7 4+3 5% tumor volume. Went for first psa test May 16, 2018, which revealed a 0.18. the doctor would like to see me for a…
Diagnosed with prostate cancer and worried!!!
Dear all, I was diagnosed with prostate cancer a few days ago and my urologist says, after introducing the results of the biopsy, that I need treatment. My last PSA was 5.76 and out of 12 cores, I have 6 cancerous cores. All are grade T2 and their Gleason scale score is 3+3=6. My urologist says all these cores are located…
How does your treatment change if you find out you have mets
This you may find as a odd question but this is what my Ortho Oncologist asked me. About a year ago after complaining about hip pain After prostate radiation I was refered to a Orthopedic. They he did xrays and said I had atheritis in my hip and I should have it replaced. But said that he wanted me to have a bone scan I…
non-toxic therapies to consider adding to standard of care
Provided below are some video links below to a presentation by a Stanford trained oncologist and two researcher who have developed overlapping non-toxic therapies that appear promissing. There have been limited clinical testing and a few small trials which indicate that low carbohydrate diets, restricted ketogetic diets in…
PSA
Hi everyone, my man is a 3 years Prostate cancer survivor in good health, 64 years old And a wonderful person. Today his GP called him to tell him that his PSA when from 0.01 to 4.0 in 6 months He had his annual physical at the beginning of april and he just got notify of the results today. I’m feeling very upset with him…
T3 MRI ACTIVE SURVEILLANCE
Just got my MRI results back and this is what was found. 1Moderate BPH and gland enlargement. 2. A couple of small lesions within the left transition zone and left posterior peripheral zone in the mid gland that shows low t2 signal and only subtly restricted diffusion. These are marked in DynaCAD and may correspond to the…
Is it just me?
Going on 8 months since robotic prostatectomy and all is as expected. It hasn't been a picnic and there are still incontinence issues but PSA is still less than .01. The incontinece is improving. Faster at first,but then I never even see the improvement except in retrospect. Three to six weeks will go by and I realize that…
Question about Lupron!
Hello! My father was diagnosed last October with metastatic prostate cancer (after two negative biopsies, it ended up causing a fracture in his lower spine which led to bone biopsy). Lesions in lower spine, a rib, and left hip. He’s had two Lupron injections (every 3 months), with follow up bone scans (first showed no new…
Long term side affects of EBRT
well thought I was heading for mono treatment ..until 3 weeks ago...now it’s it’s either surgury which they feel very confident it will be successful..or it’s radiaTion combo ..1 hi dose internal and 25 low dose external.havent had the chance to talk to radiologist yet hsve app on 23rd..anyone know where I can find out…
The prostatic urethra
Will someone please educate me on the prostatic urethra and TURP? This is a membrane that passes from the bladder neck through the prostate, where the ejaculatory ducts and prostatic ducts empty into the membrane, the membrane then joins the urethral membrane at the base of the prostate. But what happens in TURP?... I can…
Will AMS800 AUS Replacement Dictate Bike Seat Choice?
After 5+ years my AMS800 is no longer working well. I'm scheduled to have all three parts replaced soon. Until they unzip me to look at the existing parts, the reason for failure will not be known. Furthermore, my Uro states it may be necessary to replace with a double cuff. I have speculated that bike riding over 6k miles…
TIP Testosterone inactivating pharmaceuticals Treatment Option
One of my consults will be with the Dr. Turner of the Mark Scholz group in L.A. (The Key to Prostate Cancer, 2018 and The Prostate Snatchers). I am also meeting with Radiation Oncologists at MD Anderson for Proton and UNM Cancer for Photon therapies. I was recommended not to have surgery and RT may also have some extra…
Firmagon + Lupron 3 month + Radiation Success Stories?
I'm 54 and got hit with a Gleason 7 at a point in my life where I am in pretty good shape. I just finished my month of Firmagon and got my 3 month injection of Lupron today. Next week I start radiation. I'm happy I found this community, but I'm also surprised at how many cases of prostate cancer have recurre--even after…
just saw on TV - new guide lines for prostate cancer screening
seemed to me that PSA should not be chec ked before 55 or after 70 ;; that is what i heard on NBC news.. Seems to me that is what doomed me to stage 4 metastatiic prostate cancer.. i would get medicare and insurance in Kentucky then when i went to Florida for the winter my insurance and medicare didn't work well.. Sp, i…
Incontinence
What I learned about incontinence and prostate surgery and how to help overcome it, if not prevent it. I was incontinent as a result of prostate surgery. I did not expect this at all from the pre-surgery research I did and from discussions with my doctor and his staff. This is not to say anything went wrong; I am fairly…
3 years ago today....
My "facebook" memory today had a quote from 3 years ago - the day we got the results from my husband's first MRI guided prostate biopsy: (We are faithful followers so I hope this doesn't offend anyone): "Our God is an awesome God. He reins from heaven above with wisdom, power and love. God is so good today and everyday!…
Can someone please help us understand our results
My husband got a call yesterday from a urology PA and she made his 3mpPri sound dire. We are waiting for an appointment with a urologist oncologist but it may take a couple weeks which has us in knots over here:( hopefully some of u who have more knowledge on this can help me better understand the reading of the mri and…
psa 7 6 weeks after robotic prostatectomy
Just wondering if anyone has had similar results and what your opinion is. age 50 11/17 routine PSA 21.3 12/17 biopsy 15 of 19 core positive and gleason 3+4 3/21/18 robotic prostatectomy pathology report: Adenocarcinoma, Grade gourp 5, Gleason 4+5 involving both lobes and associated with extraprostatic seminal vesicle…
Spouse Upcoming Robotic Surgery
My husband is having robotic surgery in 4 days and I must admit I am nervous for him. He is in very good spirits and ready to move forward with the process. I would appreciate any suggestions/insight you can share with making his recovery a bit easier. What type of foods did you eat upon returning home?
Long term self-catheterization is okay
I have noticed some comments on self-catheterization and I wanted to share some information that might ease some fears. Although it is inconvenient and perhaps a little scary long term self-cauterization is okay. I have done it 6 times a day since 2000 when it was discovered that due to some nerve damage (disk disease) I…

Prostate Cancer

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