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PET Scan denied by Insurance - still waiting....
Hello everyone... Well, Dad's insurance denied the PET Scan ordered by his oncologist. So, now we wait.... With his pain meds doubled, and an appointment this Thursday with the oncology radiologist - for palative treatment - it is hard to keep a happy face. Dad has good and bad days; bad days - he only leaves his chair to…
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Provenge
I had written about a month or so ago to see if anyone has gotten treatment with Provenge. I completed treatment at the end of March and was wondering if anyone else has been treated with this medication and what their doctors were saying and how they felt. Thanks for any information you can provide
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Eligard for 2 yrs complete. Cycling helps.
Hi all, It must be 18 mths since I last read through the group to compare my experiences with other men. I had Gleason 9, PSA at about 8.0 before beginning testoserone suppressing pills for 6 weeks, then I began 3 month shots of Eligard under belly skin. The Eligard website has graphs showing the measured levels of Eligard…
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starting treatments.. what can I expect?
Have prostate T1C and one lypmh node positive N1. No distant id'd M0. I have been put on casodex for two weeks and next week get a shot of eligard? 60 days later will start on radiation ebrt 5days/wk for 8 wks. so far no sypmtoms and no side affects. I know that will change. Any info, advise would be appreciated. All new…
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Finished Rads
Finally finish my 7 weeks of rads.On April 19th. Family and friends threw me a congrats party on the 21st.Now back to work full time + , doing well. just the fatigue,and some urinary/bowel inconsisties but thats normal. Other wise feel great!!!! Thank all of you for your support. Trying to put together a team to walk/run…
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Cabozantinib (XL184) .......Can't come quick enough!!
If this is an indication of results of clinical trials on this drug, then it needs to be on the fast track for FDA approval. http://abclocal.go.com/kabc/story?section=news/health/your_health&id=8625186 Copy and paste this link into your browser.
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turned 50 many more to come
Celebrated the big 50 yesterday. While I was never much for birthday celebrations after my PC diagnosis last year that changed. I am 6 months post RP and numbers doing well. I am running , eating well and lost weight. Overall the experience has done a lot of good things for my overall health. Still have the posability of a…
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UPDATE ON LATEST PSA RESULTS AFTER IMRT
VGAMA & KONGO LATEST BLOOD TEST RESULTS>>>0.30 THE total PSA went down again from 0.38 Is it possible to keep going lower---wonder when NADIR is reached?
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Retroperitoneal adenopathy & bone mets
My dad had RP in 1998, following a PSA of 19.0 -- then, in 2007, it reoccured in the pelvic lining. He suffered 40 radiation treatments (broad spectrum to the pelvic gurdle), causing multiple issues. His PSA has been 0.01 since 2007. However, a recent CT scan, revealed bone mets "up & down" his spine, esophagus wall…
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can someone explain doubleing time
had prostate removed in 2010. radaition in 2011. november 2011 psa was.03 at the end of feb. 2012 psa was.6 . gleason score were 9 in 2010 with a psa reading of only 1.6. going for blood work this week. expecting psa to be either .7 or .8. seems like psa goes up every 6 weeks. thanks for all your help
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Active Surveillance Update - 18 months post diagnosis
Hello all. Felt an update was due. I was diagnosed in August 2010 after a biopsy showed 1 of 12 cores positive, Gleason 6, 5% of tissue involved. June '10 PSA was 2.3. Father had PC. General health good, age 56. Highest PSA was 6 months earlier at 2.9. In October '10, after several months of fairly strenuous investigation…
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Treatment options with diagnosis at relatively young age.
I was diagosed last week after biopsy with 3+4 result. I am 51 and weighing options. Have always valued quality of life over quantity. My first instinct is to let nature take its course. It was not long ago we did not have routine PSA testing that started me down this road. Doctor recommends robotic surgery. He says at my…
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Interesting stuff
Hi all. Do hope this link works for you. Aspirin and pomegranate as delaying treatment for Pca and other cancers. http://www.express.co.uk/posts/view/315517/Proof-Aspirin-is-a-life-saver
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follow up on my radiation/HT
I am gleason score 9 (4+5) in six cores on left side prostate decided on HT and external beam radiation as treatment Had 2 shots of Firmagon and then a 6 month shot of trelstar Have had 30 radiation treatments 15 to go no real problems worst problem is the Hot Flashes from The HT They want to continue HT for 2 years Has…
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Testosterone Use after surgery
Hello Everyone, It has been a good while since last posting. Had my prostate surgery in Aug. 2010. Post op--4+3=7 with tertiary pattern 5. My urologist said in our first meeting after surgery--we'll be watching you like a hawk. So, every 3 mos. I have had blood work done. Except for first result which was very low (don't…
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Buffett Diagnosed W/Prostate Cancer
Warren Buffett just disclosed to Berkshire Hathaway shareholders that he has been diagnosed w/early stage PCa: http://www.latimes.com/health/boostershots/la-he-buffett-prostate-cancer-20120417,0,2463975.story http://www.forbes.com/sites/steveschaefer/2012/04/17/warren-buffett-discloses-prostate-cancer-diagnosis/ This…
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suggestions for 2nd opinion LA area
Hi - My Dad has prostate cancer and he's looking for a good second opinion in the Los Angeles area, thinking about City of Hope or Loma Linda. He's got Kaiser and is really starting to vascilate between implant radiation seeds and external radiation. His PSA has been as high as 13, but that was fairly soon after the second…
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Radiosurgery and sharp pain in ribs
I have had ten treatments and have two more to go. Today Is the first time I have felt like I am losing. On top of everything else I am getting these stabbing pains in my ribs. It is like someone is putting a knife in my ribs, lower right side, and pulling it out and doing it again. When talking with my RS doctor she is…
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PSA reading of 8.5
I know it may sound weird, but at 68 years old, last Friday was the first PSA test I have ever had it was 8.5 and when I started reading up on prostrate cancer and what a normal PSA reading should be, 4.0 I wonder if there are any survivors out there that can relate to my situation, I go to a urologist today to discuss my…
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Urethral obstruction
I had my radial prosectomy on January 23, 2012. Got clear margins and all 3 cancer places turned out to be 3+3 when biopsied prostate. My post-op PSA was 0. Now I have another problem. Urethral obstruction or maybe bladder neck. My bladder holds at least 350 mm urine and I can hardly urinate, but have no urgency. I was put…
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Side Effects of Hormonal Therapy, Impotency and Intimacy with your better half, Need some good advis
Hi, Well its been a while since I posted anything on the forum but I really need some advise on what to do to see what options I may have in being a man while I have been chemically castrated by Casodex and my Hormonal treatments. I understand that this treatment is the only real solution to stopping my advanced metastatic…
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Follow up note
I originally posted a few days after my initial diagnosis with prostate cancer and you all provided extremely helpful advice. Thank you very much for that. I hope I can pay it back/forward in the future. Since that posting, I have had a second opinion with a very well respected surgeon and radiologist at BIDMC in Boston.…
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18 Radiation treatment done 22 to go!
Just thought I'd give another update, since it almost the halfway mark. Treatment is moving along and side effects have not been terrible, hot flashes from the lupron, some diarrhea, & difficulty urinating (takes long time for stream).....and still gets up every hour on the hour during the night to pee. Doctor has changed…
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What do you think?
Hello all… I had RP surgery April 2010 and zero PSA until: August 2011: 0.2 December 2011: 0.1 April 2012: 0.1 My post surgery stats are T3B, 4+3 …What do you think?
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The future of hormone therapy, plus other topics by Dr. Myers
http://askdrmyers.wordpress.com/?mkt_tok=3RkMMJWWfF9wsRonuKzIZKXonjHpfsX67eQpWLHr08Yy0EZ5VunJEUWy2YIATdQhcO
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3 Weeks and feeling a bit down!
Hi there. New to this site which I find very helpfull, but please excuse me if I'm not in the right section etc! Diagnosed back in Nov 2011 but held off laparoscopic surgery till 20th March while my wife recovered from breast cancer op.....never rains but it pours!!! After long debate went for nerve sparing lap over…
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To Vasco about Zytiga
Hey, just want to get a update on my trip with Zytiga. It's ok, having some pain and being tried.I'm walking up to a 1 1/2 a day. I think it's having effect on my liver! The drug is better than the last one I took!!!Go to VA Hospital this week for more blood test and first of May to MD Anderson. My PSA is at .3 and holding!
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rising psa 8 years after rp.
I had rp 8 years ago and my psa has always been -001. Now my psa has risen to .02. Should I be worried. Have not slept much
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Sling and implant
I am 52 y/o who is 1 y post op from DaVinci RP . I have passive leakage along with stress leakage. Still impotent, had problems for years could not get an erection without help. I am about to have an AMS Advance sling in May along with a AMS penile implant. After reading some of the post I am a little concerned. Has anyone…
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PSA still rising after RP and RT - when start HT?
After RP in 2003 (Gleason 3+4) PSA was zero for about 3 years. Then started rising. At 0.15 had RT of prostate bed. Treatment had absolutely no affect on PSA rise. Today reading is 0.5, rising at a rate of about 5% per month. Oncologist says HT is now needed, but suggests delaying until PSA gets higher - to around 5.0. I'm…