Prostate Cancer
Discussion List
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Bone & Joint Pain
Diagnosed with prostate cancer January 2010, Initial CT scan showed metastatic lesions. Bone scan lit up like a Christmas tree. Biopsy showed 2 of 12 cores at 80%. Gleasson score was(5+4) 9. PSA was over 700. Initial treatment was Flutamide & Lupron. Response to medication dropped the PSA to 7. Flutamide was discontinued.…
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Was treatment the right choice?
I was diagnosed with Prostate Cancer on June 15, 2009 at the VA Hospital in Madison, WI. Initially they told me I was had a Gleason score of 8 which is aggressive and fast growing. It took the VA until Oct. 13, 2009 to finally surgically remove the cancer that engulfed 60% of my prostate. In Jan. 2010 they did a PSA on me…
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Dennis Hopper
I just saw a notice on MSN that Dennis Hopper died today with the inference that it was due to prostate cancer. It said he was diagnosed Oct 09.
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2nd PSA test from 12/29/09 Surgery
A BIG FAT > .01 NON-DETECTABLE! Praise be to God! Keeping my seat in the ZERO club! Randy in Indy
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Cyberknife Procedure Update
At age 59 I was diagnosed with PCa in mid-March after my PSA had risen from 3.8 to 4.3 in 18 months. 1 of 12 biopsy cores showed adenocarcinoma with 15% involvement. Gleason rating was 3+3=6. DRE was normal. Staged at T1c. I had a prostate volulme of 47 ml, a PSA velocity of 0.23 ng/ml/yr and a PSA doubling time of 9.3…
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Vacation Needed?
For the last 18 months beginning with the positive biopsy in Jan 09 I have been occupied with cancer it seems every day. This is Memorial Day weekend. I a going to see if I can just hang this cancer stuff up for the next 3 or 4 days and forget it. Not easy with the leakage and hormone effect that are constant reminders of…
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Robotic prostatectomy, now radiation? Outcomes?
Age 57, robot protatectomy 2 weeks ago. Still feel very rough - maybe have a uti, going tomorrow for a urine check Pathology report - pT2a - unilateral involving 1/2 of one side perinueural invasion present (this is not good) lymph-vascular invasion not present gleasons 3 & 3 tumor involved less than 2% of total prostatic…
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Radiation after surgery & Prostascint
Looking for any feedback from people who have done radiation after surgery. Briefly, my surgery was 4 months ago. PSA before surgery was 6.8. PSA 6 weeks after - .33 and 15 weeks after .38. Gleason was 4+3=7. Extraprostatic extension. Margins - "uninvolved". Stage pT3b. I've struggled with incontinence since surgery but if…
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Looking for a good Kaiser Surgeon for Radical prostatectomy (Davinci machine)
Hi, New member here and so far the discussions have been very informative - thank you does anyone know of a very experienced Doctor at Kaiser for this procedure? I have just read from the discussions here that a doctor with numerous experience with this procedure should be considered. Anywhere in the Bay Area (San…
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Looking for Post-Op Feedback
Randy, Erisian, bdhilton, lewvino... to all - What's up CSN fam! I was looking for some feedback. I'm now currently 1 month post op from Da Vinci. I will going for my first PSA 9 Jun. Post diagnosis - initial Gleason 7 (3+4) downgraded to Gleason 6 (3+3), negative seminal vesicle, negative on the lymph nodes...staging went…
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Acupuncture for E.D.Rehab?
Hello to all my brothers.My first post.I am 6 months post daVinci.Been using the Pump and pills for past 3 months.Has anyone had positive results with Acupunture for recovery from ED?Do you know of any trustworthy studies of this?I spoke with a Chinese Dr. in Tampa who said she can help me with the nerve trauma and…
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REHAB
I just want to say, that anyone contemplating surgery (DaVinci or open) needs to go into this knowing that they have DAILY work ahead of them. Daily kegel exercises, daily use of the vacuum pump (which our insurance actually paid for! and our urologist had already checked out and had it waiting for us at time of cath…
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Testimony Before House Appropriations Committee
On May 20th, 2010, Dr. Jonathan Simons, CEO of PCF, made a statement before the House Committee on Appropriations, Subcommittee on Defense, regarding the Prostate Cancer Research Program of the Congressionally Directed Medical Research Programs. You can read his testimony here.…
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Any Vietnam Vets that had this surgery?
I had the surgery in Feb of this year. C&P assesment in Dec of 09. Still now receiving compensation at this point. Prostate cancer is a "given" with Agent Orange. Still changing pads 10-12 times a DAY! Anyone file for SS disability due to this? I for one CANNOT work right now what with changing pads so many times a day.…
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Calypso treatment
Anyone have Calypso treatment for PC? I an curious as to the side effects after treatment. They tout fewer side effects in their literature, due to the ability to stop radiation while the prostate is moving. thus less collateral damage to other nerves and organs. If this is really true, it seems like a great option.
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From Sonny- Update with latest testing and Oncologist Visit Today
Hello my PCa brothers and sisters, Haven't been here in a while and I apologize. Been following my son's end of season baseball tournaments and getting him moved back home. Big adjustment on this one I tell you. His team made the regional's and was knocked out with a 2-2 record. He pitched well and garnered a little more…
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The Pad Diaries
Exciting topic, I'm sure. For me, I have started a daily pad diary noting time of change, activity, and saturation level. I have been at it now for a full 24 hrs. Hey, you!! Stay out of my Diary!! as a totally different kind of meaning now. I hope this will help in the evaluation process as I get more serious about getting…
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Extreme pain and retention
I am 3 weeks post RP and had cath removed at 7 days and was dry from day one with normal urinary functions. A week later, I went to bathroom and could not urinate...pain was awful. Dr. called in antibiotics which gave relief almost instantly and I went a week with normal functions. Then, it came back...couldn't go, pain…
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Viagra and Hearing Loss?
Maybe a link between hearing loss and viagra and other ED meds: http://wcbstv.com/health/viagra.study.viagra.2.1706310.html Any concern? Just another bump for PC men.
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unbelievable
I have not seen this on the board as of yet, so let me see what your opinions are. My husband had a radical prostatectomy via robot on April 10th in west LA Kaiser. Had surgery early Sat morning was home by Sunday evening, amazing. Surgery went well Dr said cancer confined to the prostate, removed 7 lymph nodes and spared…
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treatment decision for those with very low or low clinically localized porstate cancer--recurrence r
untitled.JPG I hope that this works, if not let me know your email address and I will forward to those who request........Ira shalohatoyou@yahoo.com this information is from www.nccn.org There is a grid discussing protate cancer at various stages.......I haven't read it yet, but I believe that it will be very informative.…
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Chondroitin Sulfate and Prostate Cancer
I was on another forum that was discussing the supplement ChondroItin and Prostate Cancer. Seems some of its members had been taking a Glucosamine/Chondroitin supplement, not knowing the link between Chondrotin and Prostate Cancer. URL for one article: http://www.malecare.com/new_page_26.htm Excerpt from the Article:…
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anyone else had a white plastic clip come out of penis?
friday, about 1 1/2 years after my da vinci procedure, i had a blockage in my urinary tract--for about 3 hours. while using a restroom at Target, a small plactic clip, about 3/4 of an inch long, 1/4 inch wide, came out of my penis. at the Doc's office yesterday- he ran a scope up my tract and said there is one more clip…
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Never give up!
This year, in celebration of Father's Day, consider giving the gift of research. Make your donation before June 14th and Prostate Cancer Foundation they will send a card to acknowledge your thoughtful gesture: •If you make a minimum donation of $25, they will send a special Father's Day card to the recipient of your…
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Post Radiation
6 months ago my husband had radiation for his prostate, he had a gleason score of 7. Now he has had alot of bleeding from his rectum,has anyone else heard of this being a side effect or common?
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Cialis
Hubby is liking cialis for the post-op ED. Where have those of you who are on Cialis been obtaining the drug? Thanks for your replies. If you could also list prices and where you obtained.
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brachy
Had seed implant on May 17, took catheter out May 18th, urinated 2 hours later on my own. no pain, just a little nausea, praise the Lord. procedure done ar Rex in raleigh, by Drs Bennett and Hoffman. very good experience with all concerned.
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Dencil Cath removal ~~~~
Just an update... Dencil had the open prostectomy 2 weeks ago so....he had his cath removed at 9am this morning , so it has been 5 or so hours...so far he has been dry.... Dr told him this morning to do his kegels morning, noon, night and at stop lights, and commercials...I said" Do you know how much he watchs tv? ha~~…
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Just When You Thought You Had It Figured Out .... Dropping PSA Level
After having a biopsy in February because my PSA had risn from 3.8 to 4.3 in 18 months the pathologist discovered 1 of 12 cores with adenocarcinoma with 15% involvement. DRE was normal and there were no physical symptoms. Gleason score was evaluated as 3+3=6. Staging was evaluated as T1c. A Bone scan, full blood panel, and…
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My Father has metastatic prostate cancer
Hi I just joined this site today in hopes of helping my Father. He was diagnosed with prostate cancer 7 yrs ago. It was treated initially and then it came back into his liver. He now has a tube thats draining the bile off of his liver. The past 5 days he has had hiccups and extreme nausea. Does anybody have any ideas or…