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Prostate Cancer

Archives for March 2010

Looking for Answers in Virginia
These discussion boards are very informative! I found out the dreaded news over the cell phone during my son's soccer coach meeting. Because I didn't really grasp the reality of the situation, amazingly, I told the doc...he need to call me back because I was in the middle of a meeting! After the reality soaked in (10…
Timing for surgery after diagnosis
Everybody is so helpful here! I read Dr. Walsh's book and it was so facinating, I read it in like 2 days (and it's a big book). I know that for me, surgery is my best and only option. I am 51 and have a long way to go in this world... I am now contemplating the other choices over which I have control - my Dr., the Open vs,…
So what about HIFU????
I see alot of people on here mentioning HIFU...and saw one tread where someone was talking about it being the next thing to a total cure...and yet someone else telling them to stop pedaling their unapproved cure...??? I am perplexed.... Please someone tell me what it is and if it is a good or not so good treatment??…
Missouri Folks look for best Care
Just wanted to let everyone know that we are from Central Missouri (close to Columbia) and if anyone knows of great dr's or treatment centers or have heard good things about any , well please let us know....we also border Illinois and kansas. I am also curious to hear from anyone who has had the Turp sugery and then found…
PC- Hitting Back... A little fun?
If you have not seen the video from Movember, take a look: http://www.youtube.com/watch?v=He_Ie5Mi6xA You are looking for the video "We Know Where you Live Prostate Cancer" In the early days of diagnoises this video was a good outlet for me. I hope the link works. I just tried it and it works for me. If you are not familar…
I'm New Hubby just been diagnosed /looking for best treatment
Yeah here we are... We so need a Real People Board that we can find real life information and experiences from .... thats why I'm here...Hubby is not so internet excited ...but he is a master at playing Free Cell!! Hubby has had a high psa forever...2 negative biopsy's then started having urinary problems...and…
oral after laparoscopic rp
hi i seen questions for intercoarse with leaking urine what about having oral my girlfriend was wondering on that is there any issues.i'am 2 1/2 weeks post op not much action going on yet she wants to try but i'm sorta worried.doing my kegals and my pad usage is only when i go out.thanks for sharing your info.
Relay for Life
Tonight I attended a meeting for the American Cancer Society RELAY FOR LIFE. Apparently events are sponsored in many geographic areas.....A few of the towns near me will have events during the summer.......I attended last year, it was pretty nice. If you are interested in participating contact the American Cancer Society,…
Surgery
I just had my surgery on Monday 3/15 (birthday of my son who turned 20) with Dr. Samadi. I could have changed the date but my son told me that it was the best birthday gift he could receive(the life of his father, I almost cried). The surgery went well and I was released from the hospital the next day. I still have to get…
When did you start ED therapy?
I am sure there are several threads out there but help a brother out…. I am 15 days out from surgery with an appointment to see my urologist on Friday (tomorrow). I have decided to start with ED drugs (and my doc said he would have given me these the day he removed my cath at my home and recommended 20mg Cialis 3x week)…
Visit with Dr. Mike Koch
He is the director of the department of Urology, Indiana University Medical School and Hospital in Indianapolis. His CV is 30 pages long, most of his research is in prostate cancer. The visit with him was quite interesting. He said that in his opinion, the top two options for Jesse were 1)DaVinci surgery and 2)active…
Any workout programs/recommendations for after Surgery?
I walked about 3.5 miles today (4 separate walks totally 2 hours…not setting any speed records) and I prefer to lie down to sitting (doc said it was better for me to lie or stand instead of sitting the first few weeks if I could) I have some exercise programs but was curious what other used on this site for regaining their…
Provenge News
http://www.zerocancer.org/site/News2?page=NewsArticle&id=11424 Updated Survival Data on Provenge for Treatment of Hormone Refractory Prostate Cancer Presented "These data confirm the survival advantage of Provenge over placebo for men with hormone-refractory prostate cancer. It is anticipated that these findings will…
HELLO- Sorry for the long post, just got the news.
Hi! Had an escalating PSA starting middle part of last year. From 2.8 to 4.34 last month. 2 biopsies, 24 core samples later, still zero cancerous cells but lots of high grade PIN. J. Hopkin recommended a third one. My urologist did a "saturated" biopsy, 30 samples! Got the news yesterday-hence my user name. 3 of the cores…
Input on Declining PSA needed
Hello All, My surgeon has me scheduled for the robotic surgery in early May. He decided I should get another PSA test . Interestingly, my PSA at time of diagnosis ( Dec 09) was 5.02 (one core out of 12 being positive.. less than 5% volume and a gleason 6 ) now it is 4.120. I am taking Rapaflo. Any input on this change and…
Cath came out today...12 days since surgery
9am appointment to get the old ball and chain removed today and my post surgery pathology report....On the way to the doctor’s office his nurse calls me and tells to call the Doc because the entire office building (a building connected to St Joe Hospital) has been without power since the weekend!!! I So I called the doc on…
Proton Sites, Proton Therapy
There is a proton site in Indiana- here is the address; http://www.mpri.org:80/ I will add more info on proton therapy as I have time. -Trew
One Positive to Eligard/Hot Flashes- Finally!
I just figured out the one blessing connected to being on Eligard and having hot flashes and here it is: No colds! I figure it out today and it works like this. A hot flash feels like a mid grade fever- about 100- 101 degrees when it first hits about 15- 20 times a day. If I do pick up any cold germs, about the time they…
Three Days Dry
Hi all 3 days in a row Dry yahoo will try no pads for my 3 days of work ,i think my firm fitting underdaks is the key .I found loose fitting underpants made me very uneasy and when walking I didn,t have the same confidence or control . I only say this as it may help others who feel uncertain when out in public . Dry every…
Backslide
I was planning on losing the 1/day pad in the next few days then got a glorious Texas cold. Texas colds are difficult to shake since this time of year it can be 75 one day and 25 the next. Anyway, with the coughing, sneezing, antihistamines and cough suppressants I am back to 3-4 pads a day. Does anyone know if…
Possibly Laid off with UnitedHealth Ins. any suggestions for pending surgery date
Hey Everyone, As usual when it rains it pours, I may possibly be getting laid off from my employer, I have UnitedHealth Ins. I was wondering other than Cobra is there any other assistance for someone unemployed on Cobra about to have Robotic Da Vinci. I live in Florida. Any assistance would be greatly appreciated....I'm…
Active Surveillence & Low Dose Naltrexone (LDN)
I've been lurking here for awhile and thought it would be useful to post info on my situation. FWIW, I'm not looking for condolences or advice. I'm just posting this in case it will be of use or value to anyone who reads it. I was diagnosed w/prostate cancer following a biopsy on 1/28/10. I'm 59 and the diagnostic stats…
Low Cost For ED
My doc has me on Cialis, but my ins. won't make the pay out at $80 for three pills. All I have is some samples that I am breaking into 1/4's and take every other day. I am post Di-Vinci on 01/26. Any suggestions?
The Return of PCa: When?
I know a man who had his prostate out at a very prestigious hospital with a good surgeon back in 1998. This man is now in his mid- upper 70s. His PSA is rising and he knows the cancer has returned. He is not interested in any treatment at this time- he is going to let the stuff run its course. But the point is this. At the…
I love it when a plan comes together
I had my daVinci in Pittsburgh on Friday, 2/26/10. Surgery went well and I was in my room by 13:00 (I think.) I had an extra wait because I requested a private room. Nurses in recovery and on the floor were excellent. First night went well. Good meds - morphine and percocet. Unfortunately, I took some bad advice on…
Pittsburgh, PA survivors
I've been reading the different posting but most seem to be from other states. Are there any survivors in the pgh area that could give some advise on their decisions/experience. Can't seem to find support groups that meet on Saturdays...
Clinical Gleason downgraded before Surgery
When I meet with Dr. Catalona in Chicago last Tuesday (March 2) for a Consultation (yes surgery was the next day) I was informed that the Pathologist from Northwestern had downgraded my clinical Gleason Grade to a 3+4 from a 4+3 which he told me he rarely sees when they review the biopsy slides… This downgrade is important…
Shane
You have mail...I forwarded my order with all info for the company I'm getting my generic Viagra from in India.
CyberKnife as Treatment
Has anyone heard of or been through the treatment that uses CyberKnife. I'm only reading really good things about this noninvasive type of treatment. CyberKnife.com.
Back from surgery mayo in scottsdale
I have been reading all the posts here for the past few months and would like to share my story and maybe help others who are trying to decide on a path to treatment. Feel free to contact me chorton581@gmail.com I am 51 years old. Around my 50th birthday my family dr suggested i get my prostate checked. She did a digital…

Prostate Cancer

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