Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

Archives for August 2015

AROMASIN & CA125?
Hello Everone: Long-time member, but here's a quick recap: 2000 OVCA Stage 1C 2006 OVCA (not sure of stage) 2013 Breast cancer Surgeries, treatment for all. Been well since 2014 after radiation for breast cancer. Here's my question: Have any of you experienced higher CA125 levels while on Armoasin/Examestane or any other…
Topetechan started last week. ?
hi my name is Kathy, I have stage IV OV cancer. IIstarted with taxal/carboplatin, then surgery then 3 rounds of doxil. I was taken off doxil due to a terrible chemical burn that radiated from the inside out on both legs.Doc took me off after 3 rounds. My CA 125 is now up to 1155 with cells spread through my omentum and a…
Hello
Hi Everyone, What a fantastic board. I have been browsing here and the uterine cancer board. I live in the UK so treatment is far more restricted than the US. I have stage 1C, have had initially key hole surgery in September 2012 where my tube, ovary and cyst were removed, histology showed cells within the cyst so I…
I'm now part of the recurrence gang - sorry to say of course heading to Doxil
I knew it was more probable than just possible yet I am still scared had a contrast CT last weekend - couldn't keep food down -- small small bowel obstruction - tumor around the bowell & a few scattered bits in there, too lymph seems ok - no other organs at this point . blockage is just a slow down. NO thot of surgery -…
Help finding a patient advocate/nurse navigator
Having a very hard time finding a patient advocate / nurse navigator to help my mother and me through all of this. Just diagnosed as ov stage III and surgery scheduled 1 week from now. We are not unhappy at all with any of the care, but would just like some advice and guidance as I am overwhelmed. My mom is not proactive…
Small Cell Carcinoma Hypercalcemic Type Ovarian Cancer
PLEASE!!! Recently diagnosed (Stage III) and have been unsuccessfully trying to find survivors of this rare tumor.
Sharon Nance (msfanciful)
I just found out that Sharon Nance has passed. I didn't know she was so ill. I did notice the last pictures I saw of her on Facebook she appeared very thin but did not talk about her illness. She is one of the first women I met here in 2010. She was beautiful and sweet. I watched all her videos on youtube and they were…
Mom
anyone out there that can offer any opinions I would be grateful. 83 year old mom has ovarian cancer. It has recurred 4 times in 71/2 years. It's back she's under hospice care. Is becoming confused and sleeping a lot . She has pnuemonia spot in lung has been on 4 antibodies in 3 months. Not eating much. Had some…
Ok Ladies
I am all-out worried about Alexandra! She is not only NOT posting, but is not in the bsck ground! If anyone knows if she's ok, please let us know. I hate to stalk(well, not really), but I am concerned. Thanks, All Debrajo
Carboplatin for recurrence
hi everyone , just had surgery for 1st recurrence , ca125 came back higher than before surgery at 200 , so following up with carboplatin 6 cycles anyone else had this on its own for 1st recurrence , had it with taxol when originally diagnosed , hoping it works again , feeling very anxious more than when I was first told I…
Pray for Joyce
Our little friend Joyce, known here as jbeans888 is fighting for her life. I met Joyce here in 2011. She was only 31 and diagnosed with Stage IIIc. She got married after her recovery and I am proud and honored that we became friends. A Karate expert and sports enthusiast, I always refer to her as "my little hero" because…
GCT - Granulosa Cell Tumor Ovarian Cancer
Hello everyone, I am new here and looking for others that have the GCT Ovarian Cancer - it is a rare kind from what I have been told and I am wondering about remission stats, NED stats, as I have been told that I will NEVER be cured because of the Microscopic Cells that will always return in other organs at some…
Lost My Fiancée on June 2 to ovarian, stage 4.
Hi, My name is Chris. Just lost my Love on June 2nd. Hoping to find some people who understand what I'm going through... Thanks...
Adjuvant Chemo - 3 or 6 rounds which is better?
I am stage 1C2 Ovarian Cancer, staged this way due to the fact that my regular gyno did my surgery and not the gyno oncolgist. My CA125 is 7.8 and my pet scan is clear. My oncologist recommend 3 to 6 rounds of carbo/docetaxel as a prevenative. He preferred 6 rounds. I have completed two rounds and after the first they had…
Alexandra's update
I would like to apologize for the long silence and express my sincere gratitude to everyone who sent emails, PMs and good wishes. Sorry if I didn't reply right away. I didn't want to be Debbie downer, so please consider this a semi-motivational post. I have been in the second recurrence of high-grade ovarian cancer,…
Scared about symptoms
Hello, Just wondering if anyone has any advice. I went to a walk-in clinic this morning with bad cramps and stomach bloating. They found a trace of blood in my urine and are sending me for a transvaginal test tomorrow. Just so scared it is ovarian cancer. Any thoughts or advice? Thank you so much, Sue
Reporting results with Avastin/Topetecan
Hi loves, haven't been on the board for awhile and for those who don't know me, I'm a 9 year survivor, stage 3C, was in remission for 2 1/2 years and have been chemo in for the past 6 years. I did great with Cisplatin/Gemzar for over three years. That is a tough combo, but it kept me stable and you've got to love that! I'm…
Scared of Future Diagnosis and Test Results
I have not posted on here since my mother died of ovarian cancer. I never thought to ask her if she wanted genetically tested for it since she had ovarian cancer. I have had a total hysterectomy and kept both ovaries because of my age. I really let the doctor decide, but I was not thinking that my GYN forgot that my mom…
Finding it Very Difficult to Breathe
i had a debulking 6 months ago and just finished six cycles of cysplatin, taxol, and Avastin. I'm still having infusions of the Avastin and I'm also still on an oral chemo - both the Avastin and the oral chemo are part of a yearlong trial. Aside from the usual symptoms - the nausea, vomiting, loss of apetite, neuropathy,…

Ovarian Cancer

Discussion List