Ovarian Cancer
Discussion List
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Happy New Year
Happy New Year Ladies, Just popping in to wish all of you the very best New Year. I try to read through the posts as much as time allows. Life is keeping me busy. I have a new grandbaby that I watch a few times a month, and have been doing a bit of travelling with my hubby or my older grandkids. Just living and loving as…
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Planning for the future
Sorry about this long post. I am trying to organize my thoughts by putting them on "paper". Quick recap: I am BRCA+, diagnosed OVCA 3C in May 2012, had optimal THBSO, 7 rounds of IV Carbo/Taxol. After 9 months remission recurred in Sep. 2013, refused more chemo, no treatment for 8 months. Since Apr. 2014 been on PARP…
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Happy new year
happy new year to all on this board , im now 3 months post 1st line treatment but numbers are going up from 33 , 39 now 45 so guessing I start more treatment once ct scans show something , this 3 months has been great there's even been the odd moment where I can forget, I've had a holiday to dubai , learnt to meditate and…
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fatigue post- Christmas exhaustion
Hi all As most of you know I completed my first-line tx for OvCa in April -- 8 mos ago-- also I am a 12 yr survivor of a giant-golf-ball size brain anneurysm that left me with severe stroke deficits & paralysis on my left side. The brain damage from the stroke is known to cause true fatigue. MY QUESTION IS from your…
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we lost another teal warrior
chemo Princess...Natalie Nicole passed Dec 27....36 years old. She had been my friend for many years. she didn't visit this site too much..but a few years back she did. God bless you my friend
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Perineal burning?
Hi there. I am going through my third regimen of Carbo/Taxol, started 5 weeks ago. Suddenly on the 26th I started experiencing some burning in the perineal area. No improvement in the last three days, and there is a definite "ouch" on urination, but it doesn't feel like a bladder infection, which I used to get years ago.…
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I finally finished my book! Hope to spread OVC awareness
Hello, It has been a while since I posted here. Some of you might remember my sister Julie, who I had mentioned. She lost her life to ovc at the age of 46 after 14 months of fighting this disease. I am not an author, but just a heartbroken sister, who loved her baby sister. I wrote a book, Julie's Journey, to honor her and…
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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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Merry Christmas
Merry Christmas! Hope you have a gret day! Hug your family and lived ones. Blessings to you!
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Cancer and Depression
Does anyone else struggle with depression? I seem to wake up everyday and go to bed every night depressed, anxious and sad. I just don't know how to shake this. Anyone been thru this? What did/do you do? Any suggestions will be appreciated! Kathy
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Good news for BRCA mutants!
FDA today approved Olaparib as a treatment for advanced OC for BRCa mutants ( such as myself) this offers an alternative to chemo that has fewer side effects and a good response rate. our Alexandra had a good result with a PARP inhibitor....wahoo!
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decisions
Hello Ladies, Did any of you ladies have endometrial cancer and decided to remove only your uterus and developed ovarian cancer. I was recently diagnosed with stage one of endometrial cancer and they suggested that I get a a hysterectomy but I want d to keep my ovaries in case I want to still have kids in the future and…
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Fighting the beast again.
I don't come on here much. I guess Facebook has me in it's clutches. I am in treatment for my second recurrence. It is going well. After first chemo I had a 7-day stint in the hospital, 4 days in ICU. My onc adjusted my chemo dosage (I wasn't aware that could be done) and has me take Neupogen for 7days following chemo.…
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The cost of cancer
I have pretty much had it as the medical community is sucking every last cent out of us. I am on SS disability, my husband was forced to take early retiremenrt during the latest recession (which is supposed to be over...ha-ha) so he has reduced SS benefits and a small pension (which automatically takes $350 monthly for his…
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Loss of appetite and nausea
I am currently taking irinotecan. (this is my 9th drug). This is the first time I am dealing with loss of appetite. I'm also experiencing nausea and vomiting. I have lost 7 lbs. since beginning this drug the end of October. The dr. said this drug is hard on the digestive system. I have weight to lose, but this isn't good.…
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My New Oncologist's Cutting-Edge Approach Is Saving My Life
“60 Minutes” ran a segment last night (you can find it online) about an oncologist and research scientist in LA – Dr. Patrick Soon-Shoing – who is championing a low-dose, multi-chemo approach to fighting cancer. This is exactly what my own oncologist, Dr. Howard Bruckner, has been doing with tremendous success for years.…
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Fluid retention
What causes fluid retention around the ankles? Every few weeks they put me on lasix to reduce the swelling but don't want to put me on it on a regular basis as it could cause kidney damage (if I have that right). Due to see doc today, would like to be able to discuss with her intelligenly. Thanks for any info you can…
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Shingles & elevated ca#
Hi all I had my 2nd 3-month appt today 4,000 at dx in May 13 & 16 arter debulking & last tx Apr 14 CT & PET= NED My ca May = 36 today' s=130 I have a bad cold & broinchial cough saw my fam doc yesterday to dx shingles - early & on anti=viral had my blood test about a weewk ago - so both those things would have been going…