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Cycloblastin (cyclophosphamide) anyone?
Having had three cycles of Gemzar with good drops in my CA125 unfortunately on the fourth had a rise of 10 percent. So so disappointing! Thought I was onto the right chemo for me. My oncologist has added a daily 50mg tablet of the above to my regime. Wondering if anyone else has had or is having this and would love to hear…
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NY Times says only 1/3 of ovarian cancer patients get the best treatment
Must admit, it’s more than a little unsettling to come across articles like this one, which says only a third of ovarian cancer patients are getting the best treatment. http://www.nytimes.com/2013/03/12/health/ovarian-cancer-study-finds-widespread-flaws-in-treatment.html?pagewanted=all I was surprised to read some ovarian…
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Ovarian Cancer Survival Better With Intraperitoneal Than IV Chemo
Long-term results from 2 large studies confirm the superiority of intraperitoneal (IP) administration of chemotherapy over intravenous (IV) administration after surgery in patients with advanced ovarian cancer. "We have known for some years that intraperitoneal administration may give superior results...but it is balanced…
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Like the energizer bunny....
This just never seems to end. Ever since the cancer dx in 6/2011, menopause set in with a vengence (went on hrt - so far so good but still so much fatique and aches/pains), then went in for new glasses, Dr. said "freckle" in left eye is not freckle now that it is showing up in right eye also. Went to ophthalmologist, who…
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Feminine Issues
As some of us know, post menopause brings with it a new set of challenges. I just wanted to share some helpful information I gained from my Naturopath. Coconut oil is a great moisturizer and lubricant, for those private areas. And there is a product sold by Dancing Willow Herbs that restores elasticity to vaginal tissues,…
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Fatigue
I have been experiencing fatigue some days. I asked the onc if it could be caused by the tumors and she said no based on what she saw in the petscan. So I am thinking it is the Aromasin. On some days I have to lay down after I shower, before I get dressed. Then rest again after I get dressed. I felt this way at the…
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Camp-Mak-a-Dream
Hi Everyone: I was just wondering if there was anyone planning on attendng the camp in September at Camp-Mak-Dream in Montana.
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Sad sad day
Hi Ladies, Sadness and loss has hit me again. My dear sweet "other" mom has passed away from lung cancer. She fought so very hard and tried everything she could. She never smoked, ever. We all thought she would be okay. She is a second mom to me and the one I turned to this past year after losing my mom. I feel numb and…
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Posting pictures on discussion board and expressions gallery
For a while it was not obvious to me how to insert pictures into posts, so I thought I would share. If you know it already, please disregard. (1) Picture size needs to be under 150 pixels, larger pictures sometimes get re-formatted and rotated. Right click on your picture, edit size to under 150 pixels and save somewhere…
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Some encouraging News
Hi all, It's been a while since I last posted but for those who want to know the background, read my post here: http://csn.cancer.org/node/250795 So, I just wanted to come on here and give an update on my Mum's condition that may offer peace to some people and perhaps a little encouragement. My mum had her 1st CT scan back…
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The Wedding - Pictures !
Hi Ladies, I just wanted to share with all of you a few of the wonderful images from my daughter's wedding last Saturday. I posted them on my expression page. I had a lot of fun even with the ever present pain and fatigue. It was so beautiful and that really helps one to forget, even if only for an evening. huge hugs Lisha
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Back to work
Last week of April 2012 I went to my company headquarters in Michigan for training. I rented a car from Enterprise, drove from Toronto to Detroit, stayed in Crowne Plaza hotel in Auburn Hills, spent the week in meetings and on May 2nd drove back to Toronto. I was feeling so crappy and bloated on my way home, that I drove…
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ca 125
Hi Ladies Well today was the day that I got my courage on. I was to have my blood work done Monday, but between exhaustion from the wedding and my own personal fear, it took me till today. It's really odd to be so emotional about a blood test. I'm sure it's because of what the results may or may not say. I'm very hopeful…
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Has anyone out there been pregnant and diagnosed with OC simulatneously???
My story is rather long, so I'll just give you the abbreviated version..... I'm a 35 year old working wife/mom of 3 girls, ages 11, 8 & 5. I felt a mass in my abdomen in Oct. 2012 and went to see a gyn that specializes in pelvic surgery. Doc sent me for an ultraound in Nov. 2012 and found that I had a 16 cm mass on my…
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2nd clinical trial done, no help. :(
well looks like the cat scan results showed disease progression, and I am off of the Dalantercept. I only had 2 shots, and thought they would give it more time, but my Onc wants to see me tomorrow to discuss my next step. he said the amount of growth surpassed their limits for me to stay on the drug. I knew they were…
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Scan results from yesterday.
Hi Ladies. My doctor called me this morning with my CT results. He said my disease is stable. I have all lymph node involvement. He said there are no new lymph nodes since scans four months ago. He said a few nodes increased by a milimeter while others decreased slightly. He plans to keep me on doxil as long as it's…
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18 weekly carbo/ taxol chemo treament - did anyone have to take neupogen vaccines to do the 18 wk re
New to CSN. Just got port put in yesteday. Taking pain medication due to the discomfort and pain from the install. No fever or anything. Just sore and having trouble turning my head. Want to see if anyone has experience or is going through the 18 weekly chemo regimen. Side effects. Can you work? I am a mother of 2 young…
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Had.third chemo
Last Thursand still feeling bad. Poor appetite .sore mouth and tongue and very little energy. I have marks in my legs that look like burns...omg...always something. Having loose bms also...it is Spain when you you take a pain pill and go to sleep...then you have to go. Hopefully tomorrow. Will be better. I am on…
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What to tell a potential employer and when?
Ok just thought I would throw this out there and see what I got back. My original diagnosis was almost 6 years ago. I was a stage 3C. After 4 months off for surgery and recovery I went back to work and other than chemo days - never missed a day. Well got through chemo then a few months later got laid off. I was fortunate…
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From Israel with love
Last week flew by so fast. I am back home from Israel. It was glorious and a total sensory overload. Hot sun, turquoise sea, white sand, exotic trees, delicious food, smells of flowers and spices, bright colors, constant background of loud middle-eastern music, even louder overlapping conversations in Hebrew, Arabic,…
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Can someone please speak to me about my Ovarian Cancer concerns?
Hi there, I have been ill for several months, but at least for the past 1 month or so I have been having terrible symptoms and I feel like I'm dying.... I had a TVU done on 11-13-12 and they found a 2.3 cm cyst on my left ovary. It's now March and I have seen 4 different doctors bouncing me around (1 Emergency room doctor…
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High CA125, mass found on left ovary and scared!
I am 41 years old. I had blood tests approximately three months ago, which revealed a CA125 of 33. I made an appointment with my gyno, who repeated the CA125 and now is at 127. I had a vaginal ultrasound the following week, which revealed a cyst inside my left ovary. A doppler was performed and no blood flow to the cyst…
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High CA125, mass found on left ovary and scared!
I am 41 years old. I had blood tests approximately three months ago, which revealed a CA125 of 33. I made an appointment with my gyno, who repeated the CA125 and now is at 127. I had a vaginal ultrasound the following week, which revealed a cyst inside my left ovary. A doppler was performed and no blood flow to the cyst…
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Gerson Therapy
Has anyone heard or had experience treatment at the Gerson clinic in Tijuana Mexico? I'm looking for any treatment after finish my chemotherapy, I got my CT scan last week and there is no evidence of cancer. My CA125 was 11 last Tusday. I think I'm just desperate that cancer won't return.
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Just retired
Yup.. Just put in for retirement this past week. I have been in chemo for about one year and so very close to being NED,..I will miss my co-workers and patients...but is is time for me. Looking forward to some R&R and some warmer weather. Hope you are well and have some plans for Spring and Summer....Val
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Are there any "hopeful" signs (or non-symptoms) when we recurr? and other random things to discuss
Hi Ladies, AS I posted the other day, I am just about crazy with fear and dread of next week's scans. Yes I did recurr after about seven months. But even though I'm stage 3c clear cell, I still achieved remission. Can I again? I have absolutely no symptoms as I had when I was diagnosed in May '11. I have had no more…
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Hey Pam - PTARP
How are you feeling? Thinking of you. A big huge CONGRATS on finishing chemo........ So happy for you.
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How did you do on Avastin?
In July 2012 I was diagnosed with primary peritoneal cancer, which has an identical treatment protocol to ovarian cancer. I underwent 6 months of chemo on Taxol/carboplatin, then just last week had surgery. The surgeon reported no visible cancer, but biopsies showed there still were cancerous cells. So it's recemmended…
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Am I just crazy, dumb, or what?
Hi Ladies, I have scans this upcoming Wed. (march 6). I am SO scared. I've had 4 rounds of doxil after first recurrence. (approx. 7 months remission). I changed drs. after 3 rounds of cistplatin/taxol. Scans after those showed mild growth in the nodes. My new medical onc. did not think the costplatin/taxol was the right…