Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

Archives for June 2004

clear cell ovarian
I'm trying to get info about how clear cell differs from "regular" ovarian cancer, and no one seems to have any real answers for me. I know it's supposed to be worse, but how? Does anyone have info or can you tell me where to go to find out?
Rupture of mass upon removal
Does anyone know if having a cancerous mass rupture upon surgical removal ups the risk of having a recurrence? I am about two years out from my original dx, with no recurrence. Did six rounds of taxol/carbo after surgery. Thanks for any info available. Kate Beckman
Recurrence update
I received my PET scan results and Dr Downs said it shows intermediate activity in my lymph nodes in my neck. Here is what the scan says: Bilateral supraclavicular and left paratracheal or AP window foci intermediate activity are noted. A focus of intermediate activity along the peripheral lateral aspect of the liver is…
Gilda Radner Familial Registry
There is an excellent newsletter posted on the website of the Gilda Radner Familial Registry for 2004. It has interesting articles about HRT, health insurance/employability, genetic counseling (did you know that those pesky BRCA gene mutations can help men know if they're genetically predisposed to breast and prostate…
OVARIAN TO COLORECTAL??
Has anyone had experience with colorectal cancer after being in remission with ovarian. I'm not having any symptoms, except the doctor found something on the wall of the rectum. I will go back tomorrow for another exam and he will decide what to do at that time. Anyone that can dispell my fears? I know that's asking alot -…
Autologous Stem Cell Transplant
I've just been through my second set of treatments for OVCA. Diag. in Dec. of 2002 with Stage IV, had a total of 11 rounds taxol/carbo plus debulking surgery after 3 rounds. Went into a partial remission (still had pleural effusion sp?) for 7 months. At that point my CA125 was 280. Started up with taxol/carbo again and had…
ADNEXAL CYST?
I'm a 4 year OVCA survivor, stage 1C. Had total hysterectomy, omentum, lymph nodes removed also. Six rounds of chemo. Just received a copy of my recent CT scan results. It showed a 2cm adnexal cyst ('as in previous test'). I had no idea this was present, so I'm surprised and concerned. Seeing my doctor tomorrow, but in the…
Thanks from TealRibbon
Just wanted to thank ALL OF YOU who were kind enough to post supportive messages. You guys are the best! Hope you are all doing well. I will let you know how the CA125 turns out. Hugs, Sandi (TealRibbon)
TealRibbon Update
Hi Fellow Warriors! Had my CT scans yesterday. Got the dye but the pre-meds kept any reactions at bay. The doctors office called today and my CT Scans were all NORMAL! I have not gotten the latest CA 125 results but at least there is not anything really big growing. I was so happy! Thank you all for your prayers and…
Looking for someone to interview
Hi! My name is Lauren and I go to Temple University. I am taking a Magazine Article Writing class and we are working on a hypothetical Cancer Survivors magazine. I was wondering if i could interview someone via either phone or e-mail to help get some details about what it is like to have ovarian cancer. The interview would…
Leg and pelvic pain
Hi all, I have been reading your posts about ovca symptoms and it made me sit up and take notice as I have a lot of the same. I have been having lower right abdominal and pelvic pain which also radiates down my right leg, buttock and lower back and also feeling very tired. I do have a history of endometriosis and have had…
NOCC Chapter in Michigan
I wanted to let everyone know that I'm going to start a Michigan Chapter for the NOCC, specifically the Detroit/Grosse Pointe area. Most likely in August. If anyone is interested in joining our group, please e-mail me at als22937@hotmail.com. The NOCC is a National organization. Their main goal is to raise awareness of…
my mother's Symptoms
For the first time I am taking an opportunity to write on this site on my mother's case and I would like to request the experienced readers to suggest me or express their views on this matter. "My mother, is a patient of ovarian cancer, (detected in November 2002) and it was also found that the tumor was in the inoperable…
Diagnosed with endometrial cancer---18 years post hysterectomy
Would be helpful to hear from others who have experienced with type of cancer, and especially from those who have had a full hysterectomy years before the diagnosis.....
Megestrol
I just finished chemo, the Dr. found a spot on my cat scan which he said could be the cancer or scar tissue, cyst, etc. Said that all his exams had been normal. My ca125 was 90 after the removal of the tumor. It then went to 24, 30, 36, 17 and the last reading was 8. He put me on Megestrol 160mg daily. Anyone know about…
Recurrence
I finished a year of Taxol consolidation chemo just six weeks ago. My Onc called and told me my numbers have gone from 19 up to 48 in that 6 weeks. Waiting on CT scans in a couple of weeks. Have any of you ever had your numbers double and it WAS NOT the cancer reocurring? No need to say I am scared out of my wits. Not that…
Madi's Mamaw is finally having surgery!
Hello everyone, I thought I should update you. I have had many more tests since April. I am with the same GYN, she ran a lot more tests and as usual the waiting has been nerve racking. My surgery is scheduled for July 8th, I asked for an appointment for tomorrow with the GYN because I am going to ask her to have a GYN…
Complementary and Alternative Medicine
I am a student at the University of California, Davis. I am researching the use of CAM for prevention and treatment of ovarian cancer. I would appreciate any personal input/experiences from someone who has used CAM. Any thoughts or experiences you would feel comfortable sharing with me would be great and extremely helpful.
Stage 1C, 6 Rounds!
I've decided to go with 6 rounds of chemo; thank you ladies for all your input. I really appreciate you sharing your experiences with me. I did get the book about ovarian cancer recommended - after looking at it for so long, finally read it, returned it to the library and now don't remember author/title. Chemo Brain, don't…
Consolidation therpay
I've just finished my 6th, and presumably final treatment of taxol/carboplatin for Stage IC OVCA. The chemo nurse in charge of setting my appointments and writing my orders said on my last discarge papers that the doc may want to discuss consolidation therapy (additional chemotherapy) at my follow-up appointment. Anybody…
tamoxifen/thalidomide/arimadex
I am a 6 year OVCA survivor of many rounds of chemo and surgeries. Right now I am again in remission and have been asked to decide what kind of maintanence treatment I want, if any. Tamoxifen, thalidomide, and arimadex [sp?] (as well as femara) have been suggested. Does anyone have experience with the thalidomide or…

Ovarian Cancer

Discussion List