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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for September 2017

New to forum
Well I'm sure just like everyone else here you never expected to be here. Prayers go out to each of you. I have a few questions. My 24 year old daughter had swollen lymph nodes couple months back. She went to her PCP who thought was infection and put her on antibiotics. She is a single mom of a year and half year old and…
Radiation after R-EPOCH
I am 78 years old and completing the 5th of 6 sessions of r-EPOCH. My pet scan shows full remission and no cancer anywhere. The suggestions of radiation after completion has come up. My lymphoma was in lymph nodes left side of neck. I've heard it is risky radiating neck and am hesitant . I also wonder at my age does it…
1 Year today
Good Morning all! Today is my 1 year birthday! on September 27, 2016 I had my stem cell transplant. As I sit here I’m not sure whether I should be happy? Be scared? I think I’ll take the happy route with some scared mixed in. I’ve become a bit superstitious and remember the first time I posted that I was NED. That was…
PTCL-NOS Belinostat
As some of you know, my husband has battled PTCL-NOS for almost 2 years. He was refractory to CHOEP. He had an initial response to Brentuximab Vedotin and Romidepsin, but in less than 6 months, had progressive disease We saw Dr Shustov last month and he recommended Belinostat. After 5 infusions (one cycle ), his nodes…
Question about fevers/chills?
So I have NLPHL and I'm about to do 6-8 months of R-ABVD but I have a question concerning fever/chills? It was 94 here today outside Philly and I was ok most of the day in a tanktop but I swear no matter how hot it is I get chills followed but feverish hot flashes as soon as the sun starts setting. It's like my body has…
I need help
I'm so analytical it's almost disgusting. I get anxiety from all the information I've learned and I'm having a hard time dealing with this being I'm 35 I have 2 kids and 1 on the way and I'm getting married in 4 weeks. I was diagnosed with DLBCL. I just got out of the doctors office and the doctor pretty much put…
ABVD didn't work
So I've had a bit a horrible year to say the least. Graduated college with and bachelors of science in May 2016 (at 47- finally!) got a seasonal job doing a federal geological/ soil infiltration study that paid well, thinking my life was finally on the upswing. Then my fiancee of 10 years breaks up with me (she lost her…
Testicular lymohoma
If a orchiectomy was performed and I was diagnosed with DLBCL after looking at the testicle but it was all confined to the testicle is there a chance that got rid of all cancer cells and I wouldn't have to go through treatment maybe just on a watch. Supposedly I caught it early. Just trying to find the positive in this...
Very weak after 2nd chemo treatment-need some support
I have been diagnosed with large b cell lymphoma and just finished my second round of 5 day chemo treatment 2 days ago. I have been prescribed the R-EPOCH treatment. This 2nd time I am so much weaker and my stomach is quite sick in spite of taking the meds. I am also having to fight the insurance company to cover the…
DLBCL, Testicular lymphoma, CNS relapse
I just got diagnosed with DLBCL. I'm not sure yet where it started but I did have an orchiectomy because of testicular swelling. I'm a 35 years old and I guess this is rare. Seems like it is very treatable but the chances of CNS relapse is greater in testicular lymphoma. If my cancer started in the lymph nodes and spread…
Neck and Groin Nodes
Hello! A little background, I was diagnosed with papillary thyroid cancer in April or 2017. I had a total thyroidectomy as well as 6 lymph nodes removed for metastasic disease, followed by a dose of I-131 in May. Over the last 6 weeks I have developed some enlarged lymph nodes in the side of my neck, my collarbone and…
Evaluation process feels like living in a pressure cooker
Hi everyone, I'm looking for some friendly advice on my evaluation process. I started in January of 2017 with a swollen lymph node under my jaw, my PCP and I decided to try antibiotics and give it 6 months to go down. It didn't and when I came back In July for my f/u I told her it was bothering me it was still there, she…
Breakfast
Guess what I had for breakfast? I enjoyed sipping a "Breeza" on an empty stomach. With its splashy label featuring strawberries, banana, pineapple, kiwi, even calling it a fruit flavored beverage, I always want it to taste like a fresh fruit smoothie. And each time, I shudder with the first sip--the artificially flavored…
Alkaline phosphatase (ALP) levels
I am currently in remission for large B Cell lymphoma, diagnosed in January 2017, chemo R-CHOP treatments from Feb - May. My bloodwork from May had my ALP level at 62 and this week's ALP level is at 120. Still in "normal" range but doubled since May. I also just finished a round of anti-biotics. How was your ALP after…
swelling in neck with mcl??
I will try to explain this as best I can. My mother who was diagnosed with Mantle cell Lymphoma over 2 years ago and is still on watch and wait, (no treatment yet). Just had a check up with her breast cancer doctor 2 weeks ago, which consists of bloodwork and he checks her over. He said all looks good. I have not seen my…
Non-Hodgkins Lymphoma DLBCL
Hi all, My dad has been diagnosed recently of Non-hodgkins lymphoma, stage 4. Its involving skeleton as well. Has someone gone through the skeletal involvement? He can move along or carry out his minimum activities daily or you can say take care of himself - he has no problem in walking etc. other than severe weakness,…
CONTRACEPTIIVES FOR SURVIVORS
I finished my treatment for Hodgkin lymphoma in June and the problem is completely gone. I have a few questions now. Can a survivor take contraceptive pills if needed? Is occasional alcohol consumption fine?
Trying to figure out what is going on with my mom??
Hello everyone!! I am 21 years old and my mother has been sick for about 3 months now. It started close to the end of July. She is a nurse and she was working 2 jobs she used to suffer from high blood pressure but that was 7+ years ago. She has also been suffering with insominia for I think about 2 years, but she has…
Premature Ovarian Failure
Hi, I was diagnosed with Hodgkin's Lymphoma in 2001 at the age of 14. I was told there is a chance I can't have children due to Cyclophosphamide being part of my treatment. I am now 30 years old. My husband and I have been trying to have a baby for six months now. Due to my history, I decided to see a fertility specialist.…
Spleen involvement
Well went to see oncologist today. I was expecting to hear all looks good still, see you in 3 months. Instead he said showing a small area on my spleen. I had been diagnosed with NLPHL indolent Lymphoma and T cell rich B cell Non Hodgkins very aggressive Lymphoma . I finished treatments 6 rounds of RCHOP on 7/3/2017. After…
Another person diagnosed with NLPHL
Hello everyone, Former lurker here. It seems like only a small number people on this forum have had NLPHL, but it looks like you can add me to the list. I am a 32 year old male, went to urgent care with a cold 5 months ago and they did a chest X-Ray and found something that looks like scarring in my lung. That then lead to…
Long term effects of having FNHL treated with Treanda / Rituxin
My FNHL has been in remission for about 1.5 years. I went through Treanda/Rituxin treatment for about a 6+ month time span. When I was first diagnosed it seemed to happen so quickly! Everything was being scheduled and I was being taken this way and that. It was kind of overwhelming but at the same time, it was comforting…
My wife
Hi Everyone, We just received the news that my wife may have HL. This was a result of a biopsy done on her left groin lymph node. (Sorry I'm not up on the technical terms yet). The results were that they "suspect" HL. Oddly, the initial dx was that is was NHL, which was stated within a hour or two after the biopsy, but…
Colon Malt Lymphoma
Has anyone had or have colon malt lymphoma? I had diffuse large b-cell lymphoma in 2011. 8 RCHOP and was done. 2016 my oncologist requires me to go see a regular doctor to prepare me to leave the oncology team. I see my new doctor and he says it is time for your first colonoscopy. I get it done about three weeks ago and…
For Fun
I have had trouble sleeping for a couple of weeks, which is not like me; I am usually a great sleeper. There haven't been any particular worries plaguing me at night and no symptoms of illness. I just wasn't sleeping. I am not one to lie in bed awake for an extended time as I think that causes stress. I will give myself…
Rituximab-related late-onset neutropenia (R-LON)?
I cannot find this condition discussed here and wonder what others may have experienced with regard to "late-onset neutropenia", i.e., neutropenia that appears weeks or months after completetion of chemo that included Rituxan (R-LON). I do not know that this is what is currently going on with me, but it seems a more…
Extended Treatment
After talking in person with 2 FNHL patients I thought it may be helpful to some people considering Single Agent Rituxan to consider the following when developing a treatment plan with their Doctor: Patients with relapsed FNHL who opted for Rituxan monotherapy and were treated with an initial eight weeks of Rituxan…
False-Negative? Other diseases like Lymphoma?
There are several threads alive with fear...fear from people who have had swollen nodes and have been feeling sick for quite some time...I have noticed that these people sometimes don't ever update us on whether their fear was realized or if their biopsies came back negative. My hope is that they are still fighting the…
groin node
Good evening. I am 34 and based in England, uk. Nearly 2 weeks ago, I noticed a pain/tenderness to the right groin area. No other symptoms. Though I have felt a bit tired as not a great sleeper and did have a couple minor bouts of cold previously I am pretty healthy, though do have food allergies, hay fever, eczema, and…

Lymphoma (Hodgkin and Non-Hodgkin)

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