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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for May 2016

Newly diagnosed Splenic Marginal Zone Lymphoma
An indolent Non-Hodgkin's lymphoma really kind of stinks. Tell friends and family that it is slow growing and invariably they will say, "Oh, that's good!" No it's not, you can't cure slow growing. I have tried so hard to be positive, my doctor even said, "If you have to have cancer, this one isn't a bad one to have." I…
Stem Cell Transpant Here I Come
Stem Cell Transplant here I come…all recent tests were great - no signs of cancer… that means we move forward with the autologous SCT. It all starts next week with +/- 18 days of our living at a hotel near City of Hope for the everyday pre-sct outpatient adventures. We’re very grateful to the American Cancer Society for…
Insurance denied PET scan
Good morning all.... As I sit here in the middle night not being able to go back to sleep,my mind jus keeps spinning. I called my oncologist today to see when my 3 month post treatment scan was scheduled. I missed the call bac from the nurse but the message said that because I had stage one, Cigna denied the post treatment…
2016 Any + Mantel Cell Survival Stories to share.
I am newly Dx with MCL 2.2016, 52 yo Female. Getting treatment with R-CHOP and R-DHAP everyother cycle for a total of 6 rounds of chemo, I have completed 4 cycles thus far. I plan on geting a stem cell transplant this summer. I am trying to make some life deceisions based on progression free survial rates. It looks like…
Leukemia Research Foundation
We have a group in Chgo called teh Leukemia Research Foundation. There web site is http://www.allbloodcancers.org The members are medical professionals from the various university medical centers in the Chgo area. Today I went to their anual conference on blood cancers. I had to get up early but it was worth it and it is…
Lymphoma in CHILD
Hi, I'm new to this website. My 4 year old daughter has had swollen lymph nodes for about 8 months(that we have noticed). Her other symptoms are fatigue, night sweats, irritability, emotional, nose bleeds, stomach hurts after eating very little and body aches. She was diagnosed with anemia when I took her to the doctor 5…
Telling Others
When I was first diagnosed with cancer, almost 4 years ago, one of my first thoughts was that I didn't want to tell anyone. When my Doctor told me I would be losing my hair, I felt so sad, not because of vanity, but rather of being transformed into someone who must reveal to the world, through baldness, that they…
Alk negative anaplastic large cell lymphoma/any advice
I am still in the staging process. Still waiting in bone marrow results, blood results, and they want a clearer pic of my liver (MRI). Pet scan shows lymph nodes look good. I got the diagnosis 2 days before my 41st birthday. It was discovered because I had a mass come up under a robotic hysterectomy scar from endometrial…
What to expect from an active 86 year old woman with new diagnosis
My grandmother is 86, and has been very active her whole life. She is still active, and sharp. She was diagnosed with diffuse large b-cell lymphoma. We have no treatment scheduled yet, but they are going to do a mild form of R-CHOP, that will exclude vincristine because my mother does not want to put her through a harsh…
Latest
It has been awhile since my last post, i went on my vacation to Oregon, and i think i wasnt truly ready for the long flight, spent most of my time there taking it easy, i was exhausted by the time i arrived, and also jet lagged, i was able to get out a bit and see how beautiful it is there, but had to limit myself which…
My story begins...
Yesterday was not a good day. I was told I have Lymphoma. Three weeks ago, I noticed my left leg was swollen. I went to the doctor (good thing I didn't just brush it off), they sent me for an ultrasound to rule out a blood clot and took me off one of my meds. No blood clot but they said my lymph nodes were swollen and…
Struggling as a Caregiver.
1 I am new to the forum, and basically joined because I have nobody to talk to and I'm not in a very good place mentally right now. I am 31 years old. My boyfriend is 33 and recently was diagnosed with Hodgkin's Lymphoma for the second time. We've been together 6 years, and I was not in the picture his first go round with…
Mantle Cell
I finished 6 R-Chop treatments mid March. A month later did bone marrow biopsy, pet/ct, colonoscopy and endoscopy. Got results yesterday. Complete Response, No Evidence of Disease. Nothing, all clear. Start Rituxan Therapy on Monday.
Free T-Cell Patient education seminar - San Francisco June 4th
The T-Cell Leukemia Lymphoma Foundation will be conducting a free patient education seminar in San Francisco, California on Saturday, June 4th, 2016 from 8:30 AM to 2:00 PM. Chief presenter will be Dr. Andrei Shustov of the Fred Hutchinson Cancer Research Center (other speakers to be announced). He is able to cover all…
Worried
Starting around Christmas 2015 I had what I thought was a cold/flu. For over 3 weeks I had fatigue, cold chills, occasional night sweats and extreme nasal drainage. I went to the doctor and was prescribed Biaxin. Symptoms mostly improved except I developed a cough which was sometimes productive with mucus and other times…
Treatment for NLPHL in abdomen only
I am searching for folks who have been or are being currently treated for nodular lymphocyte predominant Hodgkins lymphoma. Because this exists only in my abdomen (mesentery lining around small intestines), doctors do not recommend radiation therapy (because of the risk of secondary cancers). One doctor recommends R-CHOP,…
I start R-CHOP on Tuesday-any suggestions?
I start R-CHOP on Tuesday, May 10-any suggestions? I have recently been diagnosed with Diffuse B Cell Lymphoma. Needless to say I am scared about the side effects of the treatments. Any ideas for making it easier would be appreciated.
I'm a newbie and have some questions
Things have moved very fast in the last 5 weeks. Had a lump in my groin and thought it was a hernia. Turned out to be Non-Hodgkin lymphoma. The one thing that has helped me out the most was something I read. It said look in the mirror and say I have cancer. Well it did help me,, I've been reading all the different post on…
Epigenetics - random events and health
very interesting. Apologize for not being able to post a viable link. Please copy and paste to read the article. http://protomag.com/articles/twins-same-genes-different-future-epigenetics

Lymphoma (Hodgkin and Non-Hodgkin)

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