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CNS Lymphoma Newly diagnosed need advice and where are doctors with this specialty - HELP
Hi, I asking for 25 yr old. it looks like he may have CNS Lynphoma. Can survivors tell me how you are doing, and where are the Lymphoma specialist. We are in the Philadelphia area but can travel. Can you tell us the questions we should be asking doctors ? There is some existing comprise to the ammune system. fluid on the…
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Max
Hi Max, Hoping for the best with your surgery tomorrow. Bill and I will be thinking of you and your family. We know you will be in good hands. You wouldn't settle for less. Even though it seems this is an easy thing and not worrisome, having to deal with cancer again is emotionally challenging. Our prayers are with you and…
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IF you have DLBCL, get genotyped!!! It could save your life!
Hi everyone, My mum was diagnosed with DLBCL fall 2012. Back then, we were all CLUELESS about lymphoma and all the various available treatments. We did A LOT of research, and thankfully ended up getting mum REPOCH, which is one of the best treatments to date for DLBCL. She went into remission for almost a year, and then…
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lymphoma worries
i had some calf pain left leg back in august some tightness went to doctor they gave me some pain killers also have over the years some lower left back pain that would flair up, pain went away after a week then noticed a bump/lump on back side of my left knee about 4 months ago, also had leg pain with it calf area really…
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KEN BURNS RE CANCER AND PROGRESS
KEN BURNS FILM RE CANCER, MEMORIAL SLOAN KETTERING CANCER CENTER, NEW YORK CITY: http://www.mskcc.org/blog/watch-video-physician-chief-upcoming-ken-burns-film
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New Here and Scared
OK saw the Oncologoist and the Final Diagnosis and Treatment plan is: Diffuse Large "B" Cell Lymphoma. Will have Chemo once every 3 weeks for 6 cycles. Have a PET scan next week and get a port put in for the Chemo. so my surgeon gets another Whack at me Will be getting the R-CHOP Combo platter Scared because I am alone, no…
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phlabitis
Well I ended up with phlabitis in my arms. One spot came from last chemo. The other one in other arm is from previous chemo. He said if I didn't have just one more Bendamustine and rituxen treatment he would insist on port. He prescribed antibiotics and heating pad. I'm ok with this its just a bit nerving. ~GG~
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My first post
Hi there, obviously I'm new to this but I thought I could use all the support I could get! I'm 37 years and was diagnosed with follicular lymphoma back in the fall. I just had my first of 6 treatments last week. The Rotuxin Bendamustine combo. And boy was I sick!! I'm to have one treatment every month for 6 months. I'm…
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Eating after radiation to the Head and Neck
Hello! Recently (Jan. 15th) I finished radiation to my neck (salivary glands, throat, etc) and sinus. I had 25 rounds. I had level/stage 3 Oral Mucositis and it caused lots of bleeding in my throat if I wanted to cough or sneeze etc. My tongue also developed severe burns on all sides. I switched to a chicken broth diet on…
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Reporting Back After Oncologist Visit
Hello Folks: I had a very good Oncologist for about 3 years. He decided to leave and departed the end of August 2014. The cancer clinic is part of a nearby hospital. I miss him; had a good rapport, which is important. His replacement is very good too, but the rapport is gone. Well, anyway, I have had what the Onc. calls,…
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WHy can't I trust doctor
I am 25 years old, male. I was freaking out because I found a 1 centimetre enlarged lymph node behind my ear, its been there for about 4 months. I thought for sure it was cancer/lymphoma. My family doctor told me it was probably nothing to worry about, but would send me to a specialist because I am worried. I went to the…
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The Latest
Just checking in, had a PET scan last Sunday and saw Onc on Monday, new scan shows a new area starting, for a total of 4, the Onc mentioned stem cell and that its a good possibility this time its aggressive, i have an appt for Thursday with a thorasic surgeon, he will let me know what can be done, my Onc says i have to get…
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Checking in
I've not posted in awhile - been sort of taking a break and have been busy with things. I have a friend going through cancer treatment right now and have been offering what little support I can over the phone. We plan to visit sometime after he finishes treatment. He's doing well so far - just anxious to finish as we can…
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Swould i relax?
I found 6 mounths ago a lymph node in my head right side its the size of a peanut,its hard like a bone,fixed and nontender .Had a lot of headaches,nausea and dizzyness with it .My doctor give me antibitics for 10 days to see if will go down.Meanwhile another apeared on the neck under the hair line this one is a bit softer…
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Vitamin D Deficiency
Hello my friends, Remember a few weeks ago when I told you I fractured a bone in my foot? As it turns out, on a follow up x-ray, after much of the swelling had subsided, and I suppose pictures taken at a slightly different angle, because I was more comfortable, it turns out that 2 of my bones were fractured. Also, the…
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Confused and Scared
I am new here , and do not have a cancer diagnosis , but have been having symptoms for months that are begfining to scare me. I thought I could reach out here to see if anyone has experienced what I am going through so that I can prepare myself for a visit with my practitioner. I have brought upo these symptoms to my…
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primary mediastinal b cell lymphoma (trials)
Hi Everyone I post this on behalf of my wife who is currently fighting this horrible disease. We feel as if we are running out of options. MY wife is 34 years of age and has had numerous lines of treatments. fIrst she had R-chop x 6 and radiation and got a complete response and was in remission for 9 months until she…
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Latest results
I had a CT scan yesterday and the results came in yesterday afternoon. The Onc called me last night and said that she wants to get things rolling ASAP, i have been on a watch and wait for a year and a half now, i have non hodgkins lymphoma stage 3, it is in my chest and now the lymphnodes are pressing on my lower right…
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Interesting Hodgkin Lymphoma Article
Here is a recent article that I thought some of you would find interesting: http://www.nbcnews.com/health/cancer/connecticut-teen-curable-cancer-fights-stop-chemo-n281511
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No cancer activity.
No cancer activity at this time! I had my PET Scan done yesterday , all clear ! I am still going to finish my last two rounds of chemotherapy and then do rituxen only once every two months for two years. I am really happy aboutbeing cancer clear but having to finish out my treatments and then do Rituxan is a small bummer.…