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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for May 2014

Recipe Added
Member "Mardigras" recently added a recipe for "Mardigras' Turkey and Ginger". That's the first activity in about two years. It took awhile for me to figure out/remember how I set this up but I got it. Below is the link to the site and a list of recipes. I set this up almost 3 years ago for our members, caregivers and…
Recurrent HL
Hello, everybody! I first was diagnosed with classic HL in 2011, 2A with a mass in the right supraclavicular node, and another mediastinal mass. I must have joined this network then, because my email was registered when I went to "join" tonight. I just don't remember posting here. I think I read a lot, but didn't feel I…
All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
Where's Shoopy?
I know Karl said he planned to take a break from the Discussion Boards after his SCT, so I am not surprised by his absence. I miss Karl and hope he is doing well. And moving forward with his plan to live forever. . .
Backyard Visitors
These guys often frequent my backyard sometimes as many as five in a group:
Cake
In honor of the retreat I just attended, and to celebrate summer, my favorite season; to debut the kooky and festive cake stand that followed me home from an estate sale, may I present my lemon poundcake with blueberry cream cheese frosting decorated with sugared blueberries.
Third Cancer Dx CLL after Lymphoma and Thyroid
So yesterday I saw a cardioologist for a stress test, and he tells me so I see you have Chronic Lymphocytic Leukemia and I said oh really good to know. Then he sent me for an echo and turns out I have heart realted damage from ABVD treatments as a kid, and now wants to send me for an angiogram. Another day anothe dx just…
Personal Choices Poll
This is just kind of a personal choices poll to see how any of you would handle certain circumstances and any advice that can be provided. 1.I am at a point in my life where after being single for 17 years, I feel that I might be ready to start dating and allow myself to share my life and feelings with someone else. Do you…
Camp Bluebird was Amazing!
I returned yesterday afternoon from Camp Bluebird, a 3-day retreat for adult cancer survivors. Camp Bluebird is co-sponsored by the American Cancer Society and is held in many locations throughout the country. The camp I attended was held at a beautiful conference center nestled in the Blue Ridge Mountains of Western North…
Thinking of Sue
Hi Sue, Just wanted to pop in and say that I am thinking of you today and always. Biggest hugs. Lisha
Good news...
Hi guys... Great news!..(I think )..My Radiation Oncologist's office called today and said they will be making my radiation mask tomorrow, so I should plan on being there an hour or better!!!! I haven't talked to the Radiation Oncologist yet about the scan results, but I "assume" this means my eye cancer is NOT in the deep…
Should I stop Chemo after 5 rounds, or should I receive number 6???
I have stage IV Folicular Lymphoma. I have been receiving chemo since Jan 6, 2014. Rituxon & Treanda every 28 days, was scheduled for 6 rounds. After my 3rd treament mid March my Dr. sent me for a CT scan, results were excellent showing almost full reggression. I continued on with rounds 4 and 5, however my white platelet…
Nodular lymph-predominant Hodgkin's lymphoma in husband
Hi, My husband was diagnosed with nodular lymph-predominant Hodgkin's lymphoma in November/December 2012, began chemo in Jan 2013, finished then began a round of radiation in March/April until May 2013. He now undergoes Rituxan maintenance treatments every other month and I think has another year left. He is quite a bit…
Odd History
My new next-door neighbor (moved in about a year ago) has had a very odd journey with lymphoma. He went for extensive testing about two years ago, including the removal of a baseball-sized node. On other occasions he has had two golfball-sized tumors removed. All tested "negative" for any form of cancer. His biopsies were…
Sue, Good Luck on your scans today!
I know you won't have results today but wanted to post in addition to my mesage to you so others can chime in! May it be superficial and knocked out easily! Hugs
Depression and anxiety
I had my one year check up and at this time I am in remission from stage 4 NHL. Instead of check ups every 3 months i dont have to see my oncologist until 6 months. While I am very happy for the news i find myself more depressed and anxious than ever. I will be 67 next month and that may be part of my problem. The cancer…
Bad Medicine?
One of our 4-year-old granddaughter's friends has leukemia and they are attending a fund-raiser for him today. Granddaughter was telling me about it yesterday. She told me her mother said the friend had to take some bad medicine and that it made his hair fall out. She went on to say, "Like you, Mimi. You had to take some…
Que le vaya bien
RIP Blanca Valdez. I remember meeting you almost 20 yrs ago when I crashed a quinceñera w your cousin. I rember you being shy to dance, but over the last 15 yrs everytime we crossed paths you were dancing. The life of the party! Im not sure where the nickname Grumpy came from. Maybe like how they call big boys Tiny. I…
Moving right along...
Hi guys, Well...things are moving right along. Had labs today....this coming Tuesday will have my CT Scan of the head, and Thursday I'll meet again with the radiology oncologist. He said if my eye cancer is superficial/on the surface, he can do a targeted radiation consisting of 2 rounds.If the cancer is deeper in the…
I DID IT!
Today I will be graduating from The University of New Mexico with a Bachelor of Science in Nursing and a Minor in Psychology Even after getting cancer thrown in our faces, every single part of last year has truly made this very moment worth it. Thank you to all of you who sincerely made this day possible. I thank God each…
New Family Member
I adopted this little girl yesterday. Haven't decided what to name her yet. She's about 6 months old and a bundle of energy and already mostly housebroken (been a couple of excited pees). She likes to dip her front paw(s) in her water bowl before she drinks. At certain angles, she looks fox like. She moves so much, it's…
Second chemo today
this one went about twice as fast!! Thanks for your prayers. As you can see by my new profile picture, I went for the buzz cut.
4 biopsies done on swollen lymph node
I had thyroid cancer in 2008, 5 mm that was removed. All my thyroid gland was removed, did not have radiation because dr said it was really small. Every since all my blood work and my t4, t3 and all other tests have always been very good, perfect results. 2 years after the thyroid cancer, during one of neck ultrasound they…
Missing in action
Once again I have been missing in action....ahhhh nobody told me how busy life was really going to be...School and work are draining me lately, but the semester is over and this is my last summer school free. I just had to stop in and check in on everyone....did some cyberstalking on you guys For those of you who have been…
The Picnic and Camp Bluebird
Last weekend, the physicains and staff of my oncology clinic held a picnic for staff, patients, and their families. It was amazing! My husband and I took our little 4-year-old granddaughter. There was delicious food, music, and all kinds of family games. They had those giant puffy, inflatable, jumpy things and our girl…
Scan Results
The results were good and I'm still in remission (NED). My oncologist said that if all is well after my next scan (6 monhts), we'll go to annual follow ups with no scans unless symptoms present. If next scan is good, I plan to say goodbye to my old friend the dual port. I have some other issues like high blood pressure I…
Radiologist appointment...
Hi guys, Finally got a date to see the radiology Oncologist...Thursday at 2:00. I assume...(not smart to do )... he will schedule my MRI for the following week. Once that is done and we get those results, I should know more which way we will go with treatment....radiation or chemo. My right eye tears up constantly, but…
Scan Today - SCANXIETY
Well, as usual I have scanxiety about my 6 month checkup today. I could use some hugs, laughter and maybe hear from some of you folks who haven't posted in awhile. I know some of you are going through relapse, treatment, and stem cell transplants and you are in my thoughts. Some of you are in remission or perhaps "cured"…
Happy Mother's Day!
I'm so thankful for each moment w my mom even though I wish the quality of time was better. Today marks one month since she has been away from home. After her second week in the hospital she went to a skilled nursing facility for rehab. Two days prior to her scheduled return home she was rushed to the ER because her…
Happy Mother's Day
Happy Mother's Day !!!

Lymphoma (Hodgkin and Non-Hodgkin)

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