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Happy Birthday Lisha
Happy Birthday, Lisha (forme) ! John's granddaughter, Kaite found some birthday frogs for you: Happy Birthday Lisha Big Hugs, Jim
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Back in the chair
Hi y'all, just checking in and saying hi. I'm sitting here lamenting the fact I'm moments from being half way done. I hope everyone is doing well, Sharlene how are you doing? I hope all is going smoothly with your treatments. Ta, how are you? I've been watching but haven't seen a post from you in a while, I hope all is…
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Husband's Auto Transplant
Hi guys...my husband is scheduled to start BEAM on Thursday for his auto transplant. I am nervous but excited to have reached this point. He is still feeling weak from the stem cell collection last week. I hope it is normal that his blood counts have not recovered yet. I know his body has been through a lot. He had a PET…
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cancer, diabetes and how it affects blood sugars
this chemo really sucks! not only am i a cancer patient of hodgkins lymphmoa but i also have diabetes. the chemo has really messed with my blood sugar levels and now cause me to do insulin where as before cancer and chemo i was able to control my diabetes. now no matter what it is i eat my blood sugars just go crazy. i…
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Question about Rituxan Maintenance and Low Blood Counts
I have Follicular Non Hodgkins Lymphoma. I was treated with Treanda and Rituxan for 6 rounds every 21 days. I am in remission - thank God! Now I am having Rituxan maintenance every 2 months. I had my third treatment Oct 3. My WBC (1.5) and RBC (3.1) HGB (10.8) are low. My platelets are ok. I thought by now my blood counts…
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Scuttlebug(denise)
Well guys,it has been 11 days and still nothing from Denise or her daughter. Just wish somebody knew how to get in touch with them. That is what makes it so bad when someone does not post for a while. We end up sitting and wondering what is going on with them. Wonder if Greta would help us out with suppling some info in…
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Flagging
Has anyone noticed that when a comment is flagged the whole thread goes when it's removed? John
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New to lymphoma but not cancer
Hello everyone, I was DX with stage IV lymphoma via bone marrow biopsy with 3% involvement. My PET scan and blood were negative. My doc believes it is fnhl so she is recommending watching and worrying...she says I should not be upset as it is highly treatable but the websites I ahve cruised give me a 10 year expiration…
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My little princess pictures on expressions page
I downloaded a few pics of my grand daughters visit last week on the expressions page. I will download a few more later. It takes a while to do it as you know. Especially when you have a rough time getting on. John
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Hi everyone and a question
I had my last chemo treatment on Feb 22, 2012 and I was wondering why am I still so sluggish on some days. I've had two three-month scans which came back great, blood counts are still off a little. Most days I feel great and have a lot of energy, but when a "bad day" comes along it usually lasts for two or three days. I…
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Treatment Update
Well guys, 3 treatments down, 15 to go. I was having problems stretching out my arm without a pulling pain going up my arm. I am happy to say, this pain is gone. The lump is still visible and feels like it's going down in size a little bit. It is still about the size of a large chocolate easter egg, but it's making…
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Kim- Denise/Scuttlebugs daughter
I sincerely hope that your mom is improving, although not hearing anything is truly scary for us. I just want to let her know that I am thinking of all of you and hope that she is getting better and stronger every day. Please let us know how it's going? Take Care, Beth
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Newbie with Concerns UPDATE-1?
About a month ago I noticed some sensitive lumps in my armpits. They didn't go away so I went to the doc and was put on antibiotics for a week and now I did blood work and go for a ultra sound next week. I've noticed more sensitive lumps appear lower in my armpits and also a lump raise on the right side of my neck. I also…
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Maggie is back
Hello to all my old buddies (family) To everyone that is new, I am so sorry You have to be here. My move is complete. Let me tell you, it was one hell of a job. Especially moving from one large house to a smaller house. I did it, and it's over. I don't know where to begin on this site. So much is going on. I signed on with…
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ANY SCUTTLEBUG NEWS?
Just wondering if anyone has heard any news concerning Scuttlebug(Denise). The last I heard was she was down with pneumonia after her SCT. Praying and wishing her and her family good results. John
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I AM FINISHED WITH MY 6 ROUNDS!!!
Hi all! I finished my final chemo today!!!!!!!! Bendamustine w/ Ofatumumab!!! Get a CAT scan in a month with a doctors visit to follow. Onc wants to put me on Ofatumumab maintanence for 2 years every other month. Waiting to see how I tolerate the drug this month. Last month I got a lot of side effects during the week after…
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Should I be worried
As I have written in post emails, I have finished (for the moment) with my RChop and rituxtan three weeks ago until I have further tests done this month. The fatigue is really bad and my hips hurt so bad that I have gone back on my pain meds. Had hip pain for several months, but thought it was just old age (65 here). Never…
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scuttlebug
Has there been any update?
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VA hospitals and Doctors
My husband is a Vietnam vet and has been going to the VA clinic. He has had favorable tr eatment for normal checkups, a colonoscopy and meds. Since I was diagonised with B cell Non-Hodgkins disease with bone marrow involvement I'm worried that if he was to contact a disease that requires so many treatments and tests if I…
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artimesia annua
A friend of mine had cancer (died of heart attack) and used artimesai annua and claimed it made his tumors go away when he used it and they came back when he didn't. Thats all I know.
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Rituxan Monotherapy Frontline
I am very interested in talking to someone who has Rituxan monotherapy as their initial treatment for Non Hodgkins Follicular Lymphoma. Seems to be working for me. However my therapy for Stage 4 NHFL has been very intense. I had 8 weekly infusions to start vs the more talked about 4. My maintenance is one infusion every 8…