Lymphoma (Hodgkin and Non-Hodgkin)
Discussion List
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Heard from Carol (cbpgill26)
I got this from Carol this morning and am sharing as she asked. Carol, thanks for the update and sorry you continue to have a rough time. Hang in there and hopefully this will be over soon. I hope all of this is successful and you won't have to go through radiation or further treatments. We've been thinking about you too.…
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The Gerson Therapy Diet
The Gerson Therapy Hello everyone, I randomly came across this website and read about people who've lost their mother. I lost my mother to cancer and if I could bring her back and start all over I would have tried this. I've been reading online about The Gerson Therapy and there are plenty of people on youtube with…
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results
Well the fl is back. Going to do watch and wait for 3months and rescan. Dammit. It's still low grade.
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Pets and. chemo
I'm curious how many of y'all had pets in your home during chemo and your experiences and methods of staying safe from infection during treatment. We have 2 dogs and 3 cats and a bit of a game plan to keep safe but any and all advice and insight would be much appreciated. Thanks. Aaron
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A LITTLE PARANOID ON THE RASH I HAVE IN THE NECK
A month after my radiation, i have this rash in my neck area, it started itching then it got thicker, reddish...then it started flaking. Is this normal or something i should be paranoid about? THANK YOU! :)
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SGN35 is beating me up
Have done all chemos you can think of, never delt with side effects until now. Fatigue, partial loss of appetite. I'm thinking because it's my sisters sc I am reacting different.
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Just diagnosed with NLPHL
Hi everyone, after years of something being wrong with me(I'm 45) and told its all in my head they finally figured out I have this disease. Had my pet scan yesterday the bone marrow biopsy is today second opinion is next week and treatment after that. Did anyone have sleeping trouble after diagnosis? I have barely slept in…
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Coming off prednisone??
Today is the 1st off prednisone and my body hurts all over is this normal?? I really didn't get jittery on it or felt like I had tons off energy but I am extremely tired. Just wondering if this is something that will pass soon.... I was feeling really good and am starting to get discouraged :(
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Monday evening hello
Hi All, I just wanted to say hello and that I am thinking of you all. I've been following all the posts and there seems to be so much going on. Sometimes I just don't know what to say, it's a hard journey for so many right now. Hugs, prayers and positive thoughts to all. Peaceful healing, Lisha
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Makes me wonder....
Hi guys, At my last R infusion 3 weeks ago I asked my doctor a few questions regarding the long term survival rate with Follicular NHL. I could tell he felt a little uncomfortable by my question, so I showed him some information I had printed out and just asked him to give me his honest opinion on what the info reported.…
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How's it going Denise(scuttlebug11)??
Hi Denise, Haven't heard a peep from you this week, so thought I better check up on you. Hope all is going ok.(???) Drop us a note and put our minds at ease sweetie. Keeping you in my prayers and sending you warm loving positive thoughts! Love you...Sue (FNHL-2-3A-6/10)
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Working during RCHOP?
My husband was diagnosed with FNHL 5 years ago, went through chemo with Rituxan and Velcade, and achieved remission 6 months later. Well, we recently noticed a large mass on his jawline and ultrasounds and PET scans (SUV of 12+) initially confirm presence of lymphoma. The biopsy is scheduled for 2 week from now (we're…
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Auto Stem Cell Transplant (Questions)
Hi Everyone, I recently finished my 8th round of chemo (for diffuse large b cell lymphoma) and then I had a pet scan. When I went to see my doctor to get the results he told me that I have residual mass left on my lung with an SUV of 3. We had previously discussed the posibility of an auto stem cell transplant and I met…
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C returned after our stem cell transplant, at day 102
We heard to day that the cancer has returned. We have dealt with this for 2 years now. The stem cell transplant was March 6, 2012. PET scan was yesterday and its back. A total shock Thought we had a shot with the transplant. Really hard to deal with, but will learn our options next week. Anyone have any ideas or similar…
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Something to think about :)
I thought I'd share this native American story - simple and true: A native American grandfather was talking to his grandson about how he felt. He said 'I feel as if I have two wolves fighting in my heart. One wolf is the vengeful, angry, violent one. The other wolf is the loving, compassionate one.' The grandson asked him,…
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Biopsy7
Well have another spot under my my arm. Go for biopsy monday. Dammit
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False positive PET scans
Well i had my 2nd post chemo PET scan today. My first post chemo PET scan was not so good with an SUV=8.9. I was obviously devastated by my last PET scan. My doctors told me it was probably inflammation and to retest in 2 months. I went to my Oncologist today and he told me my CANCER IS GONE!! SUV=0! I am living proof that…
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Do I have Hypothyroidism?
Hi all, I just discovered this site. I was diagnosed with Nodular Sclerosing Hodgkin's Lymphoma Stage IIA at the age of 23 in 2002. I underwent 8 sessions of chemo in 2 week intervals (ABVD regimen) and was zapped 24 times on a linear accelerator. After 9 years of nothing (hoorayyy) I am starting to experience cycles of…
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2nd post chemo pet scan tomorrow
Go in tomorrow for my second post chemo pet scan. My last post chemo pet scan was 3 weeks after my last chemo back in March. The last pet scan came back positive after my Oncologist told me i was cancer free. My last 3 ct scans have all came back with no swollen Lymph Nodes. My Oncologist told me that the positive pet was…
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Mouth Sores
I have mouth sores like a mother. Any suggestions on how to take care of them or get rid of them would help. I am currently taking my Mycelex lozenges and those sometimes work but not lately this is my fourth round of SGn35.
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1st Chemo Treatment Tomorrow
Leaving tonight for my 1st chemo treatment and i just want it to be over already :( We live 3 1/2 hrs from where my onocologist is so it looks like a night in a hotel and tossing and turning for me. Thankfully after the first one i will get them done at our local hospital that way i can go directly home afterwards.
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NHL: ALLERGIC TO RITUXIMAB
Good morning! New here :) I was diagnosed with NHL last year, November and by God's grace, my tumors shrank after 6 chemo and 18 RT BUT WITHOUT RITUXIMAB, was allergic. Anyone with the same case? I want to know if there is a higher chance of recurrence?
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PRAYERS NEEDED
Hi All, I came across a post from one of our group members. Many of you will remember Tracie1981, she was a young mom with Hodgkins. Her 6 year old daughter is now fighting cancer. She was diagnosed on May 30 with a Brain tumor, Pilomyxoid Astrocytoma. She had had one surgery and is starting chemo. She will have another…
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Here's to us becoming stronger!
I came across this video this morning. Here's to us becoming "stronger" ! :) Keep up the good fight! Hugs to you all, Jim
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hi everyone..: )
hi..i have completed 6 cycles of abvd and my pet scan results shows stable disease in mediastinum..My oncologist suggest me to do radiation around 20times..im just curios about the radiation side effect and is there any chances to get secondary cancer by doing it?\ anyone pls i need some help on this..tq hodgkin lymphoma…
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hi sue and john
still here the retuxan makes me feel so tired i dont feel like moving after two treatments my platelett count is still the same 26000 i need prayer for my faith. blessings denise
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Fathers day weekend...
"HAPPY FATHERS DAY" to all of the wonderful fathers here! May your weekend be filled with lot's of love and pampering! Sunday we are having a peaceful afternoon cookout with our 2 boys and grandchildren. Love to you all...Sue (FNHL-2-3a-6/10)
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Scuttlebug (Are you out there)
Denise, Checking to see how you are doing. You may not feel like posting right now,but when you get a chance let us know what is going on. Thinking of you. John(FNHL-4-1A-5/10)
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My port has been placed
Yesterday was the scarest yet... I has my port put in and it was like reality finally hit... I have CANCER!! The procedure went well I am greatfull for my amazing doctor. I am sore today and extremely tired.... Three surgerys in 5 weeks has taken its toll on my body. The last two surgerys I have bounced right back and went…
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Results
Hello everybody, I went to see my Onc today and he was very happy that I'm responding to treatment. My spleen is slightly enlarged but decreased in size from previous test. A few lymph nodes showed improvement and others stayed the same. The pain that I'm getting on my back is due to a 2mm disc bulge with annular tear,…