-
Ned after 2 years translocation rcc
After about 25 months since diagnosis, still cancer free. Moving to six month scans! Glad to see others are Ned too!!
-
Another NED
CT clear today and for some reason, they did an ultrasound on my testicles. I asked the doc, he didn't order it. Kinda weird and I don't recommend it.
-
3 year scans
I just finished my 3-year scans today and got the "all clear" for another year. Happy...you bet!! CR---I know your scans are tomorrow, so I sent Uncle NED your way. Stub
-
Hey hey
3 year scan tomorrow. Dealing with the people at doctors offices suck. Been trying to keep my mind busy, but tomorrow, I face the music and get in the donut.
-
3.5 weeks post partial nephrectomy
Hello everyone. Newbie here. I had a partial robotic nephrectomy 3.5 weeks ago to remove 2.5 cm mass in right kidney. It was Stage One RCC. They said they got it all and the next follow up is in three months for renal function study and scans every six months. I feel okay. Started going back to work part time, full time…
-
5 years Ned officially told I'm done with the scans
Had my 5 year scan back in February. Was told I'm all done no more scans , no more follow up. I'm now normal and only need to see my Doc once a year for my annual c/up. Doesn't seem like I'm normal. I don't feel normal. At least mentally. Cancer is very difficult to deal with mentally and emotionally. But I do feel better…
-
8 Months Good - Not so As Of Today
I'm 60 yrs old male. I had my left kidney removed Oct 2019 along with ( 30 nodes all clean) - RCC. Robotic surgery for 6 hrs and out of the hospital in 18 hrs after surgery. My first scan FEB 2019 was clean, no concerns. Blood work good. Fast forward June 20,2019. NEW CT Scan - I have a new lung nodule .. had 2 previous…
-
Irbesartan for hypertension
I recently found out that a medication (Irbesartan/HCTZ) I take for hypertension was recalled due to its containing a contaminate that is a probable carcinogen. I have been taking this medication for several years and am now wondering if my kidney cancer was caused by this medication. The articles that I have read…
-
It's coming out!
So on July 19th they are taking my kidney. Not going to lie, it bothers me. But I know I can do this. I went through two years of breast cancer and still taking those awful pills for prevention, I can do this. But it bothers me really a lot. My kidney removal is due to UTUC of the kidney, which is in the bladder cancer…
-
NED Neddie Neddie Neddie Neddie
Hi Everyone, I had my last appointment today of many in my yearly preventive maintenance and follow up trip. General physical; pilar cyst removed from scalp; labs; ultrasound. All clear on everything. Doing the happy kidney dance. While my lab numbers are not where I would like them to be, my surgeon said I have better…
-
June 20th World Kidney Cancer Day
Sharing this online event happening this Thursday for World Kidney Cancer Day. More info at the link below! https://kccure.org/2019/06/a-day-of-kidney-cancer-talk-june-20th-world-kidney-cancer-day/?fbclid=IwAR3HC_NJwBFoNFlofxi2UGin2Y8GKtL1DhwPfNk08l-G_QHgdRwr5VG9IjM Summary - KCCure and Kidney Cancer Canada join forces to…
-
Checking-In
Hello all - it's been awhile since I've posted, but I read regularly. Quick update for me...see my urologic oncologist every six months - saw him this week and all is well. He gave me a high five and a big hug. Both the renal ultrasound and chest x-ray were NED. Bloodwork all normal. Wheww! It's been about 18 months since…
-
I might have to join a new board
Ecerything's ok with the remaining kidney., but rhe Prostate valve on the plumbing is suspicious and I am having a biopsy on July 26. icemantoo
-
Uncle Ned Dropped By
Got the results of my CT from yesterday and all is fine. Another year with a visit from Uncle Ned.....and he brought a nice, smooth Cabernet with him. He said he’d come by again to visit next year, but he had to jet off to go see my surgical buddies jazzgirl and Stub to tell them their good news.
-
3 Year Follow Up
Hi Everyone - especially Bay Area Guy and stuib1969 as we seem to be in the same cohort... Monday, Tuesday, and Wed of next week I have my annual physical, labs, ultrasound, and followup with urologist/oncologist who was my surgeon 3 years ago. I come to Iowa every summer for events around family, church, and jazz band…
-
1 month post op and more
I had my 1 month post op check up with my Kidney surgeon. He told me all of my Kidney tumor was removed with clear margins and I would need no further treatment. I will have follow scans every 6 months for 5 years. Now the stuff I have been dealing with. Before I had my Partial Nephrectomy, I was having some other health…
-
Recurrent in IVC
Hey all. Does anyone have any experience with recurrent RCC in the Vena Cava? Looking at my second surgery in a week to have a small tumor removed and the Vena Cava patched. Its been almost 2 years since my nephrectomy and I am trying to wrap my head around what may be coming. Any thoughts or advice?
-
The Good, bad, and awful
This is my first Post in awhile. I needed a break from here and today I caught up on some Posts will go back to all of them. First off, had the 2 years scans and was not bothered like the other 2 scans. Came out NED, GFR improved, blood pressure good and weight same. Hit a home run and thats the Good. Got the CALL…
-
My first six-month follow-up scan (scanxiety is weird)
After my neph six months ago, this is my first time going through this. I mistakenly assumed I would get a yes or no answer - "congrats, no evidence of disease" or "unfortunately, there is evidence of disease." Instead, I got "good scan". My abdomen CT scan showed everything looked healthy, except for "mild soft tissue…