Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Archives for May 2018

Rough day today
I am about 2 months post op after a radical nephrectomy to remove my left kidney and the nearly 14cm tumor. At the time there were no signs of metastasis, clear margins, lymph nodes clear, etc. The pathology came back as an agressive type of uRCC but the surgeon and urology team was pretty confident they caught it in time.…
And the circus is still in town!
So after a long anticipated wait for what is supposed to be a "simple procedure" has yet again been put on hold due to the fact that whatever a******* are in scheduling screwed up and after a almost 4 hr drive bloodwork and an unnecessary MRI the machine to do the cyroablation is unavailable to do a procedure that has been…
Oncologist or Not
I received my pathology report back this week. Grade 2 stage pT1a. I meet with my family practice dr Thursday morning and my urologist next Thursday morning. My question do I ask for an oncologist or just let the two Drs I see now continue to monitor me. I totally understand that my situation is better than a lot of others…
The time has come
So today is the last day of my self imposed break from plexing on my cancer...lol Thursday I will finally be headed down to Seattle for an MRI, bloodwork and a biopsy followed by a CT GUIDED cyroablation. Now as most of you know this has been a bit of a circus act trying to get this done so here's hoping there is no hitch…
Relatively New to Forum, First Post
Relatively new to the forum although I have been looking in ocassionally. First round with RCC was Nov. of 2016 left kidney nephretomy,first post-op CT was done in Feb. 2017 and was clean. That all changed with another CT in Aug. of 2017. After a CT biopsy it was confirmed that I had a metastic RCC tumor on my paritineum…
Missing CSN Emails
Most of my valued friends and saved messages are missing from my csn email. It saddens me.Particularly lost messages from those that have passed. Anyone else having this issue? Treasured correspondence is just gone. Some going back many years. Perhaps a moderator can be of some assistance.
Very long but need any advice on 6 month CT scan
So I have been following and posting here randomly . I dont always know what to say but try to help. You all have been a great help to me. I am here agian for any advice and prayers. I just had my six month scan results today and I am really trouble and scared. Here is my history again. Stage 1 Grade 1 4.5cm. No Rhabdoid…
Anemia after surgery
Hi everyone. My dad had a radical nephrectomy on 3/28. Prior to surgery he was very anemic, which is what led them to discover the tumor. He had a blood transfusion before surgery, but they did not transfuse during or after. They try to hold off on transfusions if possible. After surgery his hemoglobin started to climb, he…
Complex appearing irregularly margined cyst mid pole
Hello Everyone, I was just referred for a CT scan after an ultrasound (for an unrelated issue) showed a "complex appearing irregular margined cyst mid pole of the left kidney measuring 2.1 x 1.9 x 2.3 cm". I realize that the CT scan will likely tell me more but, as you well know, the waiting is so scary. I wasn't worried…
Mom just diagnosed today
On Friday my mom, who has been the school nurse for over 30 years in the very small town I grew up in located in MA, began writing illegibly around 9:30 am, by 12:30 she was slurring her speech and passed out. She was taken by ambulance to the hospital. I now live in Texas so I am very far away from her. My older sister…
Multiple cancer in Right Kidney and 1 exophytic tumor in Left
Ok.....Here's the update. Still blood in my urine. That's not good news. Something is going on with the section of my right kidney that they did a partial Di Vinci surgery on 17 weeks ago today. Clear Cell Renal Cell Carcinoma, Grade 2, pT1a. There is a 'subtle abnormality' identified in the posterior lateral aspect of the…
New here, husband has stage 4 kidney cancer
My husband was having a racing heart and went to ER. He had a x-ray on his chest and they found a mass on his 5th rib. Had a biopsy done and came back kidney active. Went to have a CT and showed a 5 x 6 cm mass connected to his kidney. We are only beginning this journey. 5-25-18. Any advice or recommendations welcome.
Why is my son waiting for Kidney surgery so long?
My son was diagnosed with Stage 3 Kidney Cancer about 2 weeks ago. Been thru all the tests, scans and MRI. Schedualed for Full kidney removal surgery May 30th. He is in constant Pain, Night Sweats, Cold at night and eating very little. Medication is Hydrocodon with Tylenol every 6 hours with advil in between that. He has a…
Help. New and so confused.
Good afternoon. I am hoping for advice from some people who are/have been in the same boat. Approx a year ago during a CT scan for something else, a small tumor was found on the bottom of my left kidney. I was placed on "active surveillance" without much explanation. I switched doctors because I could not get into see the…
Complex Kidney Cyst
Hi everyone, I found out yesterday that the simple cyst on my right kidney is now complex. I have had it for a few years. It did get bigger which is why the ultrasound tech recommended the CT Scan. My doctor called and said I have to see a urologist because there is a 5 percent chance its cancer. I know this seems like a…
Question with Pathology report?
How come on my pathology report it stated multinucleated sarcomatoid tumor giant cells are present but it's doesn't no mention the percentage of it. Can anyone help me to understand what it mean? Thanks!
Had Brain MRI the 16th
After kidney cancer surgery 3/8/18, and all info on that is in my profile, I have begun to get dizzy. I had a week where I was pretty much down and out! Earth shattering dizziness. Doc couldn't figure it out, so they ordered a brain scan. Just before that, I started taking antihistamines, thinking I had a bug or allergies…
3 months after partial nephrectomy
This is my status 3 months after my partial nephrectomy Feeling better , much better.... I already playing soccer again...2-3 days / week.... I could say that phisically I am 95%... mentally, well, thats the problem... hard episodes of fear and anxiety, but still working on it. Trying to lose the extra pounds. first time…
OS exact meaning?
During my reading on kidney cancer medical documents (for my dad condition) I have gained a good insight into the illness and its treatment but there is one thing that is not fully clear to me. I am sure you will know to explain it: Whenever you read about a clinical trial, different achronyms appear like PFS, ORR and OS.…
Anyone on this trial ? Atezolizumab & Avastin
My Mom just had her 2 month scan appointment today . She started Cabo 60mg on 3/13; she took about 5 days off after 3 weeks. And then did 60 every other day and then on 4/26 started 40 every day. While the kidney tumorshowed no growth, the bone mets in her spine showed some progression & now a new spot on the liver. Her…
So My CT Scan
says the left mass is unchanged BUT says I have 'Anteriorly within the midpole of the right kidney, there is an enhancing renal mass measuring 1.4 cm." That's the kidney I JUST had surgery on! The report didn't say "complex" or "solid" so I'm not sure if there is another cancer they missed? Any thoughts?
16 weeks Post-Op
Had my first post-op scan today to see how the right kidney is doing after a Divinci partial 1/24/18 and to see how far progressed the cancer is on my left kidney. Last scan 11/27/17 showed .5 cm. Find out results next week. Not looking forward to a 2nd surgery so soon and while still healing from the first, but it is what…
Chromophobe RPLND Surgery
Two years ago I underwent a very successful surgery called RPLND surgery, this surgery is the reason I am alive today. Two days from now I will be attending my youngest daughters high school graduation. The sole driver for me to turn down targeted therapy, and instead pursue surgery, was a thought CSN post July 2012 from…
Interesting Observations
Good morning! Some things pop in to my mind and they are quite interesting. Since having my kidney and cancer removed, I have noticed the following... Night sweats are gone. I am not freezing cold all the time. I mean the kind of cold where you sit in a hot bath and your inner core still feels freezing. My hair seems to be…
2 years.
Since my diagnosis. Feels like 20.
Hello
i don't know if any of you remember me. It has been over four years since my husband passed from kidney cancer (collecting duct carcinoma). I check in periodically and am glad to see fox, Jan, and iceman still doing well! It's amazing to me how many new advances there have been over the last several years. When we started…
Relay for Life
Anyone on here do this? I'm thinking about joining one here and not sure what to expect. Looks cool, but locally there doesn't seem to be much info.
Plan of Care
I have been spending a bunch of time at the bedside of a friend of mine who's been quite ill and in the hospital. Nope, the admitting diagnosis wasn't RCC, but the "Plan of Care" I saw written on my friend's in-room white board the other day is definitely applicable for us RCC folks. Plan of Care * Wake up * Nutrition *…
Sending NED and goodwill to all!!
Just got done seeing Dr on my 1st year and 2nd set of scans. For now all is well and he is happy with the scans and lab work. I'll have chest Xray in 6 months with blood work. CAT scan next year. My wife and I have had an awful year with several deaths in our family and close friends. We hope this will be the start of a…
Same side foot discoloration/dryness
Has anyone had a nephrectomy and experienced same side foot discoloration and drynes? Our son (4yrs old) has had these symptoms since the first week of his surgery. We are now 3 months post surger and still have the symptoms.

Kidney Cancer

Discussion List