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Kidney Cancer

Archives for January 2018

New member
Hello everyone... I like everyone here was diagonsed with Kidney cancer on Nov 29th 2017. On Dec 5th I had a radical nephrectomy to remove a 13cm tumor. Pathology returned as a T2bNXM0 grade 3 clear cell carcinoma. Although my doctor is convinced he removed everything and I am cancer free my anxiety unfortunately is…
Packing wound that won’t heal
3 weeks out from partial nephrectomy. Incisions 4 healing on right side, 1 healing right side middle. The one on left side is a hole shy of inch long and 3/4 inch spread apart. Was infected so just finished Keflex. Now they have me packing it and covering with bandaid. Adhesive allergy is causing a bit of a challenge.…
Keloid Scars
all my surgical scars have turned into keloids. I was concerned that 1 would but I don’t anticipate all 5 would go that route. I’m 3 months post op so they may grow a little more based on passed experience with a couple of scars from a bicycle mishap many years ago. Has anyone else developed these type of scars? Ive never…
Eight years on CSN
On the good side I continue to be Ned and my Kidney function has improved after losing a lot of weight. I will be 75 years young this Summer and 16 years NED a week later on August 1. On the other side dealing with non Kidney heath issues and recovering from a fall last spring. Hopefully I will be able to continue for…
Today's Urologist Visit
First Urologist visit went fine - I did find out he will remove it laproscopically (YAY!). It is a litte bit of hurry up and wait (and worry) before surgery, though. Going in next Tuesday for chest x-rays, lung CT Scan and bone scan. Follow up visit with the doctor again a week after that to set the surgery date (probably…
Thank you
I’m one of those who read this forum daily but don’t post much. So I just want to say thank you to all of you that do post! Jan4you, when you send loving hugs, we all get them! Steve.Adam you always have some practical advice we all need to hear. Foxhd thank you for your insight and encouraging us to post. Donna.lee we all…
Timing of Scheduling Scans - Opinions please.
My Dr. diagnosed me on 9/22/17. My surgery was 10/12/17. My first follow-up visit was 11/22/17. My next visit with him is 3/14/18. He gave me scripts for CT of Abdomen & Pelvis with IV contrast and Chest with contrast ( 4 tiny nodes were found In my lungs, 2 on each). My pathology was T1a NX crRCC grade 4. So my question…
Camp lejuene water
the water at camp lejuene was contaminated and the goverment has said that if you were a service member worker or family member that spent at least 30 days on base they except they will reimburse you for your medical bills. If you are a veteran they will grant you dissability. google search it and you will find out all…
Surgical Biopsy tomorrow
I've been a little lax here lately. Work has been extra stressful, and by the end of the day, I just haven't had the energy to read and respond. And now I'm back in the thick of "adventures in diagnostics." After three inconclusive, minimally invasive attempts to identify my lung nodules, tomorrow I go in to have a couple…
Ned ;)
Got report for my ct and chest x-ray . The waiting was needless to say "awful"! Happy to say there was no changes from my last scan and I'm ned! Wishing everyone luck with their upcoming scans. Kim
Diet and Cancer
If you are interested in how a ketogenic diet can help fight cancer, then search youtube for 'Adrienne Scheck'. The video I just watched is 'The Ketogenic Diet for Glioma'. It really is very interesting. Steve.
Solid 1.8cm
Just found out I have a 1.8 cm tumor in the upper lobe of my right kidney. This was found after complaint of lower ab cramping on left side. Still dont know why cramping. local urologists says with out biopsy 80% sure cancer. But so small just leave it alone and watch it. I am not so sure about this and feel like if they…
What does define the stage of a kidney tumor?
the size? if it has spread? I am reading in this forum that people with tumors < 4 cms in stages 3 or 4 i went to my doctor , he already sent me with the urologist, this morning he told me we have to wait to see the urologist to define the stage and therefore the treatment my tumor, according the Ct scan is 5.1 cm and no…
Rookie Question
A quick question about one (of many) things I don't understand: According to the CT scan, my mass is <7cm. The CT scan showed my other organs in the abdomen were "unremarkable" and to the best of my understanding the stuff around the kidney was all good and nothing showed up. I'm assuming (hoping) that means nothing has…
Urologist Appt tomorrow
Just got a call from the urologists' office - they had a cancellation so I'm going in tomorrow. I guess we'll discuss the surgery date. Is it possible to be anxious and relieved at the same time???
Post Op?
I’m having an open patial on my right kidney on the 26th. Once home, how tough will stairs be? How long before I can shower? Just wondering as I’m trying to plan a few things. Did just buy a really comfy recliner.
Future Follow Ups
Hi all, A while ago I was comparing the follow up scans you North Americans get to mine here in south east Queensland, Australia. I thought they were going to say good bye and leave any follow up scans to my GP (PCP). But, I was wrong. The urology dept. of my closest hospital (where my nephrectomy was done) will monitor me…
CT scan ==> nausea / ill feeling / thirsty all the time
I am not sure if is related but after the CT scan/ with contrast (I drank the contrast+IV) I have been nauseas and with some tireness sensation during the last 2 days (CT scan was Jan 5) also my lips are dry all the time. Is this "normal"
Surgery scheduled
Hi all, Well I saw the Dr. on friday, and the first date he could schedule for the surgery is March 12th. I do not like to have to put it off so long, so I plan on calling his schedular every friday to see if there is an opening.... The mass is in the lower pole of the left kidney, he did not give me an exact measurement I…
Just Being Honest
Hi all. I joined the group no one wants to be a part of last fall lol. I have appreciated every comment, positive thought and conversation. A lot of the surgery and recovery info proved to be helpful and true! For all of that, I am thankful. I have to say something I have noticed though. Nobody really talks about mental…
CT Scan Results and Questions
I received my CT scan results today - and I'm in an odd situation where I got them before I spoke with my doctor, so it's me and Dr. Google figuring things out right now. Overall, I don't THINK it looks that bad. The tumor is a little bigger than the ultrasound showed (4.8 cm vs 3.3 cm), but all of the internal organ stuff…
secondary hypertention and rcc
I have chronic stage 3 rcc chromophobe with secondary hypertention that my Dr is trying hard to get under control. Very fatigued. Anyone else?
Ct scan with Contrast
Well. Finally the day arrived of my CT scan. I am here in lobby drinking the contrast . A lot of things are pssing through my head but Im trying to stay possitive . I guess soon I will find out what I against to...
Stage IV is only over when the fat lady sings!
And I hope she can't find the music.... Since September, I've had 3 sets of labs, 3 CT's, a brain MRI, almost a biopsy(cancelled once I was fed into the CT machine and she saw the spot), a DXA scan, a mammogram, 2 appts. with my Internist, 3 appts. with the Oncologist or Nurse Pract.; and there's still more to go. The…
Checking In
Wishing everyone a Happy New Years. Just wanted to say hello. I haven't been visiting often these days. I got very bogged down with family issues. Some good. Some not so good. My dad passed in September. My mom was in and out of the hospital for a few weeks and I ended up having to spend several weeks in Tulsa, Oklahoma to…
Genetic Testing
Genetic's nurse called today and said I did not test postive for any of the 24 known cells for cancer. I was worried about the VHL thing!!! Thank the lord, I feel this is great news!
Monitoring lung nodule
at the moment I’m being monitored for a lung nodule ! Can anyone tell me what treatment is used if this turns out to be a met from my renal cancer ! thanks in advance
About Sslee723
I have been wondering about Sslee because she was very sick and stopped posting here. I guessed her name and used google to find some gofundme pages and a funeral home page. Search for 'Stephanie Lee West Babylon'. She died on October 17th. Steve.
Two weeks after surgery
And still having issues when I urinate the stream is narrow and there is pain every once in awhile. I hope it did not damage anything when they took the catheter out going to see the specialist on the 8th for my first follow-up, hopefully this is not a permanent thing and one thing is for certain I sure don't want any…
Wound healing
Hi, I had a partial nephrectomy 2 weeks ago just wondering how long before the wounds heal and for the scabs go away also and many of you dealt with itchy scabs as they heal up and for those that did how did you deal with the itching? Thank you Sal

Kidney Cancer

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