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Waiting is so hard
Hi I was in hospital last week for complication (they thought) with my Chrons. 2 CT scans, 1 ultrasound later a hard 3cm mass on left kidney. I have had pain, fevers blood in urine. I have now to wait till the Muti Specialist Team for Renal meet in Glasgow which is once a week! My partner works away as a lorry driver. It's…
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Last year at this time.....
I was an emotional wreck. My wife and I had just been told by my kidney doctor that I had a mass on the lower pole of my right kidney that appeared to be cancer. He told us that he'd make an appointment request with our local Urologist for follow-up and to expect a call from them in the next week or two. I was devastated.…
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Urine Blood After surgery
Hi! 2day is my 11th day from my partial kidney removal via laparoscopic surgical. Every thing was good till today. I had urine blood quite a lot..... is this normal or part of the healing..... ?
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Seeing the specialist tomorrow, contrast allergy question
Hello to all of you lovely people that have been keeping me somewhat sane while my kidney mass gets figured out. I had an MRI with contrast recently and was told if the mass looked stable, they would repeat the MRI in 6 months and I would see the doctor again at that time, in fact, I made the appointments already for…
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**UPDATED**Had Partial Nephrectomy**- Just Dx'd & weighing tx options
Hi. I've known about my Left Kidney mass since the end of March...when it was incidentally discovered. It's taken this long to finally get an answer as to if it was benign or cancer. Multiple tests, waiting for insurance approvals, 1st Needle Biopsy missed tumor, more tests, waiting, waiting, waiting. So with the 2nd CT…
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Confused about aggressive
So, my cancer WAS stage 11 aggressive, I have read that cancer grows only so much each year, then I have seen and heard of some that within few months it has spread fast, I'M CONFUSED.
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Scananxiety
in May 2017, I had a 1.2 cm, stage pt1a grade 1 with no vascular invasion clear cell rcc removed. I am coming up on my first 3 month follow up and very anxious. also, does anyone know what the chances of recurrence in other parts of the body? I am not sure I worded it right. Just nervous and looking for guidance. thanks
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Frozen shoulder, ugg
Hi, newbie here, So, I had left kidney removed July 2016 due to RCC, gallbladder removal Aug 2016. Then Mar 2017 just lifted my left arm, immediate pain, waiting on MRI results, anyone else with shoulder problems?
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Connect with caregivers
I've been in this for a long time now. Almost 10 years as a caregiver & my fatigue is getting the better of me. I am a woman in my 40's and would like to connect offline with other caregivers with similar profile. I have not visited any support groups yet because I'm afraid those caregivers may be caring for patients who…
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Partial Nephrectomy Yesterday
i am home today after having a partial done yesterday (lap). I wanted to share my experiences. I was home in like 24 hours from time of surgery. Amazing how things went so smoothly. They wanted me out of the hospital! It wasn't as scary as I imagined it to be. Much less painful Too. Surgeon told me that it went well and he…
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Long Term Recovery Healing
I am a 56 year old male and 10 weeks post robotic partial left nephrectomy to remove a 4 cm oncocytoma. I see lots of accounts of recovery in the hours or weeks following recovery but little about long term. My recovery has been very good in that my strength and stamina are probably 80-85% of what I was before surgery.…
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Surgery today
Randy has his surgery this morning. Total nephrectomy. One step closer to finding out exactly what it is. Wish us luck!!
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Bad news yesterday
so yesterday was my 29 th wedding anniversary and isle t it in the emergency room. I have been having pain in the right side of my chest and abdomen and finally after 2 days no sleep I went to ER. Well 8 hrs later a scared to death PA came in room to tell me that my cancer has spread more. It was probably what was causing…
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Going cross country will on cabo
I have been fighting the side effect game with Cabo for a few months now and my daughter asked me to take a trip across country from ny to ca. I've told her no because I feel like crap 50 % of the time and Don't wanna be a burden to anyone . My husband says I should go but I think it's to much. I just don't think they…
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What's For Dinner This Weekend??
Earlier this week I made a roast taters and sweet pepper dish that She Who Must Be Obeyed really loved... 5-6 med sized taters, skinned of you prefer, chunked to bite size. Chunk enough multi-colored bell/sweet chilies to make an appx 50/50 ratio to the taters. Olive oil to coat and salt, pepper, onion and garlic powder to…
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Cabo - maybe these tips will help someone..
I was treated with Sutent and Opdivo which only worked for me for a short time and then things got quite a bit worse. I then switched to Cabo and within days felt better, and started healing. My scan after 8 weeks showed significant decrease in my tumor sizes and my back mets pain almost went completely. I found a few…
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Opinions would be greatly appreacited
Hi Everyone On October 5, 2012 I had surgery to remove my left kidney. 11CM Stage 3 Grade 3. The tumor had invaded the renal sinus and muscular veins, I was then 50 years old I had scan every three months for a year, then every six months and after 3 years once a year. In October of 2016 the scan disclosed three nodules in…
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Three Years NED
I have not been active on these boards in a while. While I have been fine, I have been dealing with both of my brothers having different forms of cancer. Younger brother who lives alone had throat cancer, and fortunately, he is doing well after surgery. Older brother is still dealing with a rare lymphoma and tumors in his…
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Finally Had the Nerve to Read the Test Results
and the doctor's notes read -- CT/PET scan looks good, no cancer is found Thank you guys for helping me have the courage to read the online scan results before the appointment next week!! The radiologist note does mention scar tissue at the surgery site but it doesn't appear as a malignant formation. I am trying not to…
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Sutent to Opdivo
My liver functions all screwed up and have to get off Sutent after two years. Going onto Opdivo end of next month. Can anyone tell me their experience? Thanks, Michael
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Help, going to surgery!
Hello everyone, very glad to have found this website. Well done to you all! I wish to just brief my situation with hopes to get a few replies. I am due for surgery next week, full nephrectomy and now possible lymph node removal. I was diagnosed over a year ago, but due to the complexities of other extremely serious…
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July 17th, 2012 - today....
This time 5 years ago I was being wheeled into the ICU after a 'Full Right-Neph'. Thank you to this community for all the love & support; I pray that with 'God's Will' I'll be posting another one of these messages in another 5 years :) God Bless everyone!
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Anyone been diagnosed with this type of rcc
Hello. My husband had a biopsy of his kidney tumor and he was diagnosed with Clear Cell Papillary Renal Cell Carcinoma. This is not the same as either classic papillary or clear cell rcc. From the American Journal of Surgical Pathology...... "This tumor has immunophenotypic and genetic profiles distinct from those of…
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Talked with a neighbor
A very good man. Of course we discussed my health. I stated that at least I know what I'm going to die from. He answered that that wasn't true. Because maybe I might get hit by a bus tomorrow. I decided not to put a song in his head. It's the first time I've heard that comment in a while.
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Second Opinion
While I'm waiting to have the partial nephectomy I of course have been coming up with new things to worry about. The latest is "should I get a second opinion before they take out part of my kidney". I'm pretty sure that the partial nephectomy is the standard treatment that they will all recomend but should I go to another…
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Two Weeks
Being that waiting is not my strong suit, ESPECIALLY where RCC is concerned, I feel like I'm missing something being on Opdivo. While on Votrient, I felt like I was doing something every day to kick "Bob's" @$$. "Bob" being The Wife's and my name for the annoyances in our life... But from what I've read here most everyone…
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Movies You Like And Your Major Gripe About It
Godzilla, 1998. The first Apache AH-64 chase thru the streets of NYFC. They lose Godzilla and he winds up taking out 2 choppers and the last makes a run for it, and gets chased thru the streets. Then as the pilot reports he's lost the target, Godzilla comes up from the street and snaps the chopper off from the rotor on…
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Fifteen Years on August 1, 2017
Some observations and a few thoughts: NED X 15 NBD X 15 Each of the 5 grandchildren has become 15 years older. No new ones. The 18 year old girl I met on the beach (Icewoman) will be 73 this fall. The survivor rates for each Stage of RCC have increased over the last 15 years.. Ice Tongs are no longer used for RCC Surgery.…
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Nearly 2 years now, About to get radiation (1st round)
My progression has been slowed by cabo or just luck, but I have progression now that is beginning to effect me. 3 Lymph nodes, 1 in my neck, 1 Back and 1 abdomen. My neck one has grown to 5.5 cm and is pressing my carteroid, larynx, thyroid. My abdomen is pinching my IVC and other vessels causing blood fow obstruction. I…
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Oncocytoma with necrosis??
Our docs have been back and forth for 3 weeks now with diagnosis, it has been sent out to the Mayo and various other places who "are scratching their heads". This morning we got a call to celebrate, said that it's an oncocytoma and referred us to a surgeon at UPMC shadyside in Pittsburgh. When they did his biopsy they told…