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Long term drug effectiveness
I have had great success with Votrient. The RCC had come back twice in my chest and Votrient has been very effective in controlling it. Obviously, I'm very happy about that. It's been about 18 months under the Votrient treatment. Whether it's Votrient or some other chemo drug, what are some stories from our group as to…
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Cabo update
Well I am going into month 3 on 60 mg Cabo. Not having fun yet but learning how to deal with side effects. I've learned unfortunately if I want to have the slightest bit of normalcy I can not eat before I go out. If I have errands to do I need to do them in the morning because I'm worn out from doing nothing. I'm…
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Clean Scans
I had a partial neph almost 13 months ago, so I just had my second round of monitoring tests. Chest x-ray on July 3rd was "unremarkable" (a lovely word to read on an x-ray). I had my CT scan yesterday and my surgeon just sent the results - everything looked great. Since it was an abdominal scan (and since I've had other…
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Do You Look at Test Results?
My husband has his first scans next week since having his right kidney removed in March. Worried doesn't even begin to describe what I am feeling but I know that you all can understand that. He doesn't see the doctor until the following week. His results should be in the patient portal before then but I am not sure if we…
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Laparoscopic partial kidney nephrectomy on t1b
Hi! Dear All, I was diagnosis last year (2016) by ultrasound during my yearly annual medical check up. They found a mass of size 3.5cm. I thought it was not serious matter, just cysts or kidney stone. Recently, i just taken a CT scan (finally), revealed the tumor had growth to 4.6cm and confirmed is RCC. After i joined…
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Gout after removal of kidney
Has anyone who never had gout before been diagnosed after removal of a kidney? I am 6yrs post surgery for stage 3 kidney cancer and now I have had to bouts of gout. Because I a m not getting rid of uric acid. I am going to start a nephrologist havent before had one. I am 69 yrs old and still working. I have hypothytoidism…
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What to expect during Recovery from partial laparoscopic nephrectomy-
what should I expect during recovery from a laparoscopic partial nephrectomy? The Dr said I'd b in the hospital 3-4 days and probably feeling pretty normal in about 4 weeks. I'm 45 and not in great physical shape but not to bad either. I have a 10 year old and 17 year old at home but at that age they're pretty self…
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Desparate for Advice on Nexavar (Sorafenib) Side Effects
Hi and hope everyone is doing great. My husband started Nexavar 2 weeks ago and has developed a severe body rash and extremely painful blisters on his feet. We are looking for some advice on how to make him feel better as he is starting a new job after being off for the past 1 1/2 years and cannot afford to pass up this…
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Advice
I am looking for advice. For about 1.5 years i had imaging that showed a possible Bosniak 2f cyst, we watched for almost 2 years with no change at all. On May 2nd, a 1.2cm clear cell rcc was removed from my right kidney. My urologist told me that everything went well and it was gone. He said it was so small that they…
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New Here. Confused by differing radiology reports
In June I had a CT scan with contrast for suspected diverticulitis. it turned out that there was a 3cm solid mass on my right kidney & multiple sub cm cysts. There was a 1.6 cm mildly complex cyst on the left. I was referred to a urologist who told me that the left cyst was probably just a cyst but that we'd watch it. He…
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Awaiting kidney cancer diagnosis
I have created this page for information for myself and my fiancé. He is our patient here. We are 26 years old and just can't catch a break. Recently he had a collapsed lung and was diagnosed with bleb disease and underwent surgery to resect the blebs in his left lung. Just so happened to catch a solid mass on his right…
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Blogs
Does anyone else here have a blog set up?? Or do y'all just use the discussion board for the day to day stuff in the life of a cancer patient?? Being a FNG here I'm trying to learn the ropes on the best ways to interact with folks. Do I start a new discussion when, "WHOO HOO!! My chilidog tastes like a chilidog instead of…
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1st post-surgery scan - lung nodule
I had my nephrectomy in late January. Tumor was about 8-9cm, I'm not sure of the grade/stage, but there were some anomolies. It looked like it might be two cancers, regular RCC and something else that was more aggressive. Clear margins and everything was looking good. Then I had my first post-surgery scans Saturday and…
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Kidney stone
happy fourth of July to every one ....i spend mine in ER I peed blood the night befor with CT scan they found a stone in the right kidney I was shocked I just had my rotten CT scan 2 months ago no one said any about kidney stone I was told its 3mm am going to see my urologist soon the ct scan noticed no changes on the left…