-
Scanxiety
Getting my next follow up scan tomorrow. I'm just feeling ....eery. I know the first one (right after procedure) was fine, but what if it comes back? What if the last scan was wrong? Anyone else have these feelings?
-
Exhaustion, still tired.
Tomorrow will mark 16 weeks post op for my wife's partial on her left kidney stage 1 3.5 cm RCC. For the most part, she's doing well. Been back to work since about the 4 week mark but.......on most days, by mid to late afternoon she is exhausted. She's getting pretty frustrated with it all. In general, what was most…
-
New here and wanted to say hello.
Hi, I'm Forger. (Think hot steel, not hot checks..) I have RCC on my right adrenal gland and some of the surrounding lymph nodes. DX'd last December. (Thanks Santa... I asked for a Tacoma, not a carcinoma.) It is a recurrance from 2010 when I had a tumor removed from my right kidney. They found a mass while doing a CT to…
-
Donna??
Has anyone heard from Donna (hardo718)? I sent her a pm about a week ago and haven't heard back from her. She was last online on May 16. Stub
-
Cholesterol
Hi Everyone, I'm new here. I am 56 and I had my right kidney removed in Sept 2015 due to RCC. There were no other concerns, cancer had not spread. Didn't need radiation or chemo. This was my first ever surgery! I had never even been in the hospital except to have my children. So it came as quite a shock. Cancer was…
-
Adjusting to the new reality
Hello How are you all? I joined our illustrious group last week and I wanted to pick your brains again if you'll allow me. You were all a great help to me last week and I am looking for some more illumination and I refuse to go on the internet again and search Google haphazardly (been there, done that). I am formulating a…
-
Ablation of Ureter
Hi,I would appreciate anyfeedack. Thanks Hoping someone can give a little insight as to the pain and recup time on a Cystoscopy- ablation of right Distal ureter. I had right kidney and ureter removed an now they said they ave to go back in and sear the nub on the baladder.
-
Waiting for diagnose and panicking
Hi all, I am new to (probable) kidney cancer, but have had Thyroid, Breast and Endometrium primary cancers previously, all successfully treated. For that reason, I keep a close watch on what's going on with my voluble body. My control abdomen CT scan last week showed: "A low-density lesion in the left interpolar region…
-
low back pain post nephrectomy, not before
Hello everyone, I'm new to this board. Have been reading for awhile , but this is my 1st post. I'm a stage 2 grade 3 chromophobe with 10% necrotic and sarcomatoid features. Margins and lymph nodes were clear. Mass discovered 2/10/17 after hematuria led to a pelvic scan. The same scan revealed multilevel degenerative disc…
-
Follow Up Scans Revisited
I had a ct scan on Thursday and Today I got my first NED... But, it might be my last because apparently no further scans are required (except an ultrasound in six months to 'monitor renal bed'). Now isn't that strange? I assumed I'd get a similar follow up protocol to you North Americans. Are there any other Australians…
-
One of those days!
For the most part, I do my follow-ups and take care of myself physically, but I don't think of my kidney cancer every minute like I used to. However, today has been one of those days I can't get it out of my head. I know I'm extremely lucky that I found this cancer on myself, but it feels so strange to think lucky and…
-
Waiting to find out, 4.9cm complex mass
Hello, I recently had an ultrasound due to some left back/flank pain, and the report stated that I have a "complex, hypoechoic mass in the upper pole of the left kidney, measuring 3.5 x 4.9 x 3.3 cm. This has a lobulated contour and internal septations, it does appear to have a cystic component." I have seen a urology…
-
Happy Father's Day
Happy Father's Day to all the Dad's on this forum. May your day be filled with the love of your family. Stub
-
Very depressed
I've been so depressed lately, I feel kind of useles. I can't remember the last time I cooked dinner. I just always feel like crap. I drag myself out of bed every day and I try but by noon I'm just done. It's killing my spirit and that scares the hell out of me. I have such a great family and my grandson is the light of my…
-
Update on Scans
Hi everyone! Hope you all are having a wonderful Saturday. I just wanted to spread some good news on the forum and let everyone know that my scans came back good and NED!! Everything was looking great and I left that appointment feeling back to my old self again and the 1000 pd weight was released. I go back in another…
-
Can I survive renal carcinoma w/out surgery age 74 (Stage 1) Help
I am age 74 just received "90%" diagnosis of renal carcinoma in Type 1 renal masses. No history of kidney function issues at all. Discovered after I was diagnosed with Myasthenia and prescribed Mestinon which caused major abdominal pains. CT Scan then MRI showed "Bilateral renal masses suspicious for renal cell carcinomas.…
-
New here and have Kidney surgery July 24th
i recently had a diagnosis of a 4.5 cm unidentified mass on left kidney after having kidney stone removal. Doc isn't sure it is cancer; he said it is 50/50. Also, he isn't sure that it will be a partial or total operation, or laparoscopic or open. He won't know until he does the procedure. Boy am I scared! first time at 55…
-
Kidney OPN update
Thank you to this group for the support. I had an OPN (abour 23 incision) June 8 around 12:30. Dr was worried about prior cryoablation, but ended up saying my surgery was textbook with NO issues. The recovery has been long (minutes actually seem like minutes turned to hours), but am doing much better. Up walking a lot, and…
-
Ganglioneuroblastoma
I found out march 4 2107 that my 9 year old son had a baseball sized tumor attached to his right kidney. the hospital removed the whole tumor but had to take some lining from his kidney. I cant really find anything on the liklihood of the cancer coming back, and the doctors say they arent sure either. I am scared of every…
-
Update on my treatment
Hi there - long time, no post. Wanted to give an update since it's been a while. I'm the 29 year old (now 30) with papillary RCC from HLRCC. I started on the PAPMET trial in September taking Cabo after the cancer metastasized to my liver, lungs and lymph nodes despite the nephrectomy and adrenalectomy. I did have to reduce…
-
Recurrence Rates
Does anyone know the chances of recurrence of tumors less than 2cm? I was told they are super low. Does anyone have any information that could be helpful? My follow up plan is CT, chest X-ray, and blood work at 6 months for a year, then yearly for 5 years.
-
Newly diagnosed and feeling rattled
Hi there, I am a 45 year old father of 2 boys, 4 and a half and 2 and a half. I received the news I was expecting from the CT scan. 3.9 cm Tumor RCC on the upper pole of left kidney. So far no sign of metastatic disease. Lymph nodes Normal, CT and ultrasound show nothing else noteworthy, chest X ray clean. It was caught…
-
Surgery Issue
i had surgery back on May to remove a small grade 1 stage pt1a tumor from my right kidney. The pathology report stated "the disruption of the tumor may be caused by tearing during surgery". Has anyone else ever had this, I have asked my surgeon about it, and he doesn't seem to be concerned. What I am concerned about is…
-
CT scan
Hi All, A few days ago I was sent to the ER due to my Ulceriative Colitis. During this time, they took a CT scan of my abdomen, which not only confirmed my UC flare-up but also a 1.6cm lesion on my kidney as well as an ovarian cyst. The ER doctor did not even bother to tell me about the lesion or cyst, just that I was…
-
Today's scan.
im Ned. I think the doc was surprised I knew that term.
-
Depression
So I'm back on Cabo after a weeks break. My depression is getting to me. I'm so not myself, I try to be me but by one in the afternoon I'm done. It's very depressing because I used to work 10 hour days and I loved my job and I can't do it anymore. Maybe I'm just feeling sorry for myself but this just really sucks!!!!
-
Kidney Cancer
Hello Dear All, Can Anybody tell me about that, My Father was operated on last Monday Dated: 09-06-2017 due to kidney cancer the has been remove his kidney and now he is sleeping from last 10 hours continually and not waking up after force But before that he was not sleeping properly at morning of today doctor say that…
-
mental and physical exhaustion after surgery
I had surgery to remove my right kidney 5 weeks ago, and now t seems i am tired all the time and if try an use my mind to for a while I get disoriented and extremely tired. I have pains but I figure they come with the surgery hopefully my Dr. s correc twhen he says they will get better. My right testicule is the worst. I…
-
Surgical resection
Looking for a little advice. I had a surgery to remove a 1.2 cm clear cell rcc from my right kidney. I just can't seem to get a straight answer in reference to a comment on the pathology report. The report stated "a 1.2 cm in diameter tumor disrupted in inflamed frayed external capsule". Does anyone know what this means?…
-
Renal Cell or Transitional Cell is the Question
My husband had the additional CT scan and Cystoscopy that his Urologic Oncologist requested. His bladder is good...everything is normal. Even though they don't usually do biopsies on kidney tumors, he wants my husband to have one because he said it's very important that we know the cell type before we do surgery. He needs…