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Kidney Cancer

Archives for September 2015

Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
Old drugs
Ive been pulled off of sutent, votrient and Inlyta over the past few years, which means I have vast quantities of very expensive drugs in my cabinet. What can I do with them? it seems such a waste
Bone scan
Did a bone scan today for lower back, hip and shoulder pain that has increased in the last few months. The scan lasted 1h30... Ain't that long? How long were yours? From what I recall, last one I had done was something like 45 min. The technologist seemed a bit worried and spent long time in the shoulders area. Wasn't…
Frustrated with the medical system
Need to vent....... I have been trying to get appointments at the major cancer centers...namely Hopkins and MD Anderson. Earliest dates are mid to early Nov respectivley. I am stuck in the position of not being able to consult them prior to taking a treatment. I had hoped to get specialist opinions prior to starting on a…
Latest scan
Last Thursday I got my latest scans. Everything is stable. Then while watching the Big Bang Theroy on demand I see an ad for OPDIVO aka nivolumab. Peeps there may be light at the end of the tunnel.......
Very Interesting Read
Diabetes, obesity linked to chemical exposure – Endocrine Society http://www.rt.com/usa/316965-endocrine-hormones-chemicals-diabetes/ Guys, found this on RT.com and its very interesting health related article. Shows you how much poison that surrounds us on daily basis... - Jay
Maars Guided Imagery CD
Has anyone ordered or heard from Gerald White in a while? I order the CD from the website 8/14/2015 and never received it. I followed up with an E-Mail on 9/14 and again today and have not heard from anyone. Thanks Mark Rupe
Prayers, Karma, Good Wishes Please
Today is my six month follow up (1 ½ years out of surgery) chest x-ray and kidney scan and of course I’m getting scanxiety. You know, those little butterflies in your stomach every time you think of something scary. Well, they’re there in full force. My results should be posted in a couple of days but it scares me to death…
My Turn For Scanxiety
Hi Everyone, I've been back a few times since my surgery in February (some of you here were really helpful with that), but life got busy--which I guess is good. But now it's two weeks from my first scan, and a well-known visitor to this group (starts with "Scan", ends with "xiety") has tracked me down and encouraged me to…
1st oncology appointment
What should I expect for my 1st oncology appointment? I filled out a lot of paperwork family history personal and insurence information Already. I'm alittle nervous as I'm alittle over a month out of surgery. does anyone have advice on what questions I should be asking or what kind of scans do you after surgery? Do they…
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New Immune Drug....
http://www.newsmax.com/t/health/article/693553
Checking in on everyone.
Hi All. Just checking in to say hi. Its about 19 months since Greg's nephrectomy now and all is well. He has had an abdominal ct and a brain scan and spine mri in the past few weeks. Both came back NED which is awesome! He is having a bone scan tomorrow. They are being so thorough because he has had some back pain and leg…
Time to retire and move to Florida.
I woke up one day in March after a long cold Michigan Winter and decided that after 72 years, winter was not for me anymore. Flew to Florida, purchased a small villa in Royal Palm Beach and embarked on a 6 month job of fixing up and selling our home we just moved into 45 years ago. One week from today Piper, Icewoman and I…
9 months post nephrectomy and CT scan shows suspicious results
Well, 9 months after my nephrectomy, my 2nd CT scan not so promising. Any thoughts? The patient is status post right nephrectomy. 2. There is a new enlarged lymph node in the mediastinum to the left of the aortic arch, of some concern for metastatic disease. This measures 2.2 x 1.7 cm. 3. New 0.4 cm nodule in the right…
PPO insurance
I just found out at my PPO plan while no longer be in effected after 2016. I have BCBS PPO. I do not know what to do now. They are going to carry just HMO plans.
By accident, sent for an MRI for back pain.
By accident, sent for an MRI for back pain By accident,I was diagnosed with RCC By accident and it's always by accident Now I see all people have kidney Cancer only they not diagnosed yet Testing for kidney cancer should be part of the physical exam
Just diagnosed with stage 1
I was just diagnosed with stage 1 rcc via CT confirmed by MRI. It does not based on MRI appear to have spread. The tumor to 3 or 4 cm. I have Da Vinci partial scheduled in two weeks. I know I'm blessed but I am so afraid. Can anyone tell me what to expect?
Initial Staging Scans
Got my inital staging bone/brain and lung scans Good news, I have no mets in the bone or brain. Not so good news, I have 11 nodules throughout my lungs. Largest is 2cmx2cm. Most are smaller, under a cm in size. I am at a crossroad as to which therepy to try. I wish I knew how fast they are growing and it may give me a…
Work
School started five weeks ago and I have already missed three days of work. Before I had cancer I hardly ever missed work since starting the Votrient I burned through all of my accumulated time off and now I am starting on this years allotment. Yesterday I had to come home because for the first time I was completly…
Same Old, Same Old....scanxiety
Scanxiety this week....My annual pilgrimage to here and there, and everywhere that spins me out of control. Abdomen, Pelvis, Chest.....$300 later for my annual dues. Thursday....the wait for the DR to come into the room.....yuck! May God Bless me and all of us!
Scientific Progress in Kidney regeneration
http://www.bbc.com/news/health-34312125 There is progress in growing kidneys from stem cells and getting them to work in test animals. Human testing is a ways off, but the results are hopeful. All of us who are firing on one cylinder will want to see this. Jack
4 years
Yes next month October 11 makes four years for me.Today went in for a C T scan i guess the focus seems to be on my remaing left kidney that had a RFA procedure done on it,also next month i will need to have my bladder scoped (still hate to go in for that)as for me being stressed im really kind of chilled out about the…
mRCC stage IV with brain mets
Hello, this is my first post here. I have stage IV mRCC kidney cancer with mets in both lungs, one shoulder, on an aorta lymph node and in my brain. I was treated with pazopanib for about 8 months with good response and have recently switched to Axitinib as a second, and final, line. I was told by my oncologist that it…
Body Anxiety
Even though I just had clean scans, ever since I saw my oncologist I've been having some of what I'd call minor body issues. For some reason, each of them sends me into a panic. I wish I didn't have that reaction, but I do. It's been a common thing with me since my initial diagnosis almost 3 years ago. Tomorrow I take a…
Side discomfort
Hi all, I had my left lap, hand assisted nephrectomy on July 6. I am curious as at this point I have no pain but can still feel my incision but what I do have is an uncomfortable feeling in my RIGHT side. It's not pain just feels uncomfortable some time, it is the side I tend to lie on too. Just curious if anyone else had…
Thank you Paula! MPDL3280A
I've been on this forum for almost 4 years. I don't post a lot anymore, but I always read the posts. I'm on a trial which combines MPDL3280A (atezolizumab), an anti PDL1 drug, with Interferon Alfa 2B. I've been on this trial for 7 months. After initial lung met swelling, I have had significant shrinkage on the last 2…
Unexpected symptom -- blood in urine
Background: Stage II renal cell cancer diagnosis in September of 2013. Right nephrectomy. All scans have been NED. I had my every-six-month CT scan just the end of August. CT scan of the abdomen and pelvis and a chest x-ray. Everything NED. On Thursday morning, my morning urine looked a bit pink in the toilet. I did a…
Pathology report recieved
I had my partical nephroctomy 10 days ago where they successfully removed a 3cm renal cell carcinoma. I was kucky that this was caught pretty early on a catscan. The report states pT1a which I undertand is the best case scenario. For the grading though, it says G2. Can anyone explain the grading system, please?
Guess who's coming to dinner?
Ding-dong... Whos there? Its Uncle NED for another 6-month stay! Absolutely, Uncle Ned, stay AS LONG AS YOU WANT!!! - Jay

Kidney Cancer

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