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Has anyone had Interlukin 2 (IL-2) treatment at Vanderbilt Cancer Center ?
Hello everyone, Has anyone had Interlukin 2 (IL-2) treatment at Vanderbilt Cancer Center in the last few years? If so would you please share your experience and outcome following treatment? I am currently Stage IV RCC with mets to lungs. Some background info: 10/12 - Left Kidney, adrenal gland removed. 1/14 - Thymus gland…
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Scan effects?
Okay guys, has anyone ever experienced side effects from ct scans with contrast? I had a lung ct scan with contrast on Thursday and started getting headache, dizzy lightheaded and a bit nauseous. Immediatly my mind goes to brain mets etc. I'm going to have more scans in the coming weeks so I'm a bit anxious about side…
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"Summer of Fox"
I'm exhausted. I need time off. June was so much fun. I did everything on my list. Strength is still improving. Riding my Harley has returned to second nature. Golfing as well as I have in years. Most of my guitar playing has returned. Blood work is good. Mri's and scans will be in August. But I won't worry because if they…
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New and need help.
Hi, I'm new. I have been debating on posting because I have not yet been diagnosed. I didn't want to step on any toes by posting. I would really appreciate any help from anyone. I am really scared so your help would be greatly appreciated. Here's my story. On June 26th I went to the ER because of a terrible abdominal pain…
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Can I get a hug????
I’m not a very good CSN friend. I read but mostly don’t reply cause I don’t have much too say. I’m still learning. Sorry! I do a search for Fox cause he is my hero J But I love you all! I over analyze and I’m a control freak. There is not much within my control for this cancer journey. I remember not too long ago, probably…
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Dazed and Confused
Hello kidney friends, As you know I have Chromophobe Renal cell carcinoma T3a. Had partial surgery June 8. Didn't have follow up scans with surgeon until August 26. So after hearing from some of you folks as well as another friend who had cancer. I decided to get an opinion with an medical oncologist who specializes in…
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IL2 did not work ... onto Votrient
IL2 did not work ... onto Votrient. Anyone with experience with Votrient? Did it work? How long were you on it? How did your body respond? As with everyone else, staying positive, yet scared at the same time
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Extra stressful time, anxious
I had an open radical nephrectomy in May of 2013 and have a routine check up next month. Ultrasound and chest xray. However other problems have been cropping up which have put me into a bit of a panic mode. I have been having issues with an ear infection that seemed to clear up after a course of antibiotics but since this…
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A get together for DC area folks?
Hi everyone - I hope you had a great 4th of July. Found that I was too tired to sit for 3-4 hours waiting for our local fireworks - to say that I was disappointed is an understatement but it's just 10 days since I had surgery. That said, I walked 3.5 miles on the C&O trail yesterday! I know folks are busy or not necessary…
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Il2, side effects and experience
Thanks for the opportunity to answer your email most of which would be more helpful in the public forum once we get past the first few statements. Sam had to go. Buy by the end of he’s regime he had become like a broken insensible lump slowly sucking the life out the club. I cant think of a metaphor to describe his effect,…
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CT Scan on the 7th
I have stumbled from one treatment to another for some time. I was pulled from Votrient when a scan showed progression. On to Affinator. The first Scan showed progresion and some new junk. So now its time to see how well Inlyta is doing. Oh Boy!! Stress. My Favorite! Bobby
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Still kind of tired
Hi guys, i had my partial nephrectomy surgery June 8 and I still am feeling tired a lot. I've been anemic years ago and so it kind of feels like that. I also am still have some pain when taking deep breaths. My acupuncturits thinks it my diaphram. Im feeling a bit discouraged because I was hoping to feel a lot better at…
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Made it to two years-ish.
I haven't been here in a while. Briefly, i had a radical right nephrectomy June 5, 2015. I was feeling pretty confident having made it to my two-year anniversary. Never really considered that my scans were scheduled on same day. In a demonstration of ineptitude, my scan results showed up in my patient portal almost…
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The Path Report is in
Thank goodness for electronic medical records. I got the path report today - both intraoperative and post operative. Drum roll, please. 3 CM CLEAR CELL RENAL CELL CARCINOMA, FUHRMAN NUCLEAR GRADE 1, FOCALLY PRESENT AT PARENCHYMAL RESECTION MARGIN (pT1aNxMx). Based on what I have read on on the ACS website and learned from…
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Lung Biopsy A Typical
So I have 2 x nodules grown to 7mm and 8mm in the last 3 months on my right lung (from 5mm), watching them carefully. However the scan showed that my Hilar lymph node in my lung was enlarged and v suspicious as in reasonable proximity to the nodules. Biopsy bronchostomy a week ago of the Hilar shows A typical…
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Pass the Laudanum my dear!
Grade 4 Stage 4. Had IL2, Sutent and now Inylta. Lost a kidney 2 years ago. My big problem, as I may have mentioned, is diarrhea. Immodium doesn't stop it. Immodium and Lomotil don't stop it. My onc prescribed Tincture of Opium (or Laudanum as the Romantics called it) 10%, 0.6 up to 4x daily. I can't take that much it…
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Renal cell turned out to be inflammation (Possible?)
I went in on monday for a partical nephrectomy lower lobe. Surgery was about 3-4 hours. When I woke, I was told that they couldn't identifiy the actual mass (which was on the ultrasound, CT & MRI). They took 2 biopsy's and the pathologist advised it was not cancer, it was inflammation. I then asked about the 2-3 cysts in…
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2 years ago
two years ago today, my husband came home from a visit with his GP; after a year of complaining of pain in his hip, he had finally demanded an MRI for what he thought might be a hip replacement. he simply said "so, it seems I have a mass on my right kidney and tumors in my spine"; to say the world flipped is an…
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Major Scanxiety Y'all
Hi, Everyone Starting to have major scanxiety y'all !! I go to MD Anderson for my checkup on July 8th. I had my nephrectomy for Stage 1 Grade 2 6cm tumor on May 2014. Having just a chest x-ray this time. Had an abdominal ct scan done in January 2015. It was normal. My tumor had not spread locally (no renal vein, renal fat…
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Medical oncologist questions
Hello kidney Angels, next week I am going to see a medical oncologist who specializes in kidney cancers. He is completely outside of my surgeon and hospital. I wanted to get another view on my situation. I am stage 3 chromophobe renal cell carcinoma. I would love to have an idea of the questions and information I should be…
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Fatigue
My husband has stage 4 kidney cancer and is on 800mg of votrient daily. It seems to be working as the last scan showed the tumors were breaking up. His problem is extreme fatigue. He's on oxygen daily which is a result of his lung biopsy and removal of 3 lesions in February, 2015 (right nephrectomy oct 2014) He just can't…