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Cystic? Random question...
Hello, again. Just thought of a random question, wonder if anyone has the answer. My pathology report said that my tumor was "partially cystic," but didn't elaborate further. I know that there is a subtype called multilocular cystic RCC, but the path report did not mention this in the least; it just said I had clear cell…
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Having a lot of pain
I am just very disappointed right now as I am in pain 24/7 on percocet and morphine tablet at bedtime for this hip pain. I have trochanter bursitis that does not respond to cortisone injections and gluteal tears in right hip also. Not a doc anywhere will do surgery on me. The last one I met 3 months ago said if my lung doc…
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The time has come
Leaving tomorrow morning around 5 AM EST to go to UPMC Shadyside in Pittsburgh for a 7:30 report time and 10:30 AM open partial nephrectomy. Not looking forward to the day, but certainly looking forward to being rid of this 4.5 cm mass on my kidney. Here's hoping for no mets in the future and a speedy recovery.
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I will take matters into my own hands!
Today is Sunday Dec. 14, 2014 and Im on my 2nd week of 2/1 50 mg Sutent schedule and the extreme fatigue is too much and i'm so tired of getting tired.........I only got 6 more capsules left and I don't want to waste it so I will be taking matters into my own hands!!! ..... I'm going to break the capsule and take out 1/4…
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Endometrial polyp, possible RCC met???
I have an endometrial polyp for at least last 1.5 year. My new Gynecologist suggests to take it out to make sure its benign. My urologist believes RCC doesn't have met in endometrial line of uterus. But I'm getting more and more nervous. It makes me crazy by thinking it's a distant rcc met or a new cancer coming from…
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Cakes, chocolates, ice cream, cookies, processed fruit juices and the likes...
I've read over the internet that people with cancer should avoid these foods as cancer cells feeds on sugar....Is this true? I just thought to ask this as I couldn't find a topic here regarding this? Pardon me if I'm asking nonsense......Thanks....
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Managing pain
Can anyone tell me about their back pain after surgery? I have pain on the right side flank and back, but also quite a bit on the left side. I spoke with the doctor this morning and he said everything is on track and normal right now, however, I have quite a bit of pain in the back on the left side which they say is…
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social security
I like to bring this up every so often for newer people. Depending on your status with kidney cancer, you may be eligible for social security disability. It has been wonderful for me. I don't miss work but I miss the money.
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Votrient dose adjusted
I started Votrient six weeks ago with 400 mg the first week, 600 the second week and then 800. Had a lot of problems with my mouth so the doc went back to 400 mg for a week and then 600 mg. That meant I could eat all the Thanksgiving dishes--which was great since I made most of them. Got my six week checkup and he has me…
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Surgery date approaches---I have questions
I am scheduled for an open partial on Monday, and I have a few questions, as I have never had major surgery before. I was told I will be asked if I want a spinal block before going in to surgery, and the doctor recommended saying YES. He said that it will greatly reduce pain once I wake up from the surgery, but will also…
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Survivors Remorse
I know this subject has come up many times before, and probably will again and again. I hate it. I hate wondering why I've had cancer twice and was blessed to not have a recurrence. Even this summer, when I was so close to dying and yet I survived. So many don't, as we know first hand, both here and in our personal lives.…
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Sutent 50mg vs 37.5mg
I'm doing a 2 weeks on/1 week off of 50mg of sutent from 4 weeks on/2 weeks off dosing but still I am experiencing extreme fatigue that I feel like dying of too much exaustion....If I switch down to 37.5mg will it affect the efficacy of the drug? Does anyone have experience on this? Pls help....Thanks....
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Anyone paying out of pocket for Sutent or have a big copay?
Team, Is anyone paying out-of-pocket for Sutent, or have a hefty copay and having financial difficulty? I'm not trying to sell any Sutent or any health plan, so that's not the reason for my question....
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Which is a better or safer open or Lap ... Here IS THE UPDATE AFTERMATH!!!!!!!!!!!! HELP SOMEONE P
Hello all, I go for a partial nep surgery next week and wanted to know if anyone can give me some insight on which surgery is safer. The open surgery or the Lap. Hello all, an official club member... But I have a question. I had surgery Dec. 19th and sad to say I'm still in the Hospital 9 days later with a servere urine…
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From the US National Library of Medicine
I found this as part of a study done between 1989 and 2008. For those of us who had very small tumors (less than 3 cm), this is extremely hopeful news. Hope this is interesting. Here is a link to the page if you want to read the more in depth article, but below is the quick abstract:…
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I am officially a member.
Hello friends. I am home from the hospital today and officially a member. They were able to do the surgery laparoscopically, however, it took them 7.5 hours - 2 of those hours spent lysing old adhesions. A very tenacious and dedicated surgical team. To say I am sore is an understatement. It turned out the "tumor" on my…
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cancer and pain, Do mets hurt?
Who? me ramble? Here is my latest. I wish that I had brought this up for input from Ron. Try to follow and add or subtract your 2 cents. Here goes. If you cut your finger, it hurts. Pain receptors get stimulated from the damage. Messages are sent to the brain and we interpret them as us having hurt ourselves. The same…
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Graduation
I had my 8 week post-op follow up yesterday and I have graduated to yearly visits now. My incisions look great and I have been cleared to go back to normal activities. Follow-up in one year with CT scans with and without contrast, chest xrays, bloodwork. You all know the drill. Since my cancer was so small, he felt that…
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Went to my onc today
Just a small update to my last post from a couple weeks ago. I did indeed go ahead and see the oncologist and I told him what my urologist had told me at my 3 month post-op visit about not needing any further follow up because I was "cured". Also mentioned to the onc how no one had told me about needing, at a minimum,…
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Ok! Dr War has come up with a cunning plan!!
It's been a long day but productive I think. The good news is the tumours are still stable, Yay!!, so that is a total of six months so far, that's nothing to be sniffed at! I am delighted!!! With regards to the wayward lymph, these are the crux of my problems, cough, voice and sickness, busy little blighters. The plan is…
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Update: met with surgeon
I met with the surgeon today, and what a great guy he is! je put me at ease and told me he feels I have a 90-95% chance of "cure" through surgery. he is performing a partial nephectomy on Monday!! That was some fast scheduling! once he found out I have three little kids at home, he wanted to make sure I could be home for…
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Scan Day today....increased from 3 mo to 4 mo...
Today is my scan day: MRI of the abdomen and Chest CT. This is my first (and probably only) 4 month scan. Next, if all goes well, six month scans. It is just about two years from my first post-nephrectomy scans, which showed a solitary met to my lungs. My Onologist, Dr. Hammers has told me that, with the agressiveness of…
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What does a CT show
I had a clean chest CT last week, so apparently the 4.5 cm tumor on my kidney hadn't spread to my chest. I have, however, noticed for a few weeks now some strange pain below my right nipple as well as a feeling that my mid back is "out." Does anyone know if the chest CT would have shown mets on my spine or ribs? Of course…
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Scans coming up
The time has come for my husband's 4 month scans and my stress is kicking in for me. his doc spoke to us about the contrast and said he wasn't expecting bad news given how well he's doing but as many know, physical pains do not necessarily mean no progression but will be trying to stay calm. his surgeon (who did the…
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Papillary Renal Cancer
I'm new to this forum and I'm wondering how many of you have papillary cancer? I was diagnosed on June 4 of this year and I was surprised to say the very least. I had no symptoms or pain at all. I noticed blood in my urine one morning and went to the walk in clinic to check if I had a UTI. The main reason I even went to…
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Clinical Trial - MPDL3280A + bevacizumab (avastin)
As some of may know from my previous posts I am a long term kidney cancer survivor. In 1990 I lost my left kidney to RCC. That was followed by 14 good years. During this time I was getting regular check ups. During a check up in 2004 a mass was found on my right kidney. I was sent to UCLA where a partial nephrectomy was…
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Metastasis ro the 6th and 8th rib
O had an old sprain in my right ankle years ago......a week ago I was blowing snow and been outside for almost 2 hrs clearing the snow in ny backyard......the cold weather must jave sip in to my ankle and now it's been swollen for a week and couldn't walk......I have metastasis to my ribs and is afraid that this is just…
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Surgery Monday morning
Just a quick check in. I will be going in for my surgery Monday morning - 7:30 a.m. I am scared and nervous but ready to put the surgery behind me and move on to recovery. Can anyone tell me how long it took before they received the pathology report? Also, for those with an open procedure, how long did you remain in the…
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Latest Scan
My latest scan from yesterday revealed progression in the liver with a couple of new lesions. No new growth except the liver. I had hoped my significant partial response with IL-2 would be more durable but now it seems that I will be seeking other treatment options.
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CT Results
I had a CT on my chest yesterday to determine whether there were any mets from the kidney tumor discovered last week. I am thrilled to say that my chest CT came back clear! Praise God! Now I just have to get this thing cut out of me and start my road to recovery. Incidentally, my headache, dizziness, and vertigo (those…