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Nivolumab-Sutent Scan Update
I know I haven't posted in quite a while, but I did want to share some good news. I had a scan today and a spot that showed up in April (and triggered a Sutent re-start) is now gone. Scan showed no evidence of disease. hope it is Approved soon for all.
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Goes in for emergency gall bladder surgery. And oh by the way you have cancer in your kidney
So I just join the network and decided to post my story. I am currently 41 years of age and was recently told I have kidney cancer (by the ER doctor). Now before I get to that story I should back up a bit and start at teh beginning when this all started. At the age of 28 I was told I am a diabetic and was told I should…
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2 weeks ... feeling dizzy
Just curious, been two weeks as of today since my surgery and I've been feeling extremely dizzy at times when I stand up.wonder if this is normal.other than that I'm feeling good. Have my follow up tomorrow I can ask the doc but has any one else felt this way after there surgery?
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New Around Here
Hi - I came across this forum while google searching for information on 'suspicious' nodules. But let me back up a bit. July 17, 2013 I had a radical right nephrecomy in which a HUGE Renal Cell Carcinoma, Clear Cell was removed along with my kidney. I have a copy of the pathology report - it had over 30% central necrosis…
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just had my urology appointment
It was confirmed surgery Sept 11th going to be robotic partial nephrectomy will also take a small portion of my lymph node as well that is swallen. i was ok with this until i guess i got the confirmed dx and then lost it when booking for my surgery... I thought i was good... Guess not.
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Hi. I'm new here
I hade a partial nephrectomy to remove a cancerous cyst in my right kidney. Fortunately it was only 1 cm in diameter, and the doctors said that the inside was cancer the border of the cyst wasn't; so it didn't spread. I still will have to have bi-annual tests. My recovery is slow. I hade the robotic surgery and was told…
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urologist appointment tomorrow
Hi all, Im trying to get all my questions ready for my Urologist tomorrow, I feel like i have so many questions. I just cant remember what I wanted to write down,.. I was wondering thou would my urologist recommend me to a oncourologist? or would he be the one that would be doing the surgery? or does he start out then…
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kidney nerve blocks
Has anybody had a kidney block for persistent kidney pain? I am considering some procedure which will eliminate constant kidney pain I am experiencing after surgery. i have heard renal denervation but I am not sure how practical these things are and risks. If anybody had these or any alternate treatment for pain please…
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Guys please help, persistent constant pain after surgery 4 months
I hope someone here can advise me on next step to take as every doctor I have seen brushed me away. First I want to say my surgery was not for cancer but I had a ureteral blockage(narrowing) where it meets kidney, which was causing kidney to swell with urine and be painful. Before surgery my pain was on/off only after I…
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Exercise Suggestions
Hi, I'm over 6 weeks post op for an open partial nephrectomy and am still having pain/issues at my kidney site. Anyone have any suggestions as to what type of exercise would help ease the discomfort. I am unable to jog or do anything that causes any jarring and I miss cardio exercise. Thanks in advance!
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Chest/Indigestion/Heartburn Pain/Discomfort
Just wondering if anyone has had any of the above since surgery? I am a year and a half out and I am starting to have discomfort after I eat like an indigestion pain. Also certain foods are making me sweat a little especially hard cheeses!!! Anyone else experiencing anything like this? Eims x
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swallen stomach
I had another question sorry things just keep popping in my head. trying to get a sense of it all.. My stomach feels and looks swallen.. every time i eat or drink something my stomach expands. and then hurts soon after i eat or drink. Does anyone know if this is also related to the kidney cancer? Thank you
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Chemo/radiation ?
I have a question? Do you know if you have kidney cancer and they remove all of or partial kidney and lymp nodes. is chemo /radiation involved? or is it they just remove them and call it a day?
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Article from NCI on chromophobe RCC:
It would seem this is very positive progress into understanding chromophobe RCC. http://www.cancer.gov/newscenter/newsfromnci/2014/TCGAkidneyChromophobe?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed:+ncinewsreleases+(NCI+News+Releases)
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Scans and visit to oncologist
my husband had his meeting with the oncologist; all scans "unchanged" and "unremarkable". as his onc put it "boring". Now, it will be 4-month follow-up and a bone density test has been scheduled to determine if he has osteoparosis or arthritis as the cause of degeneration. No signs of any progression and the oncologist is…
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6 weeks post op (open partial nephrectomy) and still not feeling normal!
I was told by my urologist that by the 6th week after surgery I should be feeling pretty close to normal. Well I'm 6 weeks, 2 days after surgery and the pain I feel at the kidney site is still quite uncomfortable!
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National or International Kidney Cancer Charitable Organization?
Hi everyone, All these people doing the ALS ice bucket challengs got me thinking about maybe trying to help a medical research organization that I can actually relate to. I am already somewhat active in helping out the arts and a local humane society, but since I have recently been forced to care about kidney cancer, I…
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Surgery 8-25-14
I'm scheduled for surgery Monday to remove my left kidney. I have two lesions and one "mass" that us growing into the kidney tissue. I'm still shell shocked I suppose. Didn't know anything was wrong - was in ICU in February for ischemic cholitis. The CT scans on my bowels showed a "mass" on my kidney so they ordered an…
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Fox...the Poster Child
When entering this website, Fox is in the banner line of photos. Congrats, fella. You deserve it for all the crud you've been thru. And if it was just a randon draw for good looking guys, you still fit the bill. I'm thinking I've reached the 8 years since first Dx, and 5 since last occurrence. Saw the PC today. Most…
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Renal Mass
I had my 2nd CT scan of my Kidney I have a 1 cm renal lesion with enhnancing walls and internal septations suspicious for neoplasm. i have prominent left Para-aortic lymph node. i also have a 3.5 cm simple cyst. I have an appointment follow up with my urologist. next tuesday. I am exstremely nervous. I dont know what to…
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MRI Friday
Hi All, Well its that time again for me, my MRI for my head is scheduled for Friday, August 22. It's funny but I still get scanixety over these tests. I can't believe that November will be one year since my brain surgery and the removal of the tumor. 2013 was such a rough year for me, and so far this year things are going…
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Scanxiety
my husband is having his 3 month scans tomorrow; full body bone and chest scan with and without contrast. The contrast part is conditioned on his creatinine level so I have been pushing the drinking water. Todd, I know you are scheduled for Wednesday and I am hoping that both of you will have clean scans and that by the…
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Renal cancer and osteoparosis
I have posted this to Smart Patients last week and my question may have gotten lost since no one responded. my husband was dx in July, 2013 with stage 4, clear cell carcinoma, grade 2. It is stage 4 because he had 2 spinal mets, one which was treated with laminectomy and the other with cyberknife. His last scans have been…
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sad and depressed.
Today is five days since I had my seven holes in my abdomen , large lymph node and kidney taken out. They only gave me pain meds for two days, so I'm really feeling the pain now. Thought I was doing well,woke up feeling depressed and anxious this morning. Last night I woke up having a full blown anxiety attack I'm usually…
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Happy Sunday
How is everyone doing today?
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Estimated GFR
I learned something new today. I went to get a consultation at a Nephrologist and I learned some interesting things that I thought I would pass on. I had some varying results in my blood creatine and GFR thorugh my Oncologist and my Urologist. They were using different labs and the results varied between 1.48 and 1.79 with…
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Pneumonitis/Afinitor
My last CT 2 weeks ago showed that it is probable that I have early pneumonitis which unfortunately is a side effect of Afinitor. Saw a respiratory specialist on Wednesday and have started a short course of prednisone. Naturally Afinitor has been stopped and not sure it is still on the table as it appears that I also have…
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Question
I have been on 800 mg Votrient for the past 18 months and so far it’s working great. The only bothersome side effect is the diarrhea. I am taking Lomotil to help. And it has been working for the most part. I have noticed that when I eat beef the diarrhea is dramatically worse and more often. Chicken and pork I don’t have…
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3 Year Ultrasound Clear, Chromophobe
Hello Everyone, It has been some time since I've posted. I had a Partial nephrectomy (laproscopic Davinci robotic) 20July11, to remove a 3.9 cm Chromophsobe tumor, grade 2. I had a six month, 1 year, and 3 year CT followup. Last month I had a 3 year ultrasound and all is clear. I am on the fence as to whether to go for a…