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Well...I'm back again.
Well, here I am again I haven't posted in over a year...I've done everything I could to push the anxiety out of my mind since my doctor gave me the "all clear" after my scan last July. The original mass was found in July of 2012 and was only 2.5 x 3-ish. The post surgical biopsy showed stage 1, grade 1 renal cell…
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HD IL2 Treatmeant Question
Can anyone tell me if waiting two weeks between HD IL2 treatments will have any negative effects on the treatment outcome? Everything I have read seems to state waiting only one week between every 5 days of treatment. Thanks
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rcc trails
Hi all here is a link about rcc ive been following for the last few years http://www.kidneycancerkonnection.com/main/news.htm i hope its helpfull for everyone . by the way i am from the netherlands. peter.
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New cancer classification system shows promise as life-saver
http://www.sfgate.com/health/article/New-cancer-classification-system-shows-promise-as-5675296.php
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Post stent removal hernia?
The only hernia the scans indicted prior to surgery was a small hiatial hernia. When the surgeon went to take out the stent bypass put in after surgery, the experience was 5X worse than being catheterized. I really tensed up and nearly passed out. Returnning to work and walking 3-5 miles a day we thought the original…
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I am off to see the Wizard of Baltimore.....
Time to find out the result of my scans. Hopefully Dr Hammers will say move along, nothing to see here....
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Update of mom's surgery
The doctor said it was routine however she did not react well to the anesthesia, that was expected. She is 72 and had issues with it before. She had an open partial, today she had a slight fever with a flush face however her hands were ice. She has been taking the nausea medicine along with something for heartburn which…
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Stage 4 Chromophobe RCC
My Dad was recently diagnosed with stage 4 chromophobe rcc that has spread to all of his lymph nodes, lungs athe other areas near the kidney. The dr is not telling us much about what to expect. we have been told surgery is not an option because he would need to go 6 weeks after surgery before being able to do any kind of…
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Diet Sodas
Periodically I read posts that mention the need for RCC patients to cut out diet sodas and caffeine from their diets. I've been a 4 to 5 can/day soda drinker for many years. I drink soda like other people drink coffee. Last week I was out with some friends and the diet drink issue came up. They were adamant about how bad…
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Unexpected Just found out is RCC
On June 24, 2014 I went to ER to be treated for vertigo, naucea and headache. Just that. After a; negative result head scan, they did an abdominal scan... later, another with contrast.... they found a mass in my left kidney and a cyst on my right... I was admitted for more tests and labs for 5 days... They want to remove…
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Complicated Cryoablation
Diagnosed with RCC for third time in 4 years. First time was nephrectomy, second time cryoablation with bleeding complications. If the doctor does a cryoablation this time in order to avoid losing my only kidney he says it is so close to my liver he will have to "puncture" my liver with the probe to get to the tumor. he…
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Let's talk Ureter!
Hi all - My pathology report states the ureter is 4.5 cm long but i see in general literature that it is 8 - 10 inches long. So is my remaining ureter still in me and just floating in space? Anyone else have this situation and do you know what happens to a now useless ureter left inside? Thanks
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Anxiety and Upcoming Scan
Two weeks from Wednesday I will have my 6 month chest/abdomen/pelvic CT and blood work. It's been 20 months since my nephrectomy. Was diagnosed as Stage 3 Grade 3. I entered into an adjuvant therapy trial for one year, which I completed in February. It was a 50/50 everolimus/placebo double-blind study. No treatement since…
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"Oh Lord Now She has Cancer"
I'm 41 and I've been sick a good part of my life. My family is sick of me being sick so I can't be while around them. I've had 12 surgeries now (only 2 related to cancer) and am an 8 year renal cell carcinoma survivor with recurrence. I'm all out of supporters and it's been this way for a very long time. I have my 6mos…
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complex renal cyst awaiting full diagnosis
I am a 27 year old female college student and mother of one. In may of this year, I became suddenly ill and it lasted for a week straight. When arriving to the er, I was completely dehydrated. They told me I tested positive for h.pylori and said I needed to see my regular doctor. I was then referred to gastro and they ran…
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Upcoming surgery
I wanted to say that I have been reading the boards for a few weeks now in order to prepare me for my mothers surgery. Well the week is now upon me. I want to Thank everyone. Mom had been treated for NHL 4 years ago and the spot on her kidney had grown so here we go. She will be having an open partial, well if all goes…
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What is the wait time to receive treatment with IL-2 ?
From making the initial appointment, to first dose, how long did the process take for those of you in the USA? My mother progressed on nivolumab and I am advocating she try IL-2 while still relatively healthy. This is probably her last chance to try it. She is either performance status 0 or 1, definitely not 2. I am…
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Still Kickin
Hey to all my peeps i just thought i would to extend a big hello,oh yhea before i get started please excuse my crappy grammer as the ones who know me will understand,hey Fox i did go ahead and get that Street Glide damm i love that bike hell even my wife rides with me now.So as some of you know i have 2 cancers one being…
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Shrinkage!!! on clinical trial
My dad's latest scan yesterday showed shrinkage in all lung and lymph node mets! Seems that the smaller ones decreased more dramatically than the larger mets, but we are hoping for continued shrinkage during the next scan in October! My dad is on Roche/Genentech's MPDL3280a infusions every 3 weeks at Yale-New Haven with…
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Testical
Have any of the males had any issues with their testicals post right partial nephrectomy. My right testical is drooping much lower than normal. It is not sore anymore. But was for a period post surgery. I have trouble drawing it up like my left one now. My urologist seemed to dismiss this as nothing a week after my…