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Possible delay for Bristol cancer-drug causes jitters (Nivolumab article)
http://www.reuters.com/article/2014/04/29/bristol-myers-results-idusl2n0nl0h920140429 At least it gives info on where BMS is in the process of nivolumab.
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Cortisol shots for carpal tunnel - any affects on kidney?
Today I went to a rheumatologist due to some pain in my hands.He diagnosed it as carpal tunnel and tendonitis. He suggested I get cortisol shots. I made him aware of my nephrectomy and asked it would be harmful to my kidney. He said no. So I said go ahead and he gave me a shot in each wrist and has me returning next month.…
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Please help...lymphatic system involvement
Hi, I'm hoping someone can provide me with any information they know about involvement of kidney cancer with lungs/lymphatic system. My sister was diagnosed with Stage IV RCC about 2 years ago. At that time it was our understanding it was just in her lungs and liver. She started on Votrient and had an excellent response…
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One year approaching..
One year since diagnosis and am happy to report all is well as can be. I have my one year scans coming in June, which marks a year since the surgery. For the most part, the changes in diet have been the biggest struggle. I do a diet journal on an app called fitness pal and after logging what I have eaten each day, no…
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14 months post op...now feeling some discomfort
Had a partial done 14 months ago. My first scan at 6 months post op was clear. About 2 months ago I started feeling some discomfort on my left side (where my partial was done). Not really pain, but definitely some new sensation that feels like it's not on the surface where the scar is, but rather deeper. Is that common to…
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1st Urology appointment tomorrow
Hi everyone, I have my appointment tomorrow morning and I am terrified of what they are going to tell me is on my CT scan. How do you get past the fear of that word - cancer. The two week wait for this appointment has been pure torture. I have been looking at my children and trying not to burst into tears. What will happen…
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Had My Brain Scan Today!
Had my very first brain scan today, fortunately there were some indications of brain activity, albeit small . More importantly there were no mets, so two good scans under my belt at last, I'm right chuffed:) Djinnie
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Repost for txgrl
Recurrence My dad had kidney removed in 1990 and it came back 23 years later. Multiple lesions in the spine, mass in the right surgery bed. It's hard to see my dad so weak. Dr diagnosed him having sciatica for the last three months. When they finally decided to run a CT scan they found it. Oncologist told my dad to go to…
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Sutent is working
My latest scan showed some reduction in size of my lung nodules and several are no longer detectable. I have no new mets anywhere. I am a year past the diagnosis of lung mets and the one run of hdil2 along with 9 months of sutent have had positive results. I am still working full time and playing golf asmuch as possible.…
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Conflicting tests on liver mets
Hi everyone-- This is my first post, and I was hoping to tap into some of your collective wisdom. A little over six months ago I had a radical nephrectomy and now I have some conflicting evidence about whether I have progressed to stage IV. My CT scan at six months showed spots on my liver and my docs were convinced that…
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My first post looking for some guidance please
Diagnosed with kidney cancer (clear cell) in 2003 and had a radical nephrectomy (7cm tumour) I had no further treatment except regular scans until June 2011 when I had a 1.5cm tumour (Fuhrman grade 2) removed from my left lung. December 2012 my scan showed a solitary enlarged lymph node in my chest 1.2cm but this has…
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BEST NEWS EVER - CANCER FREE AND IN REMISSION
Hi Guys, It's been a year I haven’t posted any updates on my husband's fight with cancer, but what a year has been :-) Two years ago my husband was stage 4 recurrent cancer after nephrectomy in 2010. He started with 4 mets - on the abdominal wall, liver, renal cavity and one in the lungs. The biggest one was 11 sm. He got…
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Radiation after nephrectomy and adrenalectomy
Hi everyone. I have been reading this site for a couple of months since my husband was diagnosed with kidney cancer. I have been really encouraged by you all even though I was too shy to join up. My husband was diagnosed after an 8 day stay in hospital just before Christmas. He had severe anaemia and we never considered it…
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Sorry, no nightie pix...
For those of you who read Gothic Romance Novels, I'm sure one could rightfully call the a paper gown book a real bodice ripper. Was that the kind with the built in warm air flow and vents? Just got finished with the Onc. this afternoon. No news is good news in this case. It's been 8 years since the first Dx; and 6 years…
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Feelings of guilt
I'm starting to have guilty feelings about using this web resource. I honestly don't feel like I'm a survivor of anything. I didn't even really know I had cancer until after it was removed and I was "cured". The guilt goes even further than this, with my tumor being so small the real odds of me ever having to deal with…
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Full on scanxiety
I haven't posted in a while, been so busy last few months it was all I coulld do to try and catch up on the board. Very saddened to hear about TW and Blkjak. :( . Anywho, as expected with followup testing on the horizon, my mind is in overdrive. I have convinced myself they'll find a recurrence. (OPN last Oct. Stage 1,…
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Post-Nephrectomy Symptom - Swollen Hands
I'm about 16 months post nephrectomy. Starting about 1 year out after my nephrectomy, I started experiencing swollen hands off and on. I used to have it when I'd be out walking around for like an entire day, but never had a problem with that just sitting around working or during a normal day. Today I had lunch with a…
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Sad update
Blkjak has been struggling for a while. The drugs that showed some promise several weeks back quickly stopped working. The rumors in his lungs have gotten so big and he was hospitalized for a few days last week. He came home on oxygen. Last night his breathing was really labored. So we went back to the hospital and he was…
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Post IL-2 scan yesterday showed no progression
Looked at the pictures and they look just the same as the ones taken the day I was admitted for first IL-2 round on 2/24. I have about four lung mets at around 1 to 1.5 cm. I am pleased with no progression since the the 2/24 pictures showed a lot of growth since 1/6. Doc says this is pretty typical and that we would do…
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Well, here I am... and how I got here
I have been lurking for a few days, reading almost all the thirty something pages of topics.... feel like I know many of you, and appreciate the good vibes that are given off of this site. October 9, 2012 I met my brand new never before seen Internal Medicne PCP at an appointment I made to explain the explaination from a…
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Close to 12 years ago-the whole story
It was a Sunday morning in early May 2012. I went to Home Depot for some stones for a walkway to the garage door. I remember going to the john and than yelling at my wife for putting some sort of cough syrup or candy in the toilet which made it red. Then I remembered she apparently did that a few weeks before when the…
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paper gowns
I am nearing the 1 year mark...already! It was May 1st, 2013, that I was admitted to the hospital with the stomach flu. I didn't know it at the time, but, I also had kidney cancer. Little did I know, very soon, I'd be rocking a paper gown for a second time that month, to have my cancerous kidney removed. This picture was…
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Feeling Scared
Hi All, This is my first post but I've a feeling it won't be my last one, as I think I may be about to be informed I have Kidney cancer. A brief synopsis of what has happened. About 2 years ago, during a yearly medical checkup, I was called in to my doctors because I had blood in my urine. It was microsopic, so I couldn't…
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6 month scans good but blood work out of wakk
got the good news on the 6 month scan but creatinine levls high in blood work,around the 200 level must go to neprologist to get things under control.dont want the levels in those 400to500 levels ,thats when the dialisis starts . Heard that your blood counts can get out of control a little with just 1 kidney now.But at…
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6 month scans...all good :)
Recently had my 6 month scans...pelvic, abdominal and chest CT...all clear! I have a 3 mm nodule in my lung but it has been stable and might have always been there. I am relieved and have graduated to having scans every 6 months now instead of every 3
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Bloodwork done, 6 month post op scans one week: UPDATE: NED
UPDATE: My husband ended up getting verbal scan results over the phone Friday afternoon. Our planned weekend of "distraction" at Disneyland while we waited for results turned into a celebration of NED. 6 months down. I'll take it! It has been 6 months since my husbands radical nephrectomy for his T3a 7.5 cm chromophobe…
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Trial of Avastin and Ipabexilone
IL-2 has been my first line of treatment for my lung mets discovered in January after Sept nephrectomy. I did talk to National Cancer Institute about kidney cancer trials a few months ago and they gave a link to this study. A Phase II Multi-Center Study of Bevacizumab in Combination with Ixabepilone in Subjects with…
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Advice please
Hello everyone, I have been reading your supportive and valuable advice to other members for a few days now so have joined in the hope that you can help me understand what is happening to me at the moment. A quick background: Had a us 2 years ago as I was getting pain under my front ribs left side, result came back normal…
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Oncologist recommendations
I am going to be getting a second opinion in whether to continue votrient since scans have been stable for the past 18 months. Do you have any recommendations fir the Houston or Dallas area? Thanks.
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Inspiration
I met a woman recently who has been battling breast cancer for many years. And she said the most wonderful thing: "Life isn't finding shelter in the storm; It's about learning to dance in the rain." original quote from Sherrilyn Kenyon. Living (and loving) in the moment is so important.