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Cedar Point vs Kalahari
A short while back, Iceman proposed a trip to Cedar Point in August 2014, for all interested members of this elite group of survivors. Several of you had positive responses, indicating interest in going. When Iceman made that post, I was already planning on going to Cedar Point with my family, which I did this past…
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Really Upset!
Had my stress test Sept. 4 and Cardio Doctor said everything looks good! Got a call this morning to please come in to office to discuss blockage! Really, 11 days before my 8 month scan! I was already anxiety stressed to the max, and now this! I am just hoping and praying that it is nothing. I have a call into my ONC Dr. to…
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Minor set back
So I've been MIA since I've gone back to work, it's hell since my partial open nephrectomy July 11. Most of my pain comes after work... It had nearly vanished except for when I sneeze however it resurfaced at my incision which stays swollen so my dr said go to the ER. They did a ct and took blood work said I was still…
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My mother has been diagnosed with Renal Cell Carcinoma
My mother had one of her kidneys removed 3 years ago due to renal cell carcinoma. We found out earlier this month that the cancer has metastized. There is a 5cm mass on the outside of her pancreas which has had a biopsy already. My mom will go see her oncologist next week at which time she will receive the results of her…
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Our dear, lovely ALICE
Alice, I can't settle, for worry. Where are you, how are you and John? Do you have straight CLL with no treatment indicated and a long life ahead of you? Please give some pointers to focus my research directions. I have a pretty good idea of what particulars I'm seeking out but you can speed it all up with a bit more…
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Additional treatment options
Good morning folks! As many of you know, Votrient is most likely not working for me. I had 1mm of general shrinkage at my 3 month CT scan, but then a 1mm growth at the 5 month CT scan. My local oncologist suggests switching to another drug. We meet with the oncology team at UW-Madison on Monday morning for their take on…
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New member just diagnose need help to understand this desease
hi everyone. I was diagnose with rcc last week it was found accidentally. am young strong never been admitted in hospital. Am a husband and father to a 7 month old son. am having laproscopy surgery to remove it in 2 weeks time. This is my ct scan report ct scan confirm large mass 9.3cm in the left lower kidney. displays…
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Paranoia has set in: help
I was diagnosed last week with Stage 1 RCC. a biopsy of my kidney is what led to the diagnosis. I was reading how there is a small chance just having the biopsy could have caused the cancer to spread outside my kidney! I am scheduled for a nephrectomy on 10/21. Assuming that the surgery goes well, how will I know if i am…
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ALL CLEAR...
I saw my Onc Dr today. All clear on the scans, xray, and bloodwork from last week. Although, there was no CT with & w/o contrast of the Pelvis, and the CT of the abdoment was only with contrast, not w/o, which WAS ordered by the Dr but Cigna- the "back-end excriment-****" wouldn't approve for another few hundred dollars.…
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Is 12 weeks too soon
I'm 12 weeks post-op, radical neph. Procedure was laparoscopic, with largest of the incisions being about 4 inches. I recovered without incident and am feeling good. I'm going to Cedar Point this weekend. For those of you who don't know, Cedar Point is the Roller Coaster capital, with the biggest, fastest coasters in the…
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Oct 1st important info
On Oct 1st the new insurance market place will open..https://www.healthcare.gov/ go to this site to sign up..this will take affect in Jan but you need to enrol during the enrollment period..if you are lucky enough to be in a state that has a Governor and state legislators who are supportive of expanded health coverage..ACA…
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2 Weeks post op Radical Nephrectomy
Today I am 2 weeks post op from an Open Radical Nephrectomy with rib resection. I had all 38 of my staples removed. My scar goes from below my right shoulder blade, across my rib cage and down to below my belly button. I had a 20cm (HUGE!) tumor on my right kidney, which the pathology report said was Chromophobe Renal Cell…
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Catheteters
how many of you who had nephrectomies left the hospital with catheters? My husband was released today after a laparoscopy on Friday. Surgery went well; clean margins and a tip of the adrenal gland (taken as precaution to not spread the cancer by cutting the gland from the kidney. after 3 nights in the hospital and after 3…
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pre testing done today..I am getting more nervous!
I went for my pre testing today. I know it's not a big deal, but time is closing in on me. I have open surgery on October 3 (partial). I plan to keep busy over the next 9 days, but boy, it's just not fun having to go through this.... I know mine was caught early, and I am so truly blessed. I don't seem to be worrying about…
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Had a CT scan with contrast today
Had my first CT scan in July at 3 months and shrinkage was shown. Had a CT scan today at 5 months but won't know the results until tomorrow at 2pm (CST). You would think that in this day and age that they would be able to make the contrast somewhat tolerable to drink. Man I hate that stuff. It tastes like a pool cover or…
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Had my 6 months scans today!
Had my 6 months scans today, got the green light so I am good to go! Needless to say I am pretty cock-a-hoop about that!! By way of celebration we are all going out for a slap up meal and a couple of bottles of Saint Emillion to wash it down with:) Djinnie x
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Dr Watson I presume...
Hi All..! Neil posted the first link below on Sp, and there are 6 parts to the lecture by Dr J. Watson. Here is a link to the first part, then you can easily find the rest of them. Very interesting, does not matter if you agree or not, this is too good to not pay attention to... This guy tells it as he sees it, and is not…
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Fatigue 6 mos out from surgery
I am still dealing with fatigue and get winded easily. Am retired and am just worn out. Is this normal for someone over 50 who had a right side partial who had robotic surgery ? Thanks in advance.
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Waiting
My husband is undergoing surgery right now; so far, it will be laparoscopic but that could change.
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Diagnosed at age 39 with Stage 1 Renal Cell Carcinoma
My surgery date is 10/21 to remove my left kidney. I am in shock. I just found out 2 days ago. Any advice on what surgery will be like? What will my diet be like post-surgery? I am in Tucson, AZ. :)
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I just had my scans today....
I had my 4 month routine scan today, but it was about 1.5 months late due to some insurance issues. I'm very nervous. It started with having to change insurance companies, I was with United Healthcare, and now am with Cigna. United never questioned any test the Dr has ordered from Day 1, but Cigna has played hardball with…
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Hi All! Checking in!
Friends, My apoloies for being away as long as I have. I fear I will be out a while longer. The reality of cancer and its impact on my immediate circle of family, friends, and me is getting a little too ponderous. I will be out tryng to make sense of it all. My 27 year old step Grand-daughter decided Tuesday she is no…
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just diagnosed
just got the news on sept.6,right kidney cancer 12cm by 8cm ,going in tomorrow(friday sept.20) to have everything removed including some lymph nodes.scared but keeping positive,docs have been great ,everything is going so quickly.luckily i live in a city with a great cancer hospital..4to 6 hour operation tomorrow.results…
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Latest eGFR #'s
I had two sets of labs done, (1) yesterday 09/17 & another (2), done this morning. Yesterday's was fasting, today's was not. Two seperate labs - to get most accurate reading. 09/17/13 [ fasting ] BUN - 11 Creatinine - 1.10 BUN/ Creat Ratio - 10.0 Albumin - 4.7 ___________________________ 09/18/13 [ non-fasting ] Bun - 10…
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I'm going back in!
Results are in from latest scan. My remaining tumors have been shrinking from the IL-2! I will be readmitted on the 30th for round #3 of IL-2. Still some issues with bone mets but we will deal with that later if they remain. I look forward to the treatment. I don't look forward to miserable side effects. I'll be out of…
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Feeling left out
feelingIt feeling left out; could be my paranoia or my posts aren't coming through. My husband iis having a nephrectomy this Friday; the surgeon is guessing from the MRI that it's probably a grade 3 since it has spread to two spots on thso spine. The lumbar met was surgically removed ana titanium was used as fusion. The…
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Feeling left out
feelingIt feeling left out; could be my paranoia or my posts aren't coming through. My husband iis having a nephrectomy this Friday; the surgeon is guessing from the MRI that it's probably a grade 3 since it has spread to two spots on thso spine. The lumbar met was surgically removed ana titanium was used as fusion. The…
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6 month ck up
Hey all. I got my ct scan for my Surgeon for my 6 month ck up and I think its bad.. They found a 3cm cystic mass at the lesion site. Is this normal? It has enhancment....**** :)
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Epidural for Pain Management after Surgery
Hi , I know we talked about this a little bit in a previous thread but I wanted to make it's own thread. Have any of you had an epidural for pain management after your nephrectomies? My surgery is tomorrow morning and the anesthesiologist wants to speak to me about it beforehand. Just curious what other people's…
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Going downhill quickly and looking for Help!!!
This is Ga_dawg’s wife. He first joined this group in March of this year after he had his kidney removed. He is not doing well so I am taking trying to find out any information I can that might be able to help us. Ga_dawg was diagnosed with stage IV RCC in 8/2012. Cancer was in his kidney, both lungs, spine and left…