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New Caregiver
This is a thread I never wanted to start. My wonderful wife Alice has been diagnosed with Chronic Lymphocytic Leukema. I only hope I can be half as strong and suppotive of her as she has been for me.
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RANT/ COMPLAINT: PISS ON CIGNA HEALTH INS CO.
In advance disclaimer: I know this will not do anything except make me feel a little better. Chalk this one up for some bad PR and community awareness. Not that they care, right :) Cigna Ins Co. are ****/ bastards - they denied my ability have a 'pelvis scan' as part of my semi-annual routine scan after being only 1 year…
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Feeling frustrated
Mom has been on Votrient 600mg for a week now. Her blood pressure has been well controlled with amlodipine 10mg daily and metoprolol xl 50 mg. It's been higher now with systolic 150's. Now, I know that might not sound very high, but her BP hs usually perfect, never above 120/70. I called mom's onc to talk to the nurse to…
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Newly diagnosed
So....here I am where everyone thinks they will never be. I am a 43 yr old mom of 2 teenagers...had a robot assisted partial nephrectomy about a week ago and got pathology results 2 days ago. Rcc clear cell type grade 2 stage 1, tumor was 3.5cm oval shaped on very top of right kidney. Scheduled now for bone scan and chest…
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incision area tenderness
Six weeks ago today (7/31), I underwent a Laproscopic radical left nephrectomy. A DiVinci robot was used. 6CM tumor. Stage III. I currently am receiving no chemo nor radiation. I am very fortunate that we caught it when we did. The incision is at about the belt area. I am still tender there. After driving for a couple of…
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This just gave me a chuckle
I went to pick up my Vortirent yesterday and the pharmacist had me stay for 30 minutes to go over a few things. She talked about possible side effects, how to store this medication, and just a few other instructions. One of these just made me break out laughing, but I'm sure she didn't get it. She told me that for the…
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How and when do you find the "fight it"?
With my large right kidney tumor discovered just 2 weeks ago and surgery scheduled for next week, I find myself tired and very scared. How do I find the "I am going to fight this" attitude and determination? Right now I am just weary and there is no fight.
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A must read
This is an interesting perspective on cancer care. Our site & others are more important than ever. http://www.reuters.com/article/2013/09/10/us-usa-health-cancer-idUSBRE9891EI20130910
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Hey everyone :)
Hey everyone hope all is well....i go back for a CT next week for pain in side. Lets hope its just pain from surgery (july 1st). I would be lost if it wasnt for you all getting me through the initial middle and all other phases of this.
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Sad News CapnMATT
CapnMatt, a member of this forum, lost his fight with kidney cancer on Saturday. His dear wife, Suzanne, sent me an email this morning as well as a link to his obituary. http://www.twifordfh.com/matthew-bobola/ ****************************************************************************************************** To Suzanne…
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Weight gain
Hey! It’s been a long time since my last post, but I have been lurking off and on J My radical nephrectomy was May 9th. A few weeks after the surgery I felt great – Better than I had in a while. My 10cm tumor turned out not to be cancer (it was MEST) and that added to my euphoria I’m sure! Summer was wonderful. I felt…
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Epidural questions
So, it's likely I'll have an epi for my Open partial, and I'm curious to know if that keeps you bed bound? Do they let you up if you're numb from the waist down? I had one with my son's birth and they kept me in bed for 2 days until it wore off. Not fun :( .
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Blood pressure medications--what are you taking?
As with most, my tumor was discovered by accident. I was having a terrible cough thought due to lisinopril I had started about a month before. Then a chest x-ray which showed a small pleural effusion, CT scan of the chest recommended by radiologist, and the discovery of my large tumor. The day I was seen by my primary care…
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Lymph nodes near the kidneys?
Prior to surgery (9/17/2013) and abdominal CT scan (9/9/2013) I have been given the designation of a T2N0M0. How to they test to see if it has spread to lymph nodes? Do they remove a few to test? If so, where are they located? I can't seem to find any on anatomic diagrams. Will they light up on the CT scan tomorrow if…
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In my head or not
This is probably going to sound kind of crazy. Ever since they did the testing (xrays, ultrasounds, MRI, etc..) and I found out the news that I have a tumor I have felt a lot worse physically. I understand that when you have an emotional pain that usually there is a physical pain to go along with it, so I guess this could…
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I will probably be having an open procedure
I didn't want to tack my question onto the very recent thread by another poster. I have a 50/50 chance of having an open procedure rather than laparoscopic. I think the surgeon was being generous with the 50/50 and more than likely an open because of the size of my tumor and right nephrectomy. I do have a someone staying…
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Who has had an open surgery?
I know everyone is different, but I am really, really dreading this surgery. I feel like running and hiding. My mass is small (1.5 cm), and I have two small spots on my right kidney that we are "watching." I don't want cyro...and I have to have an open due to having so many surgeries in the past (lots of adhesions).…
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need help
Hi Everyone, Let me first wish every single one of you the best of luck fighting cancer. you are all in thoughts and prayers. My mother and father just informed me that he as a 1 cm tumor on the upper part of his kidney. they had the scans and the meeting with the Urologist. They keep me out of it because they did not want…
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Axitinib / Inlyta
Hi All.. OK, so I am creating a new topic for just those that have any info on Inlyta - Axitinib. I began Votrient in March, 2013, and stopped it due to Liver issues in July, 2013. I started the Inlyta on 9-5-13. Here it is less than two days later and my B.P. this morning was 162 / 100. I should say that I anticpated the…
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Thank you kind stranger...
Yesterday I had my 6 monthly CT. The days leading up were just fine. The moment they called my name I had a melt down. I was at a new facility to try out the lower radiation scanner and I felt uncomfortable from the get go. Fortunately for me a very kind stranger was there to help me through. What a pleasant surprise to…
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Just needed very badly to vent...
I had a nephrectomy in May of this year. I am still a little fatigued, but am now starting to feel "human" again. Prior to this, in 2008/2009, I had breast cancer with lymph node involvement...had mastectomy, removed most lymph nodes under my arm, had a year of chemo and I had 30 rounds of radiation. Two years later, had a…
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Cystatin C Hones Prediction of Renal Function
Worth a read.... http://www.medpagetoday.com/Nephrology/ESRD/41391
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Pathology report
I need some help with my pathology report. I was thrilled to be told my kidney tumour is an oncocytoma. I looked at the pathology report and circled something to check out later but I never did check it out. Tonight I pulled it out while going through a file. The thing I circled was in the staining section......it says…
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Creatinine Spike
Hi all. I just had my 6 week blood screening for the study I'm in (Everolimus). Since my right nephrectomy last December, my creatinine has been in the 1.55-1.65 range. Today it was up to 1.83. I've had several blood tests these past few months, and this one is really out of the norm. It's similar to what I was having in…
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Back pain
I have no idea if it is related or not but I have this constant low back pain. It gets to the point that I have to take otc pain killers to sleep or function. I talked to the nephrologist about it and she said it was absolutely not related but for some reason my intuition tells me it's all connected to the tumor on my…
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Where is everyone gone?
Just making sure everyone is ok? I know a few of you have some big scans/tests coming up and I wanted to see how you were doing..... eims x
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Pathology Report Tailspin-Thoughts???
Hello All...Happy to have found this group. I am a newbie and going to provide a little of my background to see if anybody can relate... I am a 40 year old female, good health, no prior medical issues. I have had side pain since around Jan 2013..thought it was gallbladder. Finally went to GP in July, labwork showed no…
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Newly diagnosed.
I am a 48 year old female who was just diagnosed last week with a 6mm renal tumor. I am scheduled to have open surgery for a partial neph on Sept. 18. The major complication is that I only have the one kidney as I had the other one removed in 2006 due to a blockage that ruined the kidney. I also have stage 3 Chronic Kidney…
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Horrible Anxiety!
Anyone else out here having anxiety problems. I just can't seem to get a grip. I was first diagnosed in 2011 and had right kidney removed. Had my second occurence in March or 2013 and had my right lower lung removed. Scan in June showed no active cancer and my next scan is October 11. I have been having horrible anxiety…
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My introduction
Hello everyone. New poster who hopefully will enter the ranks of being a kidney cancer survivor. I had a CT scan of the chest last week, ordered because of a small pleural effusion showing up on a chest x-ray (ordered because of a wicked cough though to be due to my new ACE blood pressure med). Unexpected finding was a 7.5…