Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Archives for April 2013

Renal Mass at 23!?
Hello everyone! This place is so friendly and welcoming and I've enjoyed reading your posts, so I decided to join. But mostly because I would like the next young person like myself to have as much information available to them as possible. At the end of January, I saw a chiropractor who took an Xray and found a…
Of course!
I had my MRI yesterday and they released the images on disc to me – BIG mistake lol Of course as soon as I got home I popped that disk in and deployed my super awesome secret ninja skills and took a look at all my nifty insides and of course I have no idea what I am looking at lol So of course I started Google’ing’ kidney…
Update
Hi all I went to the doctors yesterday, my blood work was normal and all my urine test came back normal except that I have 50 occult blood in my Urine. The doctor says that he isn't to concerned. I am still worried!!!! I am suppose to go see a urologist but that appointment is probably gonna be a ways down the road.. The…
Newbie
I have just joined this forum today. There does not appear to be anything here in Australia that offers similar experiences. My story started in May 2011 when I had an ultrasound for occasional pain in my right side. This was immediately up with a CT scan which revealed a 20cm mass on my right kidney. Radical nephrectomy…
Not kidney, but cancer got one more family member this morning
My husband called about 7:30 this morning to let me know that Joe, our "other" in law, died this morning of metastatic melanoma. Joe was our daughter-in-law's uncle; and over the past several years we have become good friends of he and his wife. (and here's where the small world thing happens- Joe and Dave played football…
Apr 17 open partial nephrectomy
Hello! A week ago Friday I got the call from my PDr that the mass in the CT scan was confirmed by the mri. I have a mass that needs to come and have been told there is a 90% chance this is cancerous due to the rate of growth. I was shocked! I am have surgery on April 17, 2013 step days before my 40th birthday! WTF! I have…
Encouragement
My story is getting old. But there are always so many new people. NOW STOP IT AND GO AWAY! NO MORE KIDNEY CANCER!!!!!!!! Sorry, I exhaled and it came out loud. What I want to say is hang tough. Force yourself to fight. Too many give up. That bugs me to no end. Unfortunately some fight and lose. I cry about that. Way to sad…
Close Hit
So I still have aches and pains they think are normal and some prostatitus I'm on antibiotics for a month for. You just hope they know what they are doing as its been a year since I've been back to work and I'd like to feel normal again one day. Best guess is the ureter stent they had in for weeks or the 2 months on…
Still terrified
Hi everyone, thank you for all of advice!!! I go to the doctors on friday to get blood results.. I am still terrified!! I have also leaned that where I love In New Brunswick that there really isn't any drug coverage for kidney cancer because it is a rare cancer.. If this does turn out to be kidney cancer and it spreads I…
Good results on first scans
Hi everyone, Just want to share the good news. After having my nephrectomy done last Jan 30 with a 11 cm tumor, my bone scan and CT scan results are all normal.. Depsite being diagnosed as stage 3, i am positive and trusting God that i will win this battle. I will be doing my baseline tests every three months and keeping…
Wait and see
Well, I finally got a call back from the doctor with the results of the MRI. The results came back indicating that it is cancer and not just a cyst. His suggestion due to my age (41) and the fact that the cancer is small and can be easily removed is to get it taken out. So I will be going in for a robotic partial…
Sutent Side Effects
Hi guys Sorry to trouble you but Nick is finding that he feels really queazy and sick first thing in the morning. Because he has been told to have a 2 hour no eating window before taking the tablet and a 1 hour window afterwards, he takes the Sutent at 8am in the morning and then waits an hour or so to have breakfast. But…
a little pick me up!!
hi everyone, i am just feeling a little all over the place at the moment and i just wanted to touch base with all of you brilliant people!! i was feeling ok well as ok as you can feel after going through what most of us have gone through. i went to see my doc the other day just to ask a couple of questions and i suppose he…
"Most Concerning for RCC"
Hi. Rich, 43, went doctor for stomach pains and after ultrasound and CT w/wo contrast, my GP calls and says I havecancer On March 28 around 7pm. Not what I expected to hear. I have an appt. on April 19, with Urologist and don't know what to expect. The mass is 2cm and I was hoping I may find some answers as to what I may…
CAT tap?
hi all, has anyone ever had a cat tap done as a follow up? i thought they said cat scan but i saw my gp on friday and he said no it was a cat tap??!! also did anyone suffer with a dodgey back after surgery? eims x
Robotic Surgery
Has anyone hear had robotic surgery for a mass on their kidney. I am having this done on Thursday and would appreciate any info anyone can give me. I will be having it done at the University of Chicago Medical Center.
I am terrified!!!
Hi, I know I probably shouldn't be on here because I haven't been diagnosed with cancer yet!! This nightmare all started 2 weeks ago as I am so so so scared!!! I thought I had a uti and was put on 3 different types of antibiotics.. Te symptoms are gone now but there is still microscopic blood and a trace amount of protein…
Kidney Cancer Association Annual Patient Meeting Update and link for Youtube for those who could not
Have been watching this and its actually really interesting.. esp for those of you who have been newly diagnosed or have a family member who has been.. They are on break right now.. www.kidneycancer.org has a link to it..it's live streaming so not sure if you will be able to see it later on YouTube its worth a look…
Update
Not really sure of the protocol – if this should be a new thread or if I should have continued with my other post – if the later, sorry! Results of today’s Dr. appt. : 1) The “mass” is almost as big as (looked bigger to me but Hey ( Duck Dynasty ref.) )my kidney 2) MRI scheduled for next week (Wed.) to determine…
THE ALLTRIALS PETITION
Just returned from an appointment with my oncologist and found this email from Ben Goldacre and Tracey Brown waiting for me. I hope folks here will take this as seriously as I, for one, feel it warrants. Dear Friend You, and 40,000 other people around the world, have signed the AllTrials petition. We are on the threshold…
National Patient and Survivor Conference, April 6 Live Webcast
I just received this in an email from the KCA. --David From the Kidney Cancer Association Events Calendar: Join us for a live webcast from the National Patient and Survivor Conference, April 6, from M. D. Anderson Cancer Center, in Houston, Texas. Here's a link to more info:…
Why didn't they tell me?
I guess I’m just scared and looking for some advice. A little background: 3 yrs ago my urologist ( I have intercystial cystitis) found a small 2~3 cm mass in the upper pole of my left kidney. At first the CT indicated that it was indeterminate so he had me go in for another CT 3 months later. At that time he said he was…
nutrition supplements
Hi all, Can anyone recommend me some nutrition supplements for kidney cancer patients? I am flying back to my country and would like to buy some for my father before I leave. Thanks a lot!!!!!!!!!!! Currently I've bought the following: Ensure Nutrition Drink Powder, Vanilla Flavor, 14 oz Can (397 g) Amazing Grass Organic…
To the Caregivers
To all the Caregivers on this site.. I wish you all the strength, courage, and fight.. You help your loved one with their Cancer Even though there is not always an answer... Your comments and questions help us all You are all Angels with mercy and yet have gaul.. You help more here than just that one you love.. For those…
E-Patient Dave - good read
Robin Martinez, royalty/moderator at the Kidney-Onc (ACOR) site, posted the below link published by the British Medical Journal. I recall e-patient Dave being one of the internet bright spots when John was first diagnosed, and I thought it might be worthwhile to post here for those who are unfamiliar with e-patient Dave.…
Chuck's a go for the week of April 22
The Doctors office just called... Chuck is starting the trial(IPI and Anti PD 1) the week of April 22.. we go for an EKG,ECHO, Scans and Labs next week... the schedular is going to call with the exact day...for the testing.. waiting stinks ... I am the most impatient person in the world...and I have to say the Scans part…
NED
Got results today from my recent CT Scan of the Pelvis, Abdomen, and Chest = NED :) The anxiety of this process every 4 months is horrible. Driving to the Dr., waiting to see the doctor, is the worst feeling. They found, what the radiologist said looks like a "Goiterous Left Lobe" of the Thyroid Gland - My ONC Dr ordered…
Just Starting the Fight - updated
I want to thank everyone for their support and update you on what is going on and some strange additions: -Brain scan and Bone scan taken on April 1st both came out normal Here is the summary of opinion #1 (my main doc) -7cm mass on left kidney, mass on side (about a small golf ball), related lung nodule -surgery to remove…
Recently Diagnosed Renal Mass...
I'm a 30 year old male in Columbia, South Carolina. In September of 2012 I experienced painless gross hematuria, which was quite a shock. I visited a general practitioner who advised that given my youth and otherwise healthy condition, I likely had a severe urinary tract infection. I began a course of antibiotics, and the…
first scan results good
Well Nick had his first post-Sutent scan 2 weeks ago and we got the results on Thursday. The bone lesions showed no signs of growth and were as the consultant said 'stable'. He has lesions on his right pelvis and left collarbone. Don't know how large they are. The consultant told us that these would not shrink ever, but…

Kidney Cancer

Discussion List