-
Nivolumab/Ipilimumab Trial vs. Sutent?
Hi all, My mom was recently diagnosed with Kidney cancer. They removed her kidney about two weeks ago. The tumors have also spread to her lungs. She is 72 years old and in pretty good health otherwise. She is now weighing the choice between starting Sutent or entering a trial that combines Nivolumab and Ipilimumab. Is…
-
Hello, My name is Brad and I have Kidney Cancer
Hello everyone. I have been lucky enough to have been adorned with Kidney Cancer. It was official on Monday April 15th. I have Stage IV Kidney Cancer. It's been sheer hell from the time I started having blood in my urine in March. I have since become good friends with anti-depressants and anti-anxiety meds in the past…
-
S.F. Bay Area Support Group
OK, for those that live in the greater San Francisco Bay area.... FYI, today I was at Stanford today meeting up with the Vampire.. So, I did ask about a support group for those of us with Kidney Cancer... verified none (known) existed. So, I inquired about starting a KC group... Not sure it will happen.. but... gotta ask…
-
Question?
Do we have a link on this forum to just talk about other stuff?? Like I am so excited because this weekend I am having a girls weekend with my sister Mare, 2 of my BFFs Laine Crosby and Linda Stirling and my amazing daughter Meghan...we are headed up near Baltimore to see " John Edward" and are making a weekend out of…
-
Fundraising for the Kidney Walk
Hi everyone, so I'm taking a leap of faith here by posting about this. Sept 15,2013 at the Rose Bowl in Pasadena, Ca I will be walking the event . I have formed a team and set a goal to raise at least $800. The Kidney Foundation helps people with any kind of Kidney disease for free when they can't afford treatment. Any…
-
Some advice please
I received my results today, the tumour was a little larger than first indicated 4.3 x 3 x 2.3 cm. Non aggressive Fuhrman 3 There were no cancer cells found within the margins. I follow up with a CT TAP (Thorax, Abdomen, Pelvic) in September. Also intense lesions of chronic interstitial nephritis were found It was a little…
-
Got my results
Before Tuesday we called it my "oddly shaped tennis ball" Now we call it my "Cancer ball"... I got my MRI results Tuesday - I have cancer. It was a roller coaster of Bad news/Good news... Bad news: I have cancer. Good News: They are pretty sure it is contained in my left kidney. Bad news: Its in the collecting ducts of the…
-
IL-2 Update
Well, round 1 of HD IL-2 is behind me. Today is my 3rd day home. I managed to take 11 of 14 infusions. I took the first 9 in a row, then we had some problems with elevated billirubin. In fact, I turned a nice shade of orange. My natural billirubin reading is always high normal, so that probably has something to do with…
-
Seeking any information on RCC
First a little background on myself. I am a 48 year old male and was diagnosed with stage IV RCC September 2012. I went to the orthopedist in August 2012 because I thought I had injured my shoulder while working on my sons car. The orthopedist said it wasn't an injury and sent me for further test. Dozens of xrays, scans…
-
Asking for best wishes
It may be unlucky, but I am asking for wishes, prayers, whatever for a NED for me. I have metastatic sarcomitoid RCC. RCC found May 1, 2012, Nephrectomy 6/19. Six month scans showed solitary lung met, which was removed 2/5. PET and CT yesterday, bone scan today followed by Dr. Appointment. I have never received a NED, but…
-
Really? Spam on the Cancer Board?
I just received a private message today from something that looks like an advertisement for a dating service. Getting spam messages from someone who claims to have read my profile and wants to have a relationship with me and I have to email her at some "yahoo" address for pics and more information. This is a cancer forum…
-
Progress Report - Sutent Patients Take Note
Hi, all. Vin here with another update. First, a recap: Male, 43 years old. Diagnosed in April 2012 with advanced metastatic RCC (Stage 4/Grade 4). Primary tumor of 8cm in left kidney with mets in lungs (innumerable!), left adrenal, right kidney, right adrenal, and along the spine at T4. Radical nephrectomy on 5/25/2012…
-
hypermetabolic lymph nodes
Hi all. I had a radical nephrectomy in February for a 7.4 cm chromophobe carcinoma, stage 2a, confined to kidney. path report negative for necrotic areas and for sarcomatoid features. Recent PET scan shows "hypermetabolic" lymph nodes. My oncologist says this could be mets but more likely isn't because of no enlargement…
-
Waiting time
Diagnosed with rcc April 5. Had an ultrasound for another reason which spotted a mass on my left kidney. CT scan followed a week later then my appointment with urologist. He wants to do a radical because even though mass is fairly small - around 4cm where it is positioned is his reasoning for radical. Problem is I haven't…
-
Wearing Stabilisers
I go for my first post op appointment from having my partial nephrectomy on Thursday. I have to admit to feeling a bit wobbly, I am wishing it was not on my to do list, but there it is right at the top and underscored. I know that the first tumour I had ten years ago was slow growing. It is only since coming across this…
-
Is this something I need to truly worry about?
Hi, I'm new here :) . I've been reading for a while (here and the Thyroid cancer forum), and have learned so much from ya'll :) . Anyway, I was hoping I could get some imput from the expert patients here. A little backstory: * July 2012- diagnosed with metastatic FVPTC * Sept 2012-completion Thyroidectomy * Dec 2012-had…
-
Rcc Stage t1a grade3.
Just returned from hospital and terrified.
-
Chuck Started the Nivolumba/IPI Trial Today
Hello all... We met with Chuck's Oncologist.. today to go over the scans from last Thursday prior to starting the trial... The liver mass shows a large percentage of growth since his last scan.. that scan had showed a large amount of necrosis(death) it is now on the move again.. so he is no longer thought to have a partial…
-
4 weeks after radical nephrectomy . . .
Hi First time I've posted on a forum like this, so be patient, please. I was diagnosed with a tumour on my left kidney in January. This was totally by accident (which seems to be the way with most of the renal cancers) when it came up in an ultrasound. After a CT scan, I was operated on exactly 4 weeks ago (18th March).…
-
Spread straight to the brain
Hi, I am new here. My father (57) was diangosed with renal cell carcinoma last June and had a total left nephrectomy. The tumor was incased in the kidney and showed no signs of spread, lymph nodes were removed to be careful but they came out negative. The tumor was starting to go up the vein but the Urologist seemed…
-
Home from Robotic Surgery
Had robotic surgery on Thursday April 11th and they removed 40% of my left kidney. I came home Sunday April 13th. I don't feel real great - paiin and exhausted. Had a hip replacement last November and it was a piece of cake compared to this. I just want to sleep. Have diminished lung capacity so that was a problem for a…
-
Lower back pain
Hey all. Quick question. I have 2 weeks till surgery and can't wait to get it done. However since I I've been diagnosed I have been having lower back pain constantly. Feels better when I jog, it also doesn't get worse at night. Both the urologist and Onc don't think it's related. And you can see where they imaged my lower…
-
Prognosis
Seems that I get slightly different answers depending on who I ask and what I read, so here goes to all you laymen :-) T2N0M0 7,6 cm Grade 2 nephrectomy August 2010 just had my fifth check/scan without any indications of a relapse or spreading 45 years old and generally very good health My urologist says Im now so much…
-
*Nivolumab / Votrient Clinical Trial for One Putt (aka MDX 1106, BMS936558) UPDATE
May 6, 2013 Update John had his May 2 infusion and is back on schedule with Votrient dosage (800 mg) and Nivolumab infusion every three weeks. He has been experiencing some nausea over the past couple of weeks. Hard to believe but this Friday, May 10, will be John's one year anniversary in trial. On another…
-
Anyone here dealing with Fibromyalgia on top of nephrectomy??
Hi all! I am now 3 weeks post surgery left radical nephrectomy, a 4cm clear cell carcinoma, contained, doctor feels they got it all so very grateful for that relief. Prior to this unexpected finding of kidney cancer, I had been on about an 8 yr quest from doctor to doctor to figure out my chronic pain, post exertion…
-
Hospice- 6 to 10 days to go....
Father had RCC on 9/2008. Stage 3/4 at the time. Treatments were good and kept cancer at bay for years.
-
I have just been told I have Kidney Cancer
I am a 43 year old American living over sea in Okinawa Japan. Two weeks ago, after a ER Visit, Dr.'s found a 2.5 cm tumor encased in my right Kidney. I have been told that it is Renal Cell Carcinoma, and it is stage T1a. I don't know anything about Cancer, much less Renal Cell Carcinoma. And to make matters worse, I am in…
-
Changed Start date...Now Monday
We spent yesterday getting Chucks testing done for the trial..based on the information gathered and on prior patient response we now start the trial Monday April 15...when his oncologist gets back...we are not sure of the dosing yet because its randomized. . But we will know prior to starting.Chucks scans showed no new…
-
Cancer FREE 1 month anniversary
Hi everyone, so today is 1 month since I had my open radical to remove Raider(5lb tumor) and my right kidney amongst other tbings. I should be celebrating but I just got home from being in the hospital since Mon.. I started having pain and swelling Fri, by Sun I was stuck in bed and nauseous, Mon i was feeling like the…
-
Now Stage 4:(
My husband's scans are now showing three small mets to lungs. He will start Sutent as soon as it arrives. I am very concerned that with the 30% sarcomatoid that it will not be effective. He is not eligible for any clinical trials that his doctor feels would be beneficial due to a pulmonary embolism released by the primary…