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Ten Years on August 1, 2012
Some observations and a few thoughts: NED X 10 NBD X 10 10 Annual Southern Caribbean Survivor Cruises so far. Number 11 will be in February, 2013. Each of the 5 grandchildren has become 10 years older. No new ones. The 18 year old girl I met on the beach (Icewoman) will be 68 this fall. The survivor rates for each Stage of…
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'Sub-Type' RCC ??
I've recently been reading several posts where people are listing a 'Sub-Type' RCC. Do all RCC's have a sub-type? I've recently had a full and my path report came back Stage 1, Grade 1, but no sub-type. I asked my Dr about this yesterday and he didn't indicate there was one. Thoughts?
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Progress in RCC treatment
More evidence here: http://www.cancernetwork.com/rcc/content/article/10165/2044903
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tanks to all........al little venting tonight
Firstly, thank you all for your selfless sharing of your knowledge, experience and encouragement. With your support and armed with lots of research I feel confident about prognosis of localized 2cm tumours in my left amd the credibility of the urologic oncologist I have been referred to. My consult is tomorrow morniong,…
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Residual pain....
I had full RN surgery on 07/17/12. I've been doing very well since. Very little unmanageable pain. I was off all pain meds by the afternoon of 07/18/12 & home by 07/19/12. I have developed a new area of 'shooting' pain away from the incision site, which isn't a constant occurrence, but only when I move certain ways, get…
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information required urgently regarding stage 1 kidney cancer
hello to all. i need some information regarding RCC and thus i joined this forum because i couldn't find any other better place. I'm not the patient but I want to ask for him. The person has got Conventional clear cell RCC stage 1, grade 2 localized to kidney 4.8cm (to greatest dia), no renal vein lymph spread nothing.…
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Trying to find out the odds of getting cancer in the other kidney
Six weeks ago, my right kidney was removed with a 6 cm Stage 1B grade 4 RCC. I am convinced that for me, the cancer is genetic, as my father had RCC, and his dad died of RCC. As all of the genetic markers have not been identified, the genetic testing I have had may or may not give insight into the gene. My concern is…
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How long before back to normal after kidney removal
My husband was diagnosed with kidney cancer from an MRI of his back following a car accident. He had no symptoms and it was fully contained. However, he is now always exhausted. He is 58 and the surgery was done on March 15. Before this, he was unstoppable. I am 46 and he had twice my energy level. I am not sure if the…
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One year ago today, 27 July 2011
One year ago today, God gave me a gift of a kidney stone. Sort of an odd gift except had it not been for that stone, we would not have found the mass on my left kidney until it had spread to other organs. Since we found it when we did, I only lost a part of that kidney and am now cancer free.
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Opinions needed re: Sutent, Back Pain, Neck Pain...
Hi, friends. Brief History: Male. 42 years old. Diagnosed mRCC April, 2012. Left radical nephrectomy with adrenal gland, partial spleen and 12 lymph nodes removed via laproscopic/robotic surgery May, 2012. Mets in lungs and elsewhere... On to my question: I'm on day 18 of my first cycle of Sutent, 50mg. Overall I've been…
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Post-op questions - update after oncologist
Its been 2 and a half weeks since my nephrectomy. My blood work at that time was showing some signs of malnutrition because of a still undiagnosed problem causing weight loss. But, I got a call today from the urologist office that my latest blood work shows possible decline in kidney and liver function. I have to stop ALL…
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New to this...
At first I thought June 18th was going to be a typical day off. But when I got out of bed to go to the bathroom I realized something was very wrong. I had blood in my urine. I decided it was time to make a doctors appointment, but the earliest I could get in was the next afternoon. As the day progressed, the more miserable…
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advice about Biopsy needed
I have been impatiently waiting for an appointment with the oncologist. Today I got a voice message advising that the oncologist has ordered a biopsy before the consult. I am confused. Is it not proper to provide a patient with options and to discuss the risks? I have read on many sites that biopsies are not standard…
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Is this crazy?
I was scheduled for a partial nephrectomy July 31, 2012. MRI disc was brought to my first appt with top doc in Phila area on July 6th. He quickly read MRI and said he felt it was a solid mass and no further MRI was necessary (I had it done local to my home)...BUT he said his radiology department would read disc and file a…
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I am new here. I wasn't sure where to post.
Hi, I lost my dad to cancer in April of this year. Although, I am 28 with a family of my own I have a hard time every now and then. My husband is great at comforting me. Work and hobbies keep me occupied. (I am a nurse and love what I do.) These past two days have been hard.. I've been thinking a lot about my dad and its…
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New to Kidney Cancer - dealing with new emotions
Good day, I thought I understood the emotion of cancer, having lost my paternal grandfather to lung cancer, my father to multiple mylenoma and my mother to lung cancer. However, after 6 months of investigation for hypertension, an abdominal CT with and without contrast showed liver cysts and 2 solid mass tumours on the…
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Post surgery questions
I had a Radical of my right kidney this past Tuesday. - It was Stage-1, 6.2cm - many MRI's, CT's, Bone Scans were done prior to surgery to determine whether there was ANY spreading. From what they could see, there was none. Preliminary pathology, from what I was told by the dr, is a non-aggressive type. Not sure how long…
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Post RF ablation 3yrs out ,they say its back..What , I was told it was Benign?
Hello all I joined the discussion group about a week ago and I have to say I have been supported and educated more in this week then I have been in 3yrs since my dx: Solid R Renal mass 1.5 cm in May 2009. I remember that Friday afternoon when the doctor said Suki " You most likely have Kidney Cancer" I was 45 yrs old and…
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Life Changing
Hello, I am a 48 year old female who had a abdominal ultra sound for gallbladder pain and a kidney lesion was discovered. Followed up with a CT scan w/ and without contrast...still not sure if its solid....MRI confirmed solid renal mass 2.1cm. I immediately researched RCC and top docs/hospitals in the Philadelphia area. I…
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Just found this site
I am a 50 y/o female who was diagnosed with kidney cancer through a yearly physical(very lucky). I had a partial removal of a two centimeter tumor in my kidney through robotics. I am almost 5weeks out. Recovery has gone very well, but in the last few days I have been so exhausted, feeling like I could sleep all the time.…
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New Kid on the Block
Hello All; Well, 7/24/12 is gonna be my day of reckoning. I will be going under the knife @ USC's Keck Medical Center for left kidney, radical nephrectomy, and left leg fibula modification, due to metastatic Renal Cell cancer in the upper knuckle. It's going to be a 6-7 hour tag-team surgery in one OR. But, let me fill you…
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My first scan question
Hello everyone. I havent posted in a while but now I have a question about scans. I had a full left robotic assisted nephrectomy in April for RCC. stage 2 grade 1. My urologist has scheduled me for a lower body scan on July 23rd. My oncologist has also scheduled me for one on Oct 5th. Im not sure if I should have them so…
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Wilms and Lung nodules
Lung nodules .... what causes them in a 9 or 10 year old boy? My son was diagnosed in March 2011 with Wilms tumor stage II. He had 2 nodules at time of diagnosis. 3 months into treatment he developed 9 more nodules. These eleven have remained stable for 11 months. In June 2012, 3 new nodules have developed making a total…
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Back to Unclassified status
Got a copy of my pathology report Size: 9cm x 8cm x 4cm Stage: pT2a Grade: IV Type: Renal cell carcinoma, unclassified. ("does not have the typical histopathologic features either of a clear cell, papillary or chromophobe subtype, nor are there sarcomatoid areas".) Necrosis over 30 - 40% of tumor. Possibly invades the…
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Complications 4 weeks after laprascopic radical nephrectomy: Still draining, possible infection, fe
Hi, Four weeks ago, I had a laprascopic radical nephrectomy which successfully removed a stage 1 grade four 5 1/2 cm tumor. The good news is the cancer is out of my system. The bad news is healing from the surgery has not been smooth. Basically, I continue to drain from a small portion of the 10 cm incision. It did not…
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Need Dr. referal in Atl area
Hi, I'm new to the network. I had an open partial nephrectomy on my left kidney 4 weeks ago, and am in need of some help that I hope fellow survivors can offer. My surgery went well, but I need to find someone in the North Atlanta area for follow up. My doctor neglected to tell me of a study he is conducting on pain…
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Seeking guidance reg treatment after nephrectomy
Dear All I had been reading posts on this discussion board since last 4-5 days and believe me, I have got connected with all of you. I am getting so much inspiration and strength, after reading all positive thoughts of yours. Can somebody please tell me, whether MDX 1106 and Votrient are same or different drugs. How do you…
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CT scan tomorrow....
Hello all, First of all and foremost I want to thank all of you for the comments and feedback. We go very early in the morning to have blood work, 30 minutes later to have the Scan and then meet with the Oncologist 2 hours later. We are so fortunate to be at a clinic where we can get the results the same day. Duke Cancer…
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Wilms and pregnancy
Hi i'm 20 years old and i'm getting married in 11 days and am hoping to start a family in the near future I was diagnosed with a stage 4 wils tumor in my left kidney when I was 2 in 1994 that had spread to my lung and I had it removed along with a dime sized portion of my lung and revived chemo and radiation I went into…
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Confused about Ultrasound
Let me start by saying I have not been diagnosed with cancer, however, there is a possibility. So, if I really shouldn't be here, please forgive me but I don't know where else to go. If anybody can help ease my concerns, I'd be very grateful. Here's my ultrasound report and my questions to follow. I just skipped to the…