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still here
Just to update on my hubby .Dr's said few weeks, Really dont know what a few weeks are but been with Hospice now 6 weeks and that to me accounts for something.He is still fighting but the way the doctors talk he should have been gone by now so I guess the good Lord still has a plan for him I check in on everyone from time…
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Mass Detected - Update - Opinions Needed
Hello again, We met today with a surgical oncologist here at Michigan Urological It was a very good meeting and the Dr. was very open and answered all of our questions. The good: 1. The Dr. feels strongly that my wife's tumor has been caught early enough. Again, this was discovered during an exit ultrasound after a stone…
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has anyone had a RF ablation of their renal mass?
Hello has anyone had a RF ablation of their renal mass? If so can you tell me if it has worked out well for you so far?
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a bit scared
hi everyone Im a 49 yr old F and I was dx with a 1.5cm r renal mass in 2009. I had a RF ablation done and for 2 years my scans were good. My pathology from the surgery back in 2009 states benign..but the doctor I am seeing now says he feels they didnt get a correct read on that. I had a routine follow up scan on 6-20-12 it…
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My first time posting my story
My husband, Pat thought he had kidney stones. Was passing alot of blood and stuff. Waited to get checked out by his primary care physician. Sent him to get a CT scan. Then we found out the news. Kidney cancer.....I lost it. Went the same day to see our OC. He is awesome. Dr. Kasbari. We then proceeded to get 9 pints of…
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Inlyta (axitinib) roll call
Who here has taken or is taking Inlyta? What were your prior treatments? What strength dose are you taking and how are the side effects? I had taken Sutent for 10 months and everything in my lungs had disappeared or diminished. In late June, my scan showed that 2 nodules had started growing again. On July 5th I started…
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What causes RCC?
When I was at MD Anderson, I was in a discussion with my Doctor whether I should have my kids (both young adults) checked sometime for RCC. He told me that RCC was environmental, not hereditary. At the time I failed to pursue the cause further. In the mid 1970's to mid 1980's I worked in the Houston Shipyards with…
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MDX-1106 part 5
Well here we go. I was very anxious going to treatment today. Afraid that I was no longer responding because of the pain I've had in my back and ribs.....First a quick refresher...Left radical nephrectomy March 2011. By October mets in lungs, liver lymph nodes. Told I might not make it to spring 2012. I started being…
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6 month scan
Hi All, Been awhile since my last visit and I hope everyone is well. I do check every so often without signing in. I had an appointment with my oncologist this morning for a checkup and to discuss my latest ct scan ( 6 month post op) I had last Thursday. Great news as she said the scans were excellent with no signs of…
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CSN Kidney Cancer forum
So, it seems as though our pics have disappeared (temporarily I hope). Is anyone noticing any other changes? Am I imagining it or was the Drupal logo not there before, in green, at the top of the screen?
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The journey ends
I want to start by thanking every single one of you who have offered me hope and advice during these past months. I had to take my mom to the emergency room last Thursday and they found she had a rupture in her bowel system. It is not healing itself and they do not believe she could survive and/or recover from another…
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2 primary cancers, very confused
Hello! My uncle has been diagnosed 2 weeks ago with stage 2 nasopharyngeal cancer, poorly differentiated, Stage 2. A routine ultrasound was done 5 days ago and they incidentally found a 6x 5 cms solid mass on his right kidney. His oncologist told us that this could be a different cancer and most probably not a mets. So…
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Viotrine 200mg
Hi, I am currently on Viotrine 200mg treatment 2 pills (from 4 pills) per day. I had lots of side effects. Can someone explain success with Viotrine and also how better to deal with side efeects mainly being tired all time. I have clear cell cancer on left kidney which as spread thru lungs and Brain. Currenly its dormant.…
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New Member - Very Scared
Hi, all. I was diagnosed with Stage IV RCC a couple of months ago and had my left kidney, adrenal gland and 15 or so lymph nodes removed 6 weeks ago. I also have metastatic disease in my lungs and a possible node in my other kidney. I'm starting Sutent today and frankly I am scared out of my mind. I'm 42 years old with two…
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Mass Detected
Hello, I am new to this board. My beautiful wife (41) of 21 years endured a fairly painful kidney stone a couple of months ago. It was finally broken up and she was able to resume normal activity. Upon a further follow-up, ultrasounds were done on both of her kidneys to make sure no further stones were detected. During the…
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pathology report
Hi 12 days after right kidney removal waited these days for pathology report and my doctor calls and postponeds the follow up visit until next week !She wants a second opinion on the pathology report??
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1 week post laproscopic partial nephrectomy
Just had surgery last Thursday and am questioning pain? I had a laparoscopic partial nephrectomy last Thursday. The surgeon Had some trouble controlling the bleeding and had to "open me up" To reach in and stop it. Leaving me with an additional 4" incision across my upper Abdomen. I was released after a couple days in the…
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Nephrectomy tomorrow - path report confirmed cancer
Hello everyone As you could tell from my previous posts, I was on a panicky emotional rollercoaster the first few weeks but things have calmed down a lot. I am having a nephrectomy in the morning. I feel good about my decisions on the hospital and surgeon so expect all to go well. I will update you in a few days Kathy
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The True Joy of Life is the Trip
Many years ago this was introduced to me by my boss. I loved it at the time and still do. Of course, it is now more relevant than ever. Many of you -- Fox, Tex, Gary, and Liz --seem to integrate this thinking into their everyday thinking, but I sometimes need a reminder. Thought others might find it worthy too. Enjoy.…
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diet
hi I'm 11 days out from right Kidney removal hope to get some diet ideas
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Wilms tumor
Hi just wanted to share that my 18th month old diagnosed wth wilms tumor last year praise God didnt need chemotherapy. Really did Lots of praying and didnt accept what the doctors where saying. I wasnt in denial i just knew my little boy needed me to Concerntrate on what i did know which was that the cancer was going to be…
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Help!
Hi All, I first joined this page in Dec 2011 when my mother was diagnosed with Kidney Cancer. My mother had her right kidney removed in December 2011. The tumor was pretty large about the size of a football according to her doctor 11cm in one dimension 20cm in the other, it was also protruding against the liver. My Mom has…
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How to deal with cancer
A couple of good reads here. The first is sage advice for both cansurvivors and caregivers. The second is a brief but to-the-point indictment of our conduct of the battle against cancer on the national (and world-wide) scale.…