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My 3rd met to lung
4 years ago, I had Stage IV RCC with one nodule met to lung. And, then had to surgical remove 2nd lung met (one nodule) 2 years later in 2010. I had my 3rd lung operation on April 2nd, this time it really took a toll on me, they have to remove the whole lower left lobe because the new nodule was lodged in the center and…
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Palliative care vs Treatment
Hello - I'm daughter to a strong and loving father faced with the unimaginable situation of having to decide what treatment path to undergo. I myself go back and forth on what I'd like to see him do, and it breaks my heart to think of the thoughts that might be racing through his mind ... This past February 2012 he went to…
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Swelling in ankle - normal?
Yesterday, John started experiencing swelling in his left ankle. He hasn't experienced this since the week he came home from the HDIL2 treatment. He has been on his feet over the past several days more than usual as his mother died a week ago, and burial and funeral home arrangements have resulted in more standing than the…
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Radio frequency Ablation
Not sure i spelled that correctly but its a new term i was introduced to last week.I will be having this procedure done may2 wednesday ,i guess when they do this techniqe it uses heat to fry cancerous tumors,but is only efective on smaller ones,i guees it also is less stressfull on the organ compared to doing a…
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IL15 (Interlukin 15) - Kidney Cancer Chronicles
http://kidneycancerchronicles.com/of-porn-and-natural-killer-cells-the-mean-streets-of-the-national-institutes-of-health/ I just received an update on Chris Battle who has undergone many different treatments in his war with kidney cancer. He is currently at the National Institute of Health in an IL15 trial. The link above…
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Post op stuff
Well I no longer have a right kidney,I you remember I held off the surgery to finish some commitments to my students. They tried robotic method and found that under the tumor was a funnel cyst. I do not know what that is, but apparently when they tried to remove it I started bleeding heavily despite my kidney being…
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Travel insurance
Hi Guys how have you all got on with travel insurance since having cancer and kidney removed, Doc say Im well enough to fly ,just wondered what experience you have had Im 13 weeks after opp. (Errol in Staffordshire uk)
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2nd post-op CT
Had my second post-op CT scan today. Will find out the results Tuesday........
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Ok- What is up with the book Three Months to Life
My dad- 78 has Stage IV Renal cancer and has used Stutent, Nexavar and now on Affinor (excuse the spelling please). First discovered in Sept 2008 and starting to spread now in liver and lungs plus bone. So I saw a post on this book Three Months to Life and sent him the book via Amazon- thinking $9.99 aint hurt nobody. Then…
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Magnesium to fight cancer?
http://magnesiumforlife.com/
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Dr says NO to TENS, but radiation working
Well, the physical therapy doctor we saw on Tuesday said she would not use the TENS unit on my mom because of the cancer. She said she is concerned that it would also stimulate the nerves and blood supply to the cancer. But, she did prescribe lidocaine patches to help with the pain as we try to cut down the pain medication…
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Emotional-Normal?
Hello Everybody, I hoping that all the great RCC survivors on this board can offer me some help, advice or just a discussion board to cry on. :) I am a 39 yr. old wife, and a mother to three children (21, 14, 10). Back in February I went to the ER for a pain on my right side. I had the pain for about a week, but it would…
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What is a fleck of calcification on kidney?
Oh boy.. never mind that mom has rcc.. I got my scan and i have a fleck of calcification on my right kidney. Does anyone know what that is? Here we go again. :(
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Creatine a little high- Normal?
Mom is one month post op. Her creatine is 2.8 is it normal for it to be high after surgery?
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Pre opt today
Well I am still working on getting ready for surgery..Today is pre opt all day. Than on to surgery on April 30 930 am is my check in time..Feeling pretty tired about now..Will be glad when this surgery is behind me.. LD
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For information only - not alarm!
FDA Puts 16 Drugs on Watch List http://www.medscape.com/viewarticle/762205 I noticed two of the 16 with some interest but please note the reassurances I'm quoting below. One of the items is gadolinium contrast dyes and a fuller story is given here http://www.medscape.com/viewarticle/713593 The other is Nexavar (sorafenib)…
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The circle of life...
Hi everyone, I’d like to tell you about my weekend, but for you to fully appreciate it I need to retell my story with a bit more detail. I apologize for the length, but it is a good story and I swear every word is true. About 27 years ago my neighbors, Bruce and Kim, were signing their sons up for wrestling and since my…
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wait over
Hello again its been awhile. I want to update all on whats been happening. In Sept 11 dx with spot on kidney, surgery scheduled for Dec. testing showed stage 4. prostate cancer.Prostate removed Dec 12 April 19 3.5cm removed from kidney Dr. said I should be cancer free now . I will keep following every ones post and praying…
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Summary of current treatment options
This is a good, succinct conspectus of current and future treatment choices http://www.cancernetwork.com/rcc/content/article/10165/2044903 The paper dates from last month and is entitled "Systemic Therapy in Renal Cell Carcinoma: Advancing Paradigms".
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ASPIRIN - !,543 B.C. to 21st April 2012 announcement
Mechanism of aspirin benefit uncovered 21 Apr 2012 Researchers in Canada, Scotland and Australia have discovered that salicylate, the active ingredient in aspirin, directly increases the activity of the protein AMPK (AMP-activated protein kinase), a key player in regulating cell growth and metabolism. AMPK which is…
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Does Radiation Treatment stop the pain?
My mom was diagnosed with RCC stage IV at the end of Feb. Then, about 4 weeks ago she had her kidney removed. Just before her kidney surgery her left leg was hurting and it continued to worsen. Last week we took her to her orthopedic surgeon, who had put a pin in her femur in 2008 after a fall. He found that the RCC was in…
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:)
Good Morning all. and thank you.
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MDX-1106, part three
OK. Here we go. First of all, excuse me as I am getting a bit emotional. I do know that I am going to cry tonite. Second of all, if I begin to slur my words it's because some one told me to have a couple beers to celebrate. So, I took my own advice! Went for 7th infusion today of 10 mg/per kilogram of body weight of…
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The Thing from outer space v the biological programming error
Some of the books I've been reading lately have the same underlying theme - a great favourite: clear thinking. The excellent "Bad Science" by Ben Goldacre contains material flagged by the eponymous title but the book is really about correct thinking. Charles Merrett's "The Origin of Anxieties" could have taken its title…
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A little heartbroken
I guess things just seem to be getting worse for me.Already lost my right kidney now my left one has a tumor that is about a 1.4 cm.Will find out today how the surgeon is going to remove it .I guess things could be worse but it is very hard for me to be thankful right now, I will keep everyone posted when I can.Have A Nice…
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So Happy To Have Everyone Here !!
Hello Friends!! I have been gone celebrating my 50th wedding anniversary, and as soon as I came home, turned on the computer to see how everyone is doing. So happy everyone is keeping up the fight!! Life is good!
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A Miracle!
A Miracle has happened. I received the pathology report today. It is not cancer. It was a tumor that causes loss of kidney function; but, I can live with that. The doctor and PA called within a few minutes of each other. They were both very excited. They rarely get to deliver good news. My husband and I were both on the…
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SARCOMATOID CHROMOPHOBE RCC
I'm looking to compare notes with anyone who has Chromophobe RCC that has become sarcomatoid. I don't want to be knocked down in the rush, so please don't all flock here at once :) In the event that there's anyone out there who has heavily necrotic, metastatic, sarcomatoid chromophobe RCC I'd be happy to make contact…
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The beauty of health insurance Membership card
Yes I am one of the fortunate ones to have health insurance,I believe my lifetime benefits are about 1 million dollars which at this time leaves me with about 900,000 left give or tae a few dollars.Now to my point,I have had to spend the whole damm week worrying whether or not my cancer has returned or not because on 4/09…
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not Von Hippel Lindau... now what?
I had genetic testing done to see if I had the Von Hippel Lindau gene, my urologist swore that is why I got kidney cancer at 28. Well guess what, I dont have the gene. So what the Eff does that mean? Why did I get kidney cancer at 28? Did I do something, eat something, breath something? If just doesn't make sense. I wanted…