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staples out Thursday ER on Friday for Incision open
So I had my staples removed Thursday (8 days after partial nephrectomy), a whoping 17, the longest incision was about 1.5 inches. Removing the staples was painless, and quick, possibly 30 seconds. They put these thin short steri strips on and said they will probably fall off the next, daym which they did. I asked do I put…
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Struggling with the pain after nephrectomy
Hi guys I was wondering if you can steer me in the right direction. I had a radical, open nephrectomy on June 20 this year, and the tumor was a Grade 2 RCC. So, im about 5 weeks out. I cant take the pain. I still take Oxycotin at night and just paracetomol during the day. I have the most horrible pains in my back and the…
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Sutent
Hi All, My husband is 50 years old and was diagnosed with Kidney Cancer and mets to his lung and brain. Is is currently having radiation on the whole brain and is on Sutent 50mg for the kidney and lung. He has only 5 days of sutent left of his first cycle, and 1 week left of whole brain radiation. He is experiencing a very…
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Acor.org users?
Based on a recommendation posted here, I've been trying to view the "cancer types" links on acor.org for several weeks and I keep getting an error message saying "unable to connect to server." The rest of their links work fine. Anyone else having this problem? I have sent them four emails but they have not responded.
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HDIL2 worked for me!
I just got the results of my first CT scan after undergoing HDIL2. The mass on my chest wall was reduced dramatically. My oncologist is not sure if the little bit left is cancer or scar tissue. I have another scan in 6 weeks which will probably tell which it is. My oncologist told me that in a very small amount of people…
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Trying to Make a Decision on RCC Surgery
Hello Everyone Just joined today. As the story goes, I found my RCC about 30 days ago by accident. Was having my first ever CAT scan for something unrelated, when they found a mass > 4cm on my left kidney and classified it as T2 and thankfully limited to my left kidney. My primary care physician sent me to a Urology here…
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How long do you have to wait to go on RollerCoasters?
How long should someone wait after a radical nephrectomy to go on a roller coaster?
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home after partial nephrectomy
Hello everyone, I had my sugery wednesday afternnon, a laproscopic partial nephrectomy using davinci robot. The margins were clear, and all tests were fine. They are now staining to see if it is clear cell, chromophobe, or papillary. The tumor by CT was 2.9 but actual sive was a little over 3 cm, cant remember exact size.…
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Hi guys from Brisbane Australia
Hi guys I had 2/3 of my stomach removed as a weight loss measure (sleeve gastrectomy) in August 2010. I had incredible pain in the tummy and went to the ER thinking something was wrong with my tummy on May 27, 2011. My vitals dropped very low and they put me in for the CT urgently as they believed I was bleeding…
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Antihistamine - Itchy/Hives
Hi all, I was just wondering if anyone has had issues with Hives/Itching after nephrectomy? About six months after mine I developed Hives/Chronic Urticaria, which at one point was put down to contrast die. Allergist said this was unlikely. Dermatologist said it was most likely the cause. Go figure. The only way to keep the…
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Need to see an oncologist?
I am 43 and my cancer was found 'accidentally' on a CT for diverticulitis. Fortunately, the tumor was less than 3 cm. Because of its placement, I had to have a radical nephrectomy. My surgery was July 6 and I'm on the road to recovery. We will see my urologist in one week and get the full pathology report. Initially, he…
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Recurrence
I got my CT scan results back today and my cancer has come back. I have a tumor 3 X 4cm in the area where my left kidney was. Has anyone else had this happen and what did you do next? I am considering going to Cleveland Clinic this time around. I saw a urologist last year for my nephrectomy and have been seeing my GP for…
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Surgery July 20th, this is what I've learned so far
The 20th seems like such a far way away, and with each day I get more nervous. My 2.9 cm tumor is on my right kidney, it is exophytic, and at the bottom pole. My urologist indicated I am a good candidate for laroscopic robotic partial nephrectomy. Based on my research, and the urologist feedback, the prognosis for open…
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newly diagnosed with PRCC-soliciting questions to ask and advice?
Hi! I am a 36 year old female and am new to this. It all came on very suddenly. I was diagnosed with what was thought a non cancerous tumor/cyst on my left kidney. We only discovered it during the diagnosis of a very large kidney stone in the same kidney which I had removed. I've never had a kidney stone or any kidney…
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Hight Doses of IL2 DID NOT WORK
Hey everybody I am carrying for my mom who was diagnosed with stage IV in April 2010. She underwent right kidney removal together with part of her intestines. First she was on Sutent, then the CT scan showed that the cancer spread to her lungs, liver and muscles in her back. We decided to do IL2. Not only the IL2 did not…
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Thank you
To one and all that have contributed to these pages over the years I thank you for your time and effort from the bottom of my heart. I am truly overwhelmed and so relieved to have found your discussion board. Finally I feel that I have found some insight from people who do know exactly how I feel, and that are going…
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Cancer in both kidneys
I was diagnosed 5 weeks ago with a complex cyst about 7cm on my right kidney, 95% chance it is cancer. Have a tumor on my left kidney also 95% cancer. In 3 weeks I am having surgery on right kidney with cyst that covers the center of right kidney. Doctor says I will have dog ears after cyst is removed and he will try to…