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Head and Neck Cancer

Archives for July 2023

Healios question- amount of water
Hello, I just received an order of healios and it says to take 1 scoop of it with 25ml to 100ml of water. To those that drink Healios, how much water do you use? The bottle has 25ml, 50, 75, 100 and even 125. Will 25ml of water benefit me more with 1 scoop than if I diluted it with 100ml? I am probably overthinking it as I…
VMAT vs. Proton Radiation for BOT Cancer
Hi All, Starting this journey with my husband and I've been doing a ton of researching on this board for us/him. He was diagnosed with Stage I c2TN1MO HPV+ 16. Primary is about 1.2 cm at the base of his tongue. 2 affected lymph nodes on the same (left) side. He had a lymph node swell that he noticed end of April. Saw his…
Got COVID and Did Not Feel Sick? Here's Why
Here is a video for your consideration. It is a bit technical for me but you may find the information in it interesting. Got COVID and Did Not Feel Sick? Here's Why. Dr.Been---Researchers from the University of California San Francisco (UCSF) have revealed a potential HLA gene (HLA B15:01) that helps create polyfunctional…
Recurrence or new incidence
I was 8 years out from treatment and was considered cured from bot cancer when another tumor was found in my neck 2 years ago. I have been on Keytruda for 2 years. The tumor has not grown but has also not gone away. I have lymph node involvement. Everything is what they call stable. It looks like I will get radiation and…
Off Topic
When did this start happening? "Your comment will appear after it is approved." Is someone censoring the boards now?
Rebuilding Teeth
Hi folks - I've been off this list for a while, as my husband's cancer journey was over 10 years ago, and I had to deal with some PTSD afterward, which made me not want to even think of cancer. However, since cancer is the gift that keeps on giving, I'm looking for advice again. His teeth, which made it through treatment,…
PET Scan
Just a quick update. My condition has been generally stable and I am doing pretty good. I have leftover issues from treatment as we all do like dry mouth, neuropathy, diminished swallowing, some stiffness from radiation, and some of what happens with me like a rough morning getting started and a day every now and then just…
A Cancer Story-Short Video-A Heart Warmer And A Heart Breaker
Please take a look at this you won't be sorry. FOX5 Surprise Squad - Waitress with Dying Husband Gets $12,000 Tip! Most people would move mountains and part the sea for the people they love, the ones closest to them. For waitress and mother of four Jessica, that person is her husband, Robert, who was seriously ill with…
Cramping from head to toe
I had BOT 4 years ago and side affects still persist. What I notice lately is my whole body getting cramps..arms, legs, feet, chest and head. My oncologist didn't seem to worried. My Primary care doctor had me try magnesium, electrolyte drinks, potassium, eat 5 bananas a week. etc. When I get the most cramping is in bed…
Suggestions please
need suggestions to put on weight 13 EGD procedures and esophagus is still about the size of a drinking straw i drink 10-16 bottles of Ensure per day mixed with milk,chocolate syrup,bananas,,instant breakfast and peanut butter work for me is about 3-5 hours per day and then I’m exhausted I honestly don’t want to purée food…
Cancer Survivors Inspire
This short video is not of H&N cancer survivors but cancer survivors just the same and I believe our journeys are very similar with similar modes of treatments and the same physical and emotional load and challenges involved in cancer treatment and survival. I hope you get some inspiration from this and a connection and…
Treatment for Oropharyngeal Cancer: Investigating Ways to Do Less Harm
Please check out this article. More information for us. From The National Cancer Institute. Take Care, God Bless-Russ UPDATE (February 28, 2022): This story has been updated to reflect new information, including new data from two clinical trials.
After TORS, de-intensified trial of 3 weeks rad
Hi all. Massive thanks to you who have shared your experience and helpful tips about getting through your ordeals. You have shown me what patience and strength is. I'm here for support, but also want to be a resource for anyone going through something similar, as I seem to be a kinda niche patient with this early-stage ssc…
8 month post surgery problems.
Hello everyone, I am 56m have a history of tobacco abuse for at least 40 years. Last year September I was diagnosed with stage 4 squamous cell carcinoma in the oral cavity. The doctors told me the lymph nodes have been affected and I need to get rid of my lower jaw and have a bone transplant from my leg to the site. I had…
Support
I was diagnosed with tongue cancer about 5 months ago. I have been through surgery to remove the tumor and 28 lymph nodes 4 coming back with cancer. Been through chemo and radiation treatments. I'm 5 weeks in recovery from treatments and still having some difficulty I had to have a feeding tube placed during treatments my…
Wishing Everyone A Happy And Joyous Independence Day 2023
As we celebrate the 4th of July Independence Day. I wish you all a wonderful day filled with cookouts, family and friends, fireworks displays and the pure joy of unfettered freedom. May we remember the price paid for by our founding fathers to establish this nation. May we also consider the price paid by many Americans to…
VAERS: Are mRNA Adverse Event Reports Accurate? Dr. Jessica Rose w/ Dr. Kelly Victory – Ask Dr. Drew
Here is an interesting discussion on the VAER's Vaccine Adverse Event Reporting System (VAERS). A little over an hour, well worth the watch I guarantee you will get something out of it. These people have a good discussion on it and other situations surrounding the VAER's system, covid, and vaccines. I believe they are all…
I have just found you folks!
My name is Thomas, and I had a complete Laryngectomy a yr and a half ago Now retired singer/ songwriter. I still play alot of Guitar, its been my life since I was very little. Since the operation I have watched friends and family just simply go away. It's been heartbreaking. So today I found you folks and I am hoping and…
Cancer Survivorship Care Plans with Lynda Kwon Beaupin, MD-Video
Informational video on survivorship plans and thoughts for your survivorship moving forward. Take Care, God Bless-Russ

Head and Neck Cancer

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