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Head and Neck Cancer

Archives for May 2020

Covid 19 & HPV BoT CANCER
I am about 2 years post all is well except the small amount of mucus and dry mouth symptons. Along with this comes the dry cough and runny nose that I have had since Radiation days. What makes it difficult is that these symptons coincide with the covid-19 symptons. Just wondering if there is any other problems they need to…
Recent Good News
Hello, I just wanted to let everyone know that I had My CT Scan with dye this week of my Head & Neck area on Tuesday the 26th as a follow up to my recent cancer episode. Today I talked to my radiation doctor as to the results and I got the best news ever as he sees no sign of cancer (NED) and the scan is unremarkable. I…
Two Year Update
Greetings, I relied so much on this group when my wife was going through HPV-16 squamos cell base of tongue cancer. So many people here helped us so much. Thank you. I wanted to share some good news hopefully to encourage others. Betsy had the surgery to remove the tumor, which was very small. They also removed all the…
23 yr old f- Swollen submandibular lymph nodes for months
I am a 23 year old female with no know medical issues. About 10 months ago (around Sept 2019) , I had swelling of my submandibular lymph nodes. It was a little swollen on both sides, but the right side had one in particular that was hard and round like a marble. I wasn't sick, so I was worried and went to get checked out…
LOOKING FOR INFO AND SUPPORT
Good day to all! I never thought even six months ago that I'd be in a position to write this and I imagine that puts me in the exact position all of you once were in. I went to my PC doctor in December of 2019 and told him I was having problems swallowing my meds. He was concerned and referred me to an ENT who initially…
Official 2 year checkup
Not much to say other than everything looked and felt good, but no scope was done due to COVID-19 precautions. I have to say that just showing up was a bizarre experiance. Two years ago as I was traveling up to "the clinic" for radiation and chemo, and at my subsequent chekups, the cancer center was teaming with patients…
One Of Our Very Own CSN Members
CSN member Mikemetz has written a book about his cancer experiences. The book was recently released on Amazon and Barnes & Noble. The title is "My Two Journies in the Cancer World: Team Mike Versus the Prarie Dogs". Mike learned he had cancer in February of 2009. He joined CSN in 2011 and has gone through much and shared…
Tongue Cancer
Hello I'm a new member on this Network. I had tongue cancer and went through surgery on my tonuge and also removed lymph node on one side. Now I will be going through Radiation therapy. Has any one used MuGard ? Does this help? Please advise. Thanks.
Anyone Else Facing Treatment Obstacles Due to Coronavirus? Stephenson Cancer Center Would Not See Me
I'm three years post treatment for stage three SCC head and neck, base of tongue, HPV related. It has always been instilled in me during treatment not to let my guard down and to make sure I'm doing my followup appointments because this sort of cancer has a tendency to return within 5 years. Well, I had a 6 month checkup…
Cetuximab (Erbitux) for advanced Stage IV
So our new PET showed stuff and our prognosis was not great, but were determined to fight all the way. Chemos dont seem to be working anymore. We've chosen to go with cetuximab (Erbitux)...no additional radiation at this time. I've heard a rash and possible severe reactions. Has anyone done just this med for advanced Stage…
Halfway finished
Hello....my husband had his second Cisplatin dose scheduled today, but his WBCs were too low to give it. He’s pretty bummed about that, because he was mentally prepared for it. He had even had an injection on Saturday to try to boost the WBCs, but wasn’t effective. Going to recheck labs tomorrow and decide. Did any of you…
laryngectomy My New Diagnosis - Scared but Also OK
Some of you know I have been struggling with this for a while. I am at the Cleveland Clinic. They are fairly sure I have stage 1 and at worst stage !! cancer of the voice box. Since I had radiation before (neck unknown primary) and even though it was 8 years ago they are very reluctant to do radiation again. The risks are…
Three years out from treatment.
Been a long while since I've posted here. Lots of new names here. Sorry for what you all are going through our have gone through. May is 3 years since my treatment. S4 BOT. Left side. 1 node each side of neck. 7 weekly cisplatin, 35 daily rads. No surgery. Other than a laundry list of side effects, I'm well. Good luck with…

Head and Neck Cancer

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